Charlene Marshall

Agree with his very much, Sue! The 13 months that “I couldn’t have IPF because I was to young” robbed me of time with the anti-fibrotics. Take good care of yourself.
Char.

Hi Denise,

It sure is! I try not to judge, as I know people have their own habits and/or coping strategies but I am just not tolerant of the smell of cigarettes anymore… it makes me cough, gag and I just can’t stand it. You’re totally right, it travels and even comes back to the workspace on the colleagues who go out and smoke; it is ultimately…[Read more]

Hi @jthunt,

Thank you so much for your kind words and the reply to this post — hearing others’ experiences with this and also not understanding is helpful to me. As much as I feel like I’m sometimes being pushy or demanding by wanting this issue addressed and corrected, I also know I need to protect my physical health. I have landed in the ER…[Read more]

Hi @amber

I agree with Denise @gunz12345 re: a second opinion. Not saying your doctor’s isn’t correct, but its always reassuring to have a second opinion, and I know lots of patients on Cellcept or who are otherwise immunecompromised (like myself) who have taken the vaccine as the benefits outweigh the risks. Have you received it since you made…[Read more]