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Mack replied to the topic Blood pressure in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 2 weeks ago
Thanks for the responses. I’m 78 and always had low blood pressure until diagnosed with PF in May 2021.
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Mack started the topic Blood pressure in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago
Has anyone’s blood pressure gone up since diagonosed with PF ?
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Mack posted an update 4 months, 4 weeks ago
Has anyone’s blood pressure gone up since diagonosed with IP
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Mack posted an update 5 months, 1 week ago
Has anyone’s blood pressure gone up since diagonesed with pulmary fibrosis ? Also has anyone tried Daily Breathing Excersises to slow progression ?
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Mack posted a new activity comment 9 months, 2 weeks ago
Hi Charlene, can you tell if the 100 works as well as the 150 ? The 150 stopped my cough and helped my breathing.
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Hi Mack,
I think it does, but of course that is subjective to my experience. I wasn’t on the 150mg long because I couldn’t tolerate it so I don’t have a lot of experience. So far so good with the 100mg though and I hope it stops your cough and helps the breathing too. Let us know!
Charlene.
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Mack replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 9 months, 2 weeks ago
Thanks for your reply
I tried everything for my diarrhea and nothing worked at all.
Sorry but I don’t know what BMI is.
My new doctor at UT Southwest Medical In Dallas, Texas has me scheduled for a PFT in three months.
I weight 150 pounds so I don’t know if the 150mg was just too much or not. I just hope the the 100 works as well as the 150…[Read more]
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Mack replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 9 months, 2 weeks ago
Dr. Salzberg
Do you think two of 100 is as effective as the 150 two times a day ?
My doctor reduced my does because of severe diaarhea. The 150 stopped my couch and helped my breathing. I hope the 100 will work as well.
Thanks
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Mack posted an update 9 months, 2 weeks ago
My doctor reduced my ofev from 150 twice a day to 100 twice a day because of severe diarrhea. Does the 100 work as well as the 150 ?
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Hi @mack,
Thanks so much for your note! I was also reduced to the 100mg twice daily (from the 150) due to the terrible GI side effects, and I’m doing well. Hope this helps!
Char.-
Hi Charlene, can you tell if the 100 works as well as the 150 ? The 150 stopped my cough and helped my breathing.
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Hi Mack,
I think it does, but of course that is subjective to my experience. I wasn’t on the 150mg long because I couldn’t tolerate it so I don’t have a lot of experience. So far so good with the 100mg though and I hope it stops your cough and helps the breathing too. Let us know!
Charlene.
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Mack replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 10 months ago
Hi Robert, I’ve been on Ofev 150 twice a day since 5/27/21 and have very serious diarrhea every day. So I’ve stopped taking since last Saturday and am back to normal. The Ofev stopped my cough and helped my breathing. I have tried the immodium gelcaps and they didn’t work either.
any other ireas ?
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Mack posted a new activity comment 10 months ago
Thank you !
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Mack posted an update 10 months, 1 week ago
has anyone had constant diarrhea after taking ofev for two months
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Mack became a registered member 10 months, 3 weeks ago
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Welcome to the forums Mack, thanks for joining us!
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Thank you !
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Hi Mack, good question, but it is posted as a status update, so other forum members won’t see it. Head to the bottom of this page and type it in the text box there to make a forum post 🙂 https://pulmonaryfibrosisnews.com/forums/forums/forum/join-discussion-welcome-pf-ipf-patients/