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Millie

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@zebra4018

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    Millie replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 6 days, 4 hours ago

    How many mg are you taking?

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    Millie replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week ago

    My pulmonologist tells me that he doesn’t know anything about supplements.  I don’t see my GP for months and don’t know if she would know either.  Good luck and be sure to let us know what they say.

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    Millie replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week, 3 days ago

    Hi Charles—-I love your sense of humor.  Never lose it.  So, I’m waiting to hear back from you as to what you find out.  What is your take on the zinc/copper combo pill?

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    Millie replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 week, 4 days ago

    I’ve been looking at zinc/copper supplements.  What I’ve seen is 30mg of zinc combined with 2mg of copper and 50mg of zinc combined with 2mg of copper.   They say that zinc depletes copper so the combo is better.  Then I read somewhere that you are not supposed to take the two supplements together.  I’m confused.   Can someone straighten me out on this?

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    Millie replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 2 weeks ago

    I have been taking 30mg of zinc on a daily basis. I have no idea if that dose is too high or too low. I recall reading somewhere that too much zinc can cause other problems and the 30mg was recommended. Does anyone know what the proper safe dose is? The article doesn’t mention that.

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    Millie replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 weeks ago

    Has anyone tried Metamucil for the diarhhea?  I was very surprised when my doctor recommended it as I thought it was only for constipation.  I was told that it bulks you up and it really worked for me.  Give it a try and let me know how it goes.

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    Millie replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 weeks ago

    I started taking ofev in March–was diagnosed in December 2021.  My doctor sent in my tax return with the RX and I qualified to receive ofev free.  I guess that is why he chose that drug over espret.  I am on 100 mg and will be moving up in my dosage.  I tolerate 100 very well.  I don’t know if it is effective in controlling the fibrosis.  My do…[Read more]

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    Millie replied to the topic Supplements in the forum Living with Pulmonary Fibrosis: 50+ 1 month ago

    My doctor is a pulmonologist and knows nothing about supplements.  He tells me that he is a medical doctor and not into natural medicine.  So, I can’t get any answers from him about supplements for PF.

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    Millie replied to the topic IPF stages in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 2 weeks ago

    I’m doing pulmonary rehab now. I have always been very active physically so it has been easy for me. I’d try the pt at home first and then, if you can, go to the rehab that was recommended. You can start slow. You will be monitored for your blood pressure and heart and lung numbers by the staff several times during your session. They say that…[Read more]

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    Millie replied to the topic IPF stages in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 2 weeks ago

    I am 82 and was diagnosed in December 2021. However, I’m told it showed up on an x-ray I had 3 years ago. I am on oxygen 24/7. At first it was scary. However, my life has not changed much. I’m out every day enjoying life as I always did. I’ve been on ofiv for a month now but will move up to the 150mg next month. No side effects on the…[Read more]

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    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 3 weeks ago

    So what is the benefit of serrapeptase for you? You also take another enzyme, don’t you. It starts with the letter “n.”

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    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 3 weeks ago

    This is for you, Steve. After taking serrapeptase for over 5 years, have you found that it has reduced the scarring in your lungs? I went off the serrapeptase after 6 weeks because I had the opportunity to try ofev free of charge. It is a very expensive rx otherwise. I need to give it at least 6 months or until my pulmonologist does another scan…[Read more]

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    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 4 weeks ago

    That is where my concern lies-taking both ofev and serrapeptase together. Is there anyone out there who does this. Please let me know if you do and if you’ve had problems from doing so. Thanks for the info Steve. You have ben very helpful.

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    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    I didn’t realize you were using it for that length of time. Please don’t be so defensive. I’m searching for reliable information on this. Dr. Axe is a well-known and widely respected doctor. Do you use the serrapeptase in combination with the ofiv? That, for me, can be the game changer. If so, what is your dose of the serrapeptase? I was…[Read more]

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    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    My pulmonologist knows nothing about it. Dr Axe, a naturopath, says it may increase the risk for bruising and bleeding especially when taken with a known blood thinner which ofev is. What is your source of information on this? Does anyone else have any comments or knowledge.

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    Millie replied to the topic Need better diagnostic info in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    I was diagnosed in December 2021 but was told that it showed up on an x-ray I had in march 2019 but I was never told about it at that time. My doctor told me I could have had it for even longer. It has progressed to the point that my oxygen goes into the 80’s when I walk so I have to use oxygen 24/7. I am in excellent health otherwise but am 82…[Read more]

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    Millie posted a new activity comment 2 months ago

    I’m glad to be a member. I have so many questions about what to do and how to do it. I did get to meet one other PF patient at my pulmonary rehab classes. That has been helpful. She was diagnosed 5 years ago. I was diagnosed in December 2022

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      Christie Patient replied 2 months ago

      This is a great place for information and support. Let me know if you need helping posting or using the search feature to find answers. Glad you’ve made a PF friend in rehab : )

  • Profile picture of Millie

    Millie replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    I was taking serrapeptased but stopped it to begin ofev. It seems that they are both blood thinners and I was afraid to be taking both at the same time. I liked serrapeptase very much for it’s scar dissolving ability. My doctor never heard of serrapeptase. I was also doing deep tissue massage on my back plus cupping. My dose was 80,000 u 3…[Read more]

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    Millie became a registered member 2 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 2 months ago

      Welcome to the forum community Millie, we’re glad you found us!

      • Profile picture of Millie
        Millie replied 2 months ago

        I’m glad to be a member. I have so many questions about what to do and how to do it. I did get to meet one other PF patient at my pulmonary rehab classes. That has been helpful. She was diagnosed 5 years ago. I was diagnosed in December 2022

        • Profile picture of Christie Patient
          Christie Patient replied 2 months ago

          This is a great place for information and support. Let me know if you need helping posting or using the search feature to find answers. Glad you’ve made a PF friend in rehab : )

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