Charlene Marshall

Oh Dave, this made me laugh so hard which I really needed after a tough day! I so envisioned a comedic voice as I read your reply, and glad you could shed some light and humour onto the topic of being awkward in public wearing a mask. I need to embrace it like you do! I also like my space on airplanes, so your tactic may be worth a try for an…[Read more]

Hi Rayna,

Thanks so much for writing and I hope your son continues to do okay! So sorry to hear he’s been sick recently. I have as well, and its just wrecked havoc on my lungs. Glad your son is okay with wearing a mask, that is our best defence especially this time of year. Good for him!
Charlene.

I don’t think your reply was nasty at all Karen – very realistic, and I hope I can have as much courage as you not to care what others think. Life is too short! Unfortunately, there are a lot of judgy people out there, and everyone seems paranoid about this coronavirus. Even more the reason to keep ourselves protected I guess. Thanks so much for…[Read more]

Hi Donna,

Nice to hear from you again! I’m so glad to hear the nasal spray seems to be effective to stop the runny nose, though sorry you have to deal with that. I know how awful it can be, especially with nasal cannulas in! I wonder if an elevated bed, similar to what Patricia wrote about, might help you? Maybe something to consider trying even…[Read more]

Hi Tim,

Thanks for getting in touch with us and sharing your experience. Our hospital just started using the online patient portal for more information (they’ve had it for awhile, but didn’t often utilize it).. neat tool, isn’t it? I quite enjoy being able to log in and see my results.

Yes, PFTs are so hard to decipher! I find it helpful to…[Read more]

Hi Duncan,

Thanks so much for getting in touch and sharing your experience about pulmonary rehab! I’m glad to hear it was a helpful class for you. As difficult as I anticipate it to be next week after this latest setback, I am looking forward to another round of rehab because I know it will help me. Thanks for sharing 🙂
Charlene.

@prwillie

Hi Patricia,

So sorry to hear of your struggles with the runny nose – this is awful, especially when you’re dealing with an oxygen cannula as well. Did the new mattress help at all? Hopefully you’ve given it a try and you feel a little better. Thank you for writing and for your kind words re: my recovery. It is slow, but going okay. I…[Read more]

Hi @maynard ,

Thank you so much for taking the time to share this information and type it all out – I have no doubts that it will be helpful for some folks in our community. Sorry to hear you’ve recently taken a step downwards, was there anything that caused this for you? I have unfortunately taken a decline as well due to pneumonia and the…[Read more]

Hi John,

It sounds like the ‘magical window’ of sleep is between 7-11 hours for the ideal circadian rhythm. I was surprised to learn this myself and am trying harder to get the optimal hours of sleep, though I can’t always do this either. Is your brother a physician re: knowing about B-cells and the EBV virus? If so, I’d be curious to hear his…[Read more]

That sounds delicious Juliet, thanks for sharing! I want to get better at consuming smoothies this year as my stomach has been acting up since I was so sick with the flu/pneumonia and all the meds it had to filter. Smoothies are gentle on it, so I will keep this recipe and ideas in mind. Thanks again!
Charlene.

If you try it out Bob, please let us know your feedback. We’d love to hear!
Charlene.

Hi Kate,

Thanks so much for letting us know that your request to @steveg was legitimate. I’ve tagged him here so hopefully he sees that request and get back to your inquiry. I think he (and many other members of the forums) were receiving friend requests from a spammer that slipped through mine and Mark’s grasp. We’ve since deleted him and all…[Read more]

Thanks for letting us know Suzanne. @mark-koziol and I are working hard (mostly him though) at trying to catch any/all spammers from our site. The platform doesn’t stop all of these folks unfortunately. So far we’ve eliminated this spammer, thanks for letting us know.
Charlene.

Hi Debbie,

Yes, I agree with you that the media has blown this a bit out of proportion, however I’ve also read from credible sites that the numbers of those infected in China is significantly under-reported. Many die from the flu you’re right, and of those, many are seniors or those of us with weakened immune systems which includes many of us…[Read more]

Hi Jaime,

Thanks so much for sharing your thoughts re: this new virus. Yes, it is a bit scary for those of us with compromised immune systems. It sounds as though it is a pretty common virus (or type of virus anyway) but can be most dangerous to seniors and those who have other underlying conditions/weakened immune systems, which includes us. I…[Read more]

Hi Nan,

Thanks for writing and providing us with an update on your son and daughter-in-law’s visit from China. I saw on the news this past Saturday about the first case of the virus being detected in Ontario, and do think limiting visits is wise. I know they don’t live near the suspected area, but it’s just so risky. Sorry you can’t visit with…[Read more]

Hi Maynard,

Thanks for sharing your experience! I know others are always interested in hearing if there are supplements or other aids that can help us living with IPF. I’ve not tried either of these so I’m not particularly helpful, but I know others will find your experience of interest. Do you find the Natto has been helping as you hoped it…[Read more]

I love the suggestion as well, Barry!! 🙂

I haven’t tried tonic water but I think this is something I need to give a shot. Stay tuned – I’ll let you know if it helps me like it does as many others. Such a great tidbit of information shared on our forums. Char.