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Hi all

I to had similar problems with 150mg Ofev twice a day, I was not tolerating it at all. My doctors gave me a 2 week holiday then 150mg once a day till I got back up to see them, and now for the last month I’ve been on 100 mg twice a day.

I’m tolerating the 100mg dose very well only very slight discomfort ( & emergencys).

cheers Mal

Marianne –

Hope you are doing well.

I go to rehab at an outpatient facility associated with Mount Carmel. I had contemplated switching to a regular gym but realized that it would be best to remain with this rehab facility as they are trained in case anything were to happen and they do have supplemental oxygen.

I am having a difficult time…[Read more]

@cynthia-comery-ferguson

I have been taking Lipitor 80 mg for many years and have always taken this just before going to bed. It has always left a “statin taste” in my mouth during sleep and upon awaking in the morning and I have never given this a second thought until my recent IPF diagnosis. Like most people with IPF, I underwent a barrage…[Read more]

Hi Patricia,

Thanks so much for writing, it is so nice to hear from you! I agree, I found a lot of hope from this latest flash briefing. I know researchers are learning a lot, and getting close to figuring out how to stop this disease from progressing but it needs to happen as soon as possible. Good, great and wonderful people like Kim are…[Read more]

Thank you for posting this great information Charlene. I know it has been awhile since last writing. I have been living in a whirl wind. Any person waiting for a lung transplant should listen to this report. It is very hopeful information.
Although I was denied a transplant at the UofW, Stanford Medical in Ca. has agreed to list me after a few…[Read more]

Thanks Lorena, hopefully doctors are able to prescribe them as requested 🙂
Charlene.

Hi Charlene it,has been a long trail I’ve been for these months. In this time I found out ( not surprised ) that I do not qualify for a lung transplant . Also found out that my immune  system terribly compromised ! So n these past months I have fought off several infections one almost landed me in the hospital , but I managed to (power through )…[Read more]

@rayna-meryl

I have an ingogen 3 continuous flow concentrator I use 24/7 it goes to 5 hope it helps

Karen  ( @lks8081 )

Do you take your rehab in the OSU network?  I will be taking my rehab at the Outpatient East location on Mon, Tues and Thurs.  I assume they want you to climb the stairs to get stronger.  I am not a fan of climbing stairs as it is harder for me to breathe.  I have only noticed the stairs affecting me in the past couple of mont…[Read more]

We have been looking for a 5L continuous flow POC. My son cannot activate the pulse kind. Does a 5L+ POC exist? Our DME company gave us obe that goes up to 3L continuous and my son uses an oximizer to get up to the 5L requirement to maintain min. 91% oxygen.