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  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic In IPF Rat Model, Transplanting a Type of Lung Cells Halts Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    A cell therapy approach based on transplanting a type of lung cells called type II alveolar cells halted scarring in a rat model of IPF. Click here to learn more.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic IPF Single Lung Transplants Increase Lung Cancer Risk, Study Shows in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    People with idiopathic pulmonary fibrosis who receive a single lung transplant have a higher risk of developing lung cancer, a study found. Click here to learn more.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic IPF patients taking antifibrotic therapies Ofev or Esbriet had a 37% lower mortality risk than those not treated, a registry-based study says. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    IPF patients taking antifibrotic therapies Ofev or Esbriet had a 37% lower mortality risk than those not treated, a registry-based study says. Read more here.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Long-term Survival in IPF Patients Similar Between Double, Single Lung Transplants in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    Long-term survival appears to be similar between bilateral and single lung transplants in IPF patients, a review study shows. Click here to read more.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic FDA Names AMP945, Potential IPF Treatment, an Orphan Drug in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    Orphan drug status gives incentives to companies to support development of treatments, like AMP945 by Amplia Therapeutics, for rare diseases. Click here to learn more.

    What are your thoughts on orphan drugs?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic In Certain IPF Patients with Lung Cancer, Ofev May Be Best Treatment in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    A case report supports using Ofev as monotherapy for IPF patients with advanced non‐small cell lung cancer who cannot tolerate chemotherapy.  Click here to read more about it.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Real-world Study Supports Effectiveness, Safety of Esbriet for Treating IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    A real-world, multi-center study in Poland confirms the effectiveness of two-year treatment with Esbriet (pirfenidone) for IPF patients. Read more about it here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Ofev Approved in US and Canada for Progressive Fibrosing ILD in the forum Ofev (Nintedanib) 2 years, 10 months ago

    The FDA and Health Canada extended use of Ofev, as twice daily capsule, for interstitial lung diseases with chronic worsening of fibrosis. Read more about it here.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Repeat Hospitalizations in IPF Patients Linked to Poor Survival in Study in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 10 months ago

    Poorer survival was seen in chronic idiopathic interstitial pneumonia patients hospitalized repeatedly for acute flares and infections. Click here to learn more.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic In IPF, CT Scans May Help Predict Mortality Risk of Patients, Study Finds in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 10 months ago

    Lung CT scans might help predict the mortality risk in IPF patients better than the decline in forced vital capacity, a study shows. Read more here.

    What do you think of these findings?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Rare Diseases Research Network Opens Online Survey on COVID-19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 10 months ago

    The NIH-led research network hopes for 5,000 responses to its online survey of how people with rare diseases in the US are being affected by the pandemic. Click here to learn more.

    How has the global pandemic affected you so far?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 10 months ago

    Click here to read NORD’s call to action for rare disease patients on financial and legislative issues in the wake of the COVID-19 pandemic.

    Which of these issues is most important to you and why?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Avalyn Funding to Support Trials of Inhaled Pirfenidone in IPF, CLAD in the forum Research and Development 2 years, 10 months ago

    Avalyn raised $35.5 million to support clinical studies of APO1, aerosolized pirfenidone, to treat IPF and chronic lung allograft dysfunction. Click here to read more.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic IPF Study Links Mortality to Assisted Ventilation After HFNC Oxygen Therapy in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 10 months ago

    A study has linked mechanical ventilation to higher mortality rates in IPF patients previously treated with high-flow nasal cannula oxygen therapy. Read more about these findings here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Chronic Lung Infections a Serious Complication in IPF, Study Reveals in the forum Research and Development 2 years, 10 months ago

    Chronic lung infections are particularly risky for IPF patients with low oxygen pressure in the blood or high levels of the biomarker KL-6. Read more about this topic here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Potential PF Treatment Limits Weight Loss, Lung Scarring in Mouse Model in the forum Research and Development 2 years, 11 months ago

    GED-0507 was seen in mice with induced pulmonary fibrosis to have benefits equal to, or greater than, two approved anti-fibrotic therapies. Read more about these findings here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic Differences in Diagnosing, Treating Acute IPF Flares Evident Across Globe in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 11 months ago

    A survey of 509 doctors in 66 countries found variations in approach given acute IPF exacerbations, reflecting a lack of clear guidelines. Read the full story here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic IPF Patients at High Risk of Death Soon After Acute Flare, Study Says in the forum Research and Development 2 years, 11 months ago

    According to a study, people with IPF live a much shorter time after an acute exacerbation than those with other interstitial lung diseases (ILD). Read more about these findings here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic IPF Case Study Says Left Lung Can Be Transplanted in Place of Right Lung in the forum Research and Development 2 years, 11 months ago

    Surgeons in Japan were able to transplant a donated left lung into the right-side lung cavity of an IPF patient, a case study reports. Read the full story here.

    What do you think of this news?

  • Profile picture of Pulmonary Fibrosis News Moderator

    Pulmonary Fibrosis News Moderator started the topic NORD Partners with 'Sing Me a Story' for July 18-20 Living Rare Forum in the forum Research and Development 2 years, 11 months ago

    You can enter into a raffle for a chance to have your song performed on stage at NORD’s patient and family forum welcome reception. Click here find out more.

    Will you be entering this contest?

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Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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