Charlene Marshall

Thanks for your kind words and suggestions @christie-patient. Always lovely to hear from you and your perspective. I didn’t realize that is what was happening; grieving in the public eye of a small community but you’ve absolutely nailed it. I appreciate your thoughts and YOU, thanks for writing.
Char.

Thanks for sharing your thoughts, Fred. I agree – so important to speak with the family members about the person who died as a person-first, not victim of this disease. It’s hard when we’re living with the same disease I find.
Take care,
Char.

So sorry to hear this @wendy-dirks! I hope you’re doing a bit better since you wrote this? Thinking of you!
Char.

Hi @ellebleu

Sorry to hear of the frustrations and pain you’re navigating. It seems unlikely that a 5th pulmonologist will give you answers that 4 already haven’t, but you can always consider a second opinion. I know some people who are prescribed pain meds, but its not common based on my understanding for those of us with IPF/PF. Not sure if…[Read more]

Dear Rajesh,

I am so sorry to hear about the loss of your mother, and am sending you lots of love to surround you. May the memories you have together carry you through this difficult time, and know that our forum community is here for you. I’m glad this site was helpful, and I am hoping your mother is resting now and breathing freely.

Kindest…[Read more]

Thanks for sharing your thoughts with us William! That is an easy visual for others to understand how difficult this disease is for us.

Char.

Thanks for sharing your 4 words with us, Gordon! I too am hopeful (for a cure). Take care, Char.

@ellebleu

Hi Elle,

Thanks for sharing your thoughts with us and contributing to this thread. I’m so sorry to hear of your experience with GERD too, how awful. Unfortunately, this is a common thing a lot of people with IPF deal with, and there have been some good forum discussions about it. If you look on the right hand side of the screen you’ll…[Read more]

Thanks for sharing your top 4 words with us, Paul!

Certainly agree with your choice of words Denise. Thank you for taking the time to share with us. Know we’re here for you!
Char.

Love your attitude about this disease my dear friend, Steve. We have a lot to learn from you!
Hugs,
Char.

Thanks for sharing your thoughts with us Bert.

Thanks for sharing Linda. I certainly agree with you!

Thanks for sharing your thoughts with us, Jeff. So important to stay positive as you say and I am watching for a cure on the horizon as well. Too many people have suffered from this damn illness!

Thanks for sharing Ron!

@corgiavenger

Hi Chris,

Thanks for sharing, though so sorry to hear you’ve been dealing with aching joints and muscles. I’ve heard a lot of people say its likely due to being chronically under oxygenated and our muscles/joints having to work harder, but that’s a hypothesis and not proven (to my knowledge). It’s likely connected to IPF somehow,…[Read more]