Members directory

  • Profile picture of Denise Stogdill
    Active 46 minutes ago
  • Profile picture of Kathi
    Active 53 minutes ago
  • Profile picture of Malcolm Mann
    Active 1 hour, 25 minutes ago
    - "@Charlene-Marshall Hi Charlene the ocean swim last Sunday went very well 32:05 minutes for 1.4 km, it was a beautiful day, warm calm and the water was very clear. A good part of the swim is over shallow reef, so […]"View
  • Profile picture of Brenda Lehman
    Active 3 hours, 19 minutes ago
  • Profile picture of David Hendricks
    Active 3 hours, 26 minutes ago
  • Profile picture of Susan o
    Active 3 hours, 28 minutes ago
  • Profile picture of Marian Kremer
    Active 3 hours, 43 minutes ago
    - "I’m a 67 year old woman with RA induced PF. I am n stage 4 and on the transplant list. On 3 ltr of O2 at rest and 12 liters on exertion. Go to rehab twice a week."View
  • Profile picture of Rob1ert Henderson
    Active 4 hours, 19 minutes ago
    - "Will see my pulmonologist in 6 weeks (2nd visit). Will have breathing test. Bee. O Ofev (100 MG 2x/day). What measurements should I be looking for. I have no idea how advanced my ipf is. Worst symptom extreme […]"View
  • Profile picture of John Weitner
    Active 4 hours, 31 minutes ago
  • Profile picture of Cheryl drymon
    Active 4 hours, 43 minutes ago
  • Profile picture of Christine McCann
    Active 5 hours, 58 minutes ago
    - "I don’t know why more vital info from Dr.s isn’t very forthcoming, but it seems that people suffering from IPF< COPD etc. aren't being told some things they need to know. Like if you are taking Esbriet and have to […]"View
  • Profile picture of Paul B ~ Lakeland
    Active 6 hours, 13 minutes ago
  • Profile picture of John
    Active 6 hours, 31 minutes ago
  • Profile picture of Millie
    Active 6 hours, 54 minutes ago
  • Profile picture of Melissa
    Active 7 hours, 30 minutes ago
  • Profile picture of harvey d lamothe
    Active 7 hours, 31 minutes ago
  • Profile picture of Joe
    Joe
    Active 7 hours, 35 minutes ago
  • Profile picture of DJ
    DJ
    Active 8 hours, 4 minutes ago
  • Profile picture of Gary
    Active 8 hours, 11 minutes ago
  • Profile picture of Karen Martin
    Active 8 hours, 43 minutes ago
    - "I would like to know if anyone out there is dealng with PAH. From my latest CT and symptoms, it looks like that is what is happening to me. Does anyone have any experience with this? Right now my doctor is out […]"View
  • Profile picture of Jeannie
    Active 8 hours, 50 minutes ago
  • Profile picture of Kim Hetherington
    Active 8 hours, 51 minutes ago
  • Profile picture of Greg Ford
    Active 9 hours, 13 minutes ago
  • Profile picture of Jofac O'Handlin
    Active 9 hours, 24 minutes ago
    - "Hi Charlene, and group members. I am with the NHS in the UK and presently on OFEV 100mg x2 per day. Reduced from the usual 150’s due to bowel troubles. At an annual test ( actually 15 months) I had lost 10% FVC, […]"View

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