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Would love to see a photo of your collection, if you would consider posting.

Have you heard of Gulliver’s Gate? It is the Largest Interactive Miniature World On The Earth. 50,000 Sq. Ft. To Explore! And experience a massive, mesmerizing World of Miniatures. Explore 5 Continents. You may have the web site interesting. www DOT gulliversgate DOT…[Read more]

Thanks Mark

Thank you so much Wendy. I really appreciated your input and information-sharing. I have looked to the link and like what I read. And when I practice and follow the mindfulness techniques of Dr. Neff, I will follow your lead and put my hand over my heart.

Hello Wendy, you are so welcome. Thank you for offering Lorraine suggestions. Your suggestions are highly appropriate and appreciated by all forum members. Mark

Oh, Lorraine, I really feel for you. I’m glad you’re getting out a bit more and I hope that counselling will help. I feel sure that it will. It’s difficult not to feel grief for ourselves in this situation and I think it’s perfectly normal to do so. There’s a wonderful practice from Dr Kristen Neff, a mindfulness and self compassion advocate and…[Read more]

Hello Lorraine, thank you for commenting. I know sometimes it’s hard to express your feelings to others when you are not feeling that well. It makes me happy you are beginning to resume your normal activities. Fill the calendar up, reminisce with friends and keep active as your body will allow. Thank you again. Mark

Thank you, Mark!

I too am struggling. My disease is progressing, slowly but none the less, progressing.

I can’t get this disease out of my heart and head. I was in a terrible funk for most of the summer and started to withdraw, putting myself in Social Isolation. At times I called a free mental health counseling service. Sometimes several times in a day. It…[Read more]

Charlene,

I switched to a ResMed Bi-Pap with an oxygen connector as part of the tubing. Oxygen is set at 2 litres for sleeping. It is able to transmit back to the doctor my sleep results daily. What seems different to me is the amount of water it uses. Very little indeed and it may be my imagination, but a finer misting of water breathing through…[Read more]

<p style=”text-align: left;”>Charlene</p>
<p style=”text-align: left;”>Yes, I hope that our discussion not only benefitted me but his other patients as well.  Seems a lot of Drs refer to him in our area.  Even the cardiologist I saw does. I know the pulmonologist does the six minute distance walk in his office as I saw a lady doing one. I did f…[Read more]

Hi Linda,

Thanks for writing and sharing an update. Wow, kudos to you for explaining exactly how you felt to the pulmonologist, and having a second physician’s information copied on the HRCT results. This probably made him realize that he is doing something you don’t like, giving you the opportunity to explain. Really glad he suggested pulmonary…[Read more]

Hi Jaime,

Oh, no problem – hello from a fellow Canadian! Calgary is a beautiful city, did you ever travel out to Banff or Canmore? Some of my favourite destinations to see the beautiful mountains. Certainly one of the downfalls (in my experience) of Canadian summers in the provinces that aren’t coastal, is the high heat and humidity. Glad you are…[Read more]

Hello Charlene, would you believe that I just saw yor greetings of Canada day, well let me tell you , I became canadian 40 years ago, I lived most of that time in Calgary AB, but for health reasons I move back to Chile where the summers are way longer and not too dry. Canada is a great country which I m proud  to be part of . I make those greets…[Read more]

I will keep my fingers crossed for you Cynthia! Please let us know how you make out on the two new drugs. I know the risks are there for catching a cold/virus, due to lowering your immune system but I hope it helps improve your ability to breathe. Thanks for sharing.
Charlene.

That is one of the factors I considered too Cynthia! I have to admit, it has been a very easy POC to travel with, aside from the weight but others tend to help lug it around for me. Would your insurance cover a POC? Really worth the investment if one can manage financially to buy it, though I recognize this isn’t always the case. Charlene.

Hi Connie,

Thanks for writing, nice to hear from you! I am hoping to experience similar weather as you say you get, while I am in Hawaii: hot but without the humidity. I think this will make a huge difference with my ability to breathe. Amazing that you can walk 5 miles in a day, kudos to you Connie! I don’t know if I could/would want to do that…[Read more]