Activity

Pulmonary rehab was so boring for me 🥴 I have always been active,gone to the gym,etc. all my life. Always my exercise was outside based. Training horses,then dogs,running agility,tracking etc. working my border collie on sheep…so my emotional painful struggle is trying to get excited about exercise inside😩I have a couple of good programs from…[Read more]

@bobb

No worries – we will get out and vote…

Hello RJ, congrats on your transplant. I hope you are recovering nicely other than what you have described. Hopefully these tremors will soon pass. I did not experience any problems with my vocal chords. I hope you recover from these ailments soon. I did have a little problem with short term memory, mostly while speaking. Its not fun when your…[Read more]

Thank you Mark and Eileen for sharing your experiences.

I had my single lung transplant the end of May and was dismayed by the tremors in both hands as well as the loss of my voice. Has anyone else experienced problems with their vocal chords? If so, what did you do?? I am also experiencing foggy memory. These side effects are very alarming.

Hi Jude,

I had my biopsy Nov 2019, this was the last procedure needed to classify the PF as Idiopathic, and the results supported an IPF diagnosis.  Love my pulmonologist and think he has done a great job diagnosing me.  His suggestion was that I consult with a University Medical center for further evaluation and to see if a clinical trial m…[Read more]

Steve:  They certainly have been silent but I still chose the wrong words.

Charlene:  Whew! I thought I might get banned!!  Thank you.

Hi @bobb ,

No problem at all — my worry was actually that you weren’t able to see the forums on your computer anymore, or that it appears things were being deleted from the site! I’m glad that isn’t the case and it sounds like you can still access/see everything on the forums platform, is that right? 🙂

Yes, things are a bit quieter, you’re…[Read more]

Hi Sam, The person with the knowledge is Dr Andy Hall, he is a chiropractor who has lung disease and has used the laser on himself. The laser is not approved treatment and lung doctors for the most part do not support this treatment. From my own personnel expediences I can say it does work. I can not say it stops lung disease but I have seen…[Read more]

@drandyhall

Hi Andy!

I was in touch via email about 18 months ago and they have me on a list when phase 2/3 comes to the USA. Maybe it’s time I find that email and try them again…

Stay well friend…

Steve

@bobbie – Hi Bobbie you have come to the right place. Welcome… – Steve

@bobb – I think it’s just the silent majority… – Steve

Hey, Bobbi! Welcome!! Mark is right about people here being well informed and happy to share and help out. I know you have come to the right place!

Charlene:  My sincere apologies for definitely using the wrong choice of words.  My intent was only meant to refer to the low level of postings in recent months.  I’m so sorry for giving you and others the wrong impression.