Activity

Hi Mark, the link provided is to the Boehringer ingelheim financial assistance department for Ofev. https://www.boehringer-ingelheim.us/our-responsibility/patient-assistance-program
As I stated before I was fortunate enough to have employer insurance that covered my Ofev. At the time I received my scripts BI customer service was in contact with…[Read more]

<p style=”text-align: left;”>Mark K — I have read many references to financial assistance in these forums. Some folks have just enough resources that don’t make them eligible for assistance, yet they somehow were able to get help.  I’m looking for that pathway, if it’s real. I am semi-retired, on Medicare with medicare supplement and Medicare…[Read more]

Hi Cindy, thank you for the important info. I was in your boat as well. Employer insurance paid for the medicine, all but $10. The copay was covered by Boehringer ingelheim as they gave me a $20,000 grant for copay help. I wish they could of given me the cash. I hope things are going good with you and Ofev. May your lung function remain stable. Mark

Hi Mark,  I was put on Ofev right away when diagnosed in July of 2019 with mild to moderate IPF.  Because I am not 65 and not on Medicare but have a private insurance from work I was eligible for help.  Insurance covered most and what insurance didn’t cover this assistance program did so I have not had to pay any copay yet.  However I turn 65 in…[Read more]

Thanks Charlene.

I’ll let know if I learn more. I suspect there are a lot of things that I’ll never know for sure.

Take care

Hi Jackie,

Thanks so much for sharing, and I’m glad you had a good hospice team for your Mom’s care. Sorry to hear of your loss.

@heatherk6417  do you have a hospice or palliative care team involved with your Mom to help with her needs? They’re often really good at managing these things or advising family on how to help the patient. I agree…[Read more]

@bakerbob

Good Morning Bob,

Thanks for writing and sharing with us the results of your biopsy, though so sorry you’re dealing with a fibrotic lung disease and have pulmonary scarring. I didn’t have a lung biopsy for my diagnosis, and don’t recall being told my scarring was in the “airway”, I wonder if this differs from being in the lungs? My…[Read more]

Hi Dana, please speak with your physician and state your upcoming travel plans. Ask them if you could have a High Altitude Simulation Test (HAST) administered. This test will tell you at which height you will need oxygen and how much. They should be able to prescribe you supplemental oxygen for your travel. Here is a link that can explain the…[Read more]

Hi Mark, it seems as if you have fixed your password problem because you are commenting. Our disease acts in peculiar ways, no one can ever tell you if your condition will progress or remain stable. I’m hopeful you remain stable for another 25 years. The Ofev is expensive and some are able to get financial help with the cost of their insurance d…[Read more]

I am down in spirit right now but know this will pass.  I am still trying to make sense of my most recent diagnosis, given I have lived with this condition for 25 years.  At this time I do not experience any of the common symptoms,  but the breathing test and image studies tell another story. I am in the shell shocked stage concerning the price of…[Read more]

We are planning a trip in our Airstream in April for however long we want to be gone, not sure yet.  We do love to go to the mountains.  The last time we were there i had a hard time breathing and now I know why.  Just thought it was something everyone had trouble with and just went on.  I’m not on oxygen now but wonder what I could buy to have…[Read more]