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Charlene

My wife ad I considered it, however the cost, Airfare, rental car, hotel put it out of our reach.

I was looking at current info on it and all sessions will be recorded , probably videos, if you could not make it. My Ofev coordinator is going and a few people from our support group are attending and will present it during our November…[Read more]

And a happy thanksgiving to you young lady ,

so good to hear that your holiday was what you wanted and needed it to be .

thankfullness where do you start and where does it end ? For me it starts with God , with out him I would not have the attitude I do .

of course family and friends , if you knew my family you would realize why we need to be…[Read more]

Thanks so much for writing about this and sharing your experience with us Suzanne. I actually think I may have been told about this before for a dry cough and completely forgot, so thank you for the reminder. What does an “off-label drug” mean just out of curiosity? I’m glad it has alleviated your dry cough though, that would really help me! Do…[Read more]

I hope so too Suzanne! It does sound promising, here’s hoping this research leads to positive things of our PF community 🙂

Charlene, I know this post is about gabapentin but I want to also throw out that my pulmonologist at National Jewish Health prescribed Baclofen (10mg twice a day), which is an off-label drug used primarily for people with MS. I had a dry cough in 2015 which prompted me to go to the doctor and that set off a whirlwind of tests and appointments…[Read more]

When I read about their work and having received the Nobel prize, I was really hoping it would do something for our community!

Hello Peggy, very happy to hear your husband is doing well. I’m glad you two were persistent in your pursuit of a transplant. It is amazing what can happen when a transplant is successful. Thank you for updating our forum members and especially showing what can happen when you don’t take no for answer. Best wishes, Mark.

My husband was turned down at Barnes Jewish Hospital in St. Louis because of cardiac issues-he needed stents. He was turned down at UC San Diego because of his age, 68.  He was excepted at St. Joseph’s Hospital in Phoenix which has an excellent track record and there’s a high-volume lung transplant center. They inserted the needed stents  in both…[Read more]

Hello Cynthia, you are welcome and I agree with you wholeheartedly!

That IS exciting. Thanks for sharing that.