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Hello Nan, thank you for sharing. Kicking the sugar habit is a tough thing to do. Sweets surround us everyday. I resonate with the full bloated stomach. When this happens I have some difficulty of doing anything physical until my food digests. You have a happy Sunday. Mark

Hello Muhammad, I previously wrote a topic regarding the effectiveness of gabapentin in alleviating chronic coughing. Here is the link.  Mention to your physician, it may be a another possibility for you. Take care, Mark.

https://pulmonaryfibrosisnews.com/forums/forums/topic/gabapentin-is-a-proven-treatment-for-refractory-chronic-cough/

From the experience of my IPF forum colleagues, I would like to know what medication can effectively help relieve / curb the fits of cough that are encountered pretty regularly by me.

How is everyone doing with this? Me, not so good. I did not have any weight to loose but in the past 2 weeks I have been eating a lot of sugary treats and white flour and i have gained 3 pounds, now i need to loose weight as that put me in the over weight category. I really need to get on board. I have done intermittent fasting and low carb and i…[Read more]

@jesse

Hi Jesse,

Thanks so much for writing to us and sharing your story. As Mark said above, we know this isn’t the easiest thing to do but we appreciate it.

When certain people walked out of my life or rather, “shy’d away” after my IPF diagnosis, I also was very upset and disappointed. However, this whole experience has been really…[Read more]

Completely agree Taleena!
I hope all the folks on this forum commit to doing one thing on Rare Disease Day 2020 to help highlight IPF/PF awareness. We can make such a difference. See you soon!
Char.

Completely agree with you Jean! Sorry to hear this is something difficult that you navigate as well. Sometimes others just don’t understand the difference between being fatigued and exhausted and I often have to explain it to them. However, I know many of us living with IPF get it intrinsically. I hope you’re doing as well as possible.
Charlene.

Hi Mal,

So nice to hear from you, thanks for writing to us! Sounds like most physicians are pushing for the flu shot, which is great news. I couldn’t imagine the harm in getting it, and suspect it likely is better to have some protection than none.

The pneumonia shot here in Canada is often reserved for seniors, or that is what I’ve heard…[Read more]

Hi

I’m on the other side of Australia to Jill but received the same advice, the first question “have you had a flu vaccination” (answer “I’ve had it every year for the last 20 or so years and never had the flu, or a problem with the vaccination”).

The next suggestion was to ensure I had a pneumonia shot, that was the first I had heard of a…[Read more]

Hello Richard, thank you for sharing your story. The survey would be a good idea. My doctor thoroughly questioned me on my initial appointment. The appointment lasted over 3 hours. In my case I didn’t smoke or work in a poor air quality environment. I think if every pulmonary doctor who is treating patients for ipf/pf or other ild, doctors s…[Read more]