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Afternoon Don  (thought I had just published this but it seems to have disappeared !!

Doesn’t seem to matter which I am on, pulsed or constant, I have both like you,  I still desaturate pretty quickly as soon as I move, often down to 79 within 300m.  Really does depend on the weather with me, cold brr, damp urgh, hot, phew, spring and au…[Read more]

I have fixed the formatting/code issues my friends @mark-koziol and @dongraybill 🙂

You’re right Mark, usually this happens when a post is copied/pasted from word into the forums. The formatting gets a bit mixed up but we’re not sure why it happens. Let me know if this is fixed to your satisfaction. Have a great day!
Charlene.

You are welcome Don. That text is from copy and pasting from a word document. (I think ) Our one and only Charlene will most likely fix it. I should of learned how to fix this and may be this will facilitate me to not to procrastinate. Thanks Don. Take care, Mark.

Thanks Mark.  What you suggests makes sense.  I will follow-up on that,

Say Mark, I’ve not used this forum much and have a question on process.  You’ll notice a larger amount of extraneous text at the front of my post.  Do you have any idea what I may have done to cause this to occur?  Thanks!

Hello Don, it appears you are on pulse oxygen. Most pulmonologists would like their patients to stay at 94% o2 and above. It might be time to have a discussion with your pulmonologist on whether or not to make the move to continuous flow o2. This provides a constant flow of oxygen and you will be able to keep your stats at 94% or above. The doctor…[Read more]

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Hi Michael &Charlene

Thanks for the encouraging thoughts, I’m very happy with the change, but not counting chickens just yet.

I had been dreading the sun exposure effects, but so far there have been none. I am using more sun block, and my skin is fairly impervious to sun damage, ie the damage has been done decades ago.

My normal dress is shorts…[Read more]

Thanks, Charlene! I might consider writing about my own PF experience at some point, perhaps using a character to hi-lite symptoms like shortness of breath, fatigue, etc. Kristan Higgins’ book sounds very interesting. Let us know when it’s available.

Wow! What a shock. Very happy your recovering. All of us are concerned and scared of this virus and then to here you had the virus. We need you Charlene, you do a good job and the information we get is priceless from this website.

Hi Mal,

I am so glad to hear you’re benefitting better on Esbriet than Ofev! I remember Ofev being really tough on you from your previous posts, so that is great news you’re tolerating Esbriet better, even 6 weeks in. Glad you aren’t having any sun sensitivity issues either, I know that is important to you with being in the beautiful land of…[Read more]

Hi Mal,

So nice to hear from you my friend! I think of you, and many of our other forum members living in Australia. How are you doing?

Thank you so much for your kind words about my COVID+ result. I certainly continue to improve, and I’d say I am about 95% back to my “pre-COVID” self, which I am so grateful for. 🙂
Take care and stay safe!
Charlene

@casey

Hi Karen,

Thank you so much for your kind words, they really mean a lot to me! I knew some members of the online PF community that I am so privileged to be a part of, would indeed be stunned or upset by the news of my sharing my COVID+ result. I was a little reluctant to do so as a result, but I thought it was important to show that you…[Read more]

@craftyone (I still love that username, by the way 🙂 )

Thanks so much Judy – I have no doubt the information you shared about Rhinase will help others struggling with this pesky side effect of being on 02. Thank you for taking the time to share, and I’m glad you’ve found something that is helpful. Take care, Charlene.

Love all these book suggestions! Thanks everyone for sharing… keep the recommendations coming!
Char.