@charlene-marshall
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Charlene Marshall started the topic Who Has Inspired You? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 days, 14 hours ago
Like Christie has shared, January is a difficult month for me every year. Here in Canada, January is a very long, cold, and dreary month and this year there is no shortage of grey days; the sun hasn’t been out for a full day since before Christmas! While I’m not officially diagnosed with seasonal affective disorder (SAD), I really struggle…[Read more]
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Charlene Marshall started the topic Welcome 2023! in the forum Living with Pulmonary Fibrosis: 50+ 1 month ago
Somehow another year has come and gone, and I remain as grateful as ever for the members on this forum. For another year, you have selflessly shared your personal experiences with others, inevitably making their journey a little easier. You have helped each other advocate for yourselves, laugh and virtually wiped away tears while navigating…[Read more]
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Charlene Marshall started the topic Medication Storage & Transport in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 1 week ago
Hello forum members,
I hope you’re all gearing up for the holiday season.Since being diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016, I’ve been on many different medications. Sometimes the dosage of one drug changes, other times I’m taken off a medication and put on another and lately, it feels like I just keep getting…[Read more]
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Charlene Marshall replied to the topic Personal emails: not on the forums please. in the forum Using Our Forums 1 month, 1 week ago
Hi @steve-dragoo ,
Not a problem at all, we just wanted to post that reminder to ensure emails aren’t being left publicly, most importantly to protect our members’ privacy. In a PM/DM is totally fine!
Hope you’re doing as well as possible! think of you often.
Char. -
Charlene Marshall started the topic Traditions & the Holiday Season in the forum Pre/Post Lung Transplant 1 month, 3 weeks ago
Whether or not you celebrate Christmas, the holiday season can bring mixed emotions for many. Depending on family relationships, sometimes it’s stressful to see non-immediate family members or the chaos of the holidays can leave folks feeling exhausted. This is especially true for those of us living with IPF!
On the flip side, the holiday…[Read more]
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Charlene Marshall started the topic Personal emails: not on the forums please. in the forum Using Our Forums 1 month, 3 weeks ago
Hi Everyone,
Thank you so much for your contributions to this site. It is so nice to see patients and caregivers interacting with one another, sharing experiences and knowledge that only those of us in the PF sphere can know; its truly wonderful to witness.
Just a reminder: it is against the forum guidelines to leave your personal email…[Read more]
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Charlene Marshall started the topic Protecting Your Lungs From Cold Temperatures in the forum Canadians Living with Pulmonary Fibrosis 2 months ago
Winter in Canada is known for its bitterly cold temperatures and significant snowfall amounts. While this is expected in December through March, it seems unseasonably early to be dealing with so much snow and cold in November.Each year I spend time thinking about this and am always curious: how do other IPF patients proactively protect…[Read more]
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Charlene Marshall started the topic C-PET Scan in the forum Diagnosis Information and General Questions 2 months, 1 week ago
Like most of us, I ended up catching COVID-19 despite my best efforts to avoid it. I had COVID early on in the pandemic, and again in spring 2022 … and I’ve paid for it!
My last pulmonary function test (PFT), which was shortly after COVID round 2, revealed a cumulative lung function loss of over 10%, which had my pulmonologist conc…[Read more]
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Charlene Marshall started the topic Mindfulness & IPF in the forum Living with Pulmonary Fibrosis: 50+ 3 months ago
Arguably, the hardest part of living with idiopathic pulmonary fibrosis (IPF) is the physical implications this disease imposes upon people living with it. Simple tasks become difficult due to shortness of breath, chronic cough, and debilitating fatigue. As a result, it’s really hard to feel rested while living with this disease.
I wrote a…[Read more]
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Charlene Marshall started the topic Helping Others’ Understand Organ Donation in the forum Pre/Post Lung Transplant 3 months, 1 week ago
As a patient living with idiopathic pulmonary fibrosis (IPF), a life-threatening and rare lung disease, I feel a sense of pressure to educate others on what it’s like to live with this disease.
Part of that education feels like it’s constantly helping others understand that transplant is not a cure for IPF. It certainly is a great a…[Read more] -
Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Chris. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums John. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Welcome to the PF forums Carol. Thanks for joining us!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Vince. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Donn. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Virgillio. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Welcome to the PF forums Diane. Thanks for joining us!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Priya. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Thanks for joining the PF forums Susan. Welcome!
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Charlene Marshall posted a new activity comment 3 months, 1 week ago
Welcome to the PF forums Gabriel. Thanks for joining us!
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Thank you for the warm welcome!