-
Dave replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 7 months, 1 week ago
Hi Kris: I didn’t have a cough prior to lung transplant so am unable to respond to your question about cough. My symptoms were extreme sob, fatigue and unable to walk any distance without oxygen. I was on ofev for 3 months prior to transplant. The transplant surgeon told my wife following the surgery that my lung was stiff and the disease had…[Read more]
-
Dave replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 7 months, 2 weeks ago
Hi Kris: I was diagnosed with IPF in August 2021. I’m 70 years old and was fortunate to have a left single lung transplant on March 1 2022. I was hospitalized for 10 days and left the hospital with no oxygen supplement needed and was fortunate to have no complications. My right lung still has IPF and my doctor explained that it will eventually be…[Read more]
-
Dave posted a new activity comment 9 months, 2 weeks ago
Not sure where you are in New Jersey but if Philadelphia Pa is a reasonable distance, Dr. Gerard Criner at Temple Lung Center is a highly rated Pulmonologist and maybe a good option for another opinion. I personally have gone to him and he is an excellent doctor.
-
Dave replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 3 weeks ago
Devastating – Unpredictable – Misunderstood – Terminal
-
Dave replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 10 months, 1 week ago
Hi Kris: usually a heart catheterization of both left and right sides is a pre requirement for a lung transplant. Alot of times if a stent is required, that will be done during the catherization. I’m thinking once the stent is done, you could proceed with the transplant testing process. Just my opinion.
-
Dave replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 10 months, 1 week ago
My total hospital stay including the day of surgery was 10 days. I was then discharged to Gift of Life House in Philadelphia for 2 weeks to be close to hospital if I experienced any issues. Home health nurse visited me there twice a week and PT and OT was ordered, but I didn’t need them as I was getting around quite well on my own. Today I am one…[Read more]
-
Dave replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 10 months, 1 week ago
I was diagnosed with Idiopathic Pulmonary Fibrosis disease in August 2021. I had been dealing with shortness of breath and it was progressively getting worse. My original pulmonologist had a wait and see approach. I got a second opinion and immediately I was advised to get on the National Lung transplant list. I started with the testing in January…[Read more]
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Thanks Charlene for the welcome to forum. It’s interesting to read about people’s experiences with PF and learn we are not alone in this disease. Many good ideas to think and enact on. Stay safe and well. Dave
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
<p style=”text-align: left;”>Hi Steve thanks for the heads up on Omeprazole. I’m already taking Lansoprazole DR capsules 30 mg for GERD. I think it’s similar to the Omeprazole you mentioned. I may inquire with the doctor about changing. Thanks for your help and stay safe. Dave</p>
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Thanks Steve, my secondary diagnosis was Pulmonary Hypertension so it appears I already have it. It was discovered when I had a heart catheterization in July. The heart catheterization showed no blockage and that is why I followed up with Pulmonary Fibrosis/hypertension doctor. I had been sob since 2018, and CT scan of mild Fibrosis in lungs. My…[Read more]
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Hi Steve thanks for the heads up on the NAC supplement. Currently I am taking 600 mg 2 hours after breakfast and 600 mg 2 hours after dinner. I will taper it to 600 mg a day after 2 weeks. What does PAH mean? Thanks for the rest of the tips to ask doctor. I have an interview with Philadelphia Temple University lung transplant center in November. I…[Read more]
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Hi Steve: thanks for taking the time to respond to my inquiry about NAC. I have now started taking it 2 times a day. Hopefully this will help me also. I have been reading the PF forum since being diagnosed with Pulmonary Fibrosis. Is there any tips on questions I should ask when I meet with PF doctor next month? I’m thinking asking for a biopsy…[Read more]
-
Dave replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
hi Charlene: I’m new on here and was recently diagnosed with pulmonary fibrosis with secondary diagnosis of pulmonary hypertension. I’m inquiring if anyone has tried NAC supplement. (N-Acetyl L-Cysteine) to slow the progression of PF? Since diagnosis, I have changed my diet, lost 10 pounds and am waiting for appointment to meet with Pulmonary…[Read more]
-
Dave became a registered member 1 year, 5 months ago
Hi Dave you are so sweet, I barely get out of bed. I had a gut feeling that , I was going to get worse nd that is what is happening to me right now.
Hi Elle, sorry to intrude on your chat with Dave, but just wanted to make you aware that you posted this as a status update in case you had meant to send it to him as a private message. On the other hand, it sounds like you are going through a bit of a rough patch, so if you could use some support from the group, I encourage you to start a topic…[Read more]