Millie

How many mg are you taking?

My pulmonologist tells me that he doesn’t know anything about supplements.  I don’t see my GP for months and don’t know if she would know either.  Good luck and be sure to let us know what they say.

Hi Charles—-I love your sense of humor.  Never lose it.  So, I’m waiting to hear back from you as to what you find out.  What is your take on the zinc/copper combo pill?

I’ve been looking at zinc/copper supplements.  What I’ve seen is 30mg of zinc combined with 2mg of copper and 50mg of zinc combined with 2mg of copper.   They say that zinc depletes copper so the combo is better.  Then I read somewhere that you are not supposed to take the two supplements together.  I’m confused.   Can someone straighten me out on this?

I have been taking 30mg of zinc on a daily basis. I have no idea if that dose is too high or too low. I recall reading somewhere that too much zinc can cause other problems and the 30mg was recommended. Does anyone know what the proper safe dose is? The article doesn’t mention that.

Has anyone tried Metamucil for the diarhhea?  I was very surprised when my doctor recommended it as I thought it was only for constipation.  I was told that it bulks you up and it really worked for me.  Give it a try and let me know how it goes.

I started taking ofev in March–was diagnosed in December 2021.  My doctor sent in my tax return with the RX and I qualified to receive ofev free.  I guess that is why he chose that drug over espret.  I am on 100 mg and will be moving up in my dosage.  I tolerate 100 very well.  I don’t know if it is effective in controlling the fibrosis.  My do…[Read more]

My doctor is a pulmonologist and knows nothing about supplements.  He tells me that he is a medical doctor and not into natural medicine.  So, I can’t get any answers from him about supplements for PF.

I’m doing pulmonary rehab now. I have always been very active physically so it has been easy for me. I’d try the pt at home first and then, if you can, go to the rehab that was recommended. You can start slow. You will be monitored for your blood pressure and heart and lung numbers by the staff several times during your session. They say that…[Read more]

I am 82 and was diagnosed in December 2021. However, I’m told it showed up on an x-ray I had 3 years ago. I am on oxygen 24/7. At first it was scary. However, my life has not changed much. I’m out every day enjoying life as I always did. I’ve been on ofiv for a month now but will move up to the 150mg next month. No side effects on the…[Read more]

So what is the benefit of serrapeptase for you? You also take another enzyme, don’t you. It starts with the letter “n.”

This is for you, Steve. After taking serrapeptase for over 5 years, have you found that it has reduced the scarring in your lungs? I went off the serrapeptase after 6 weeks because I had the opportunity to try ofev free of charge. It is a very expensive rx otherwise. I need to give it at least 6 months or until my pulmonologist does another scan…[Read more]

That is where my concern lies-taking both ofev and serrapeptase together. Is there anyone out there who does this. Please let me know if you do and if you’ve had problems from doing so. Thanks for the info Steve. You have ben very helpful.

I didn’t realize you were using it for that length of time. Please don’t be so defensive. I’m searching for reliable information on this. Dr. Axe is a well-known and widely respected doctor. Do you use the serrapeptase in combination with the ofiv? That, for me, can be the game changer. If so, what is your dose of the serrapeptase? I was…[Read more]

My pulmonologist knows nothing about it. Dr Axe, a naturopath, says it may increase the risk for bruising and bleeding especially when taken with a known blood thinner which ofev is. What is your source of information on this? Does anyone else have any comments or knowledge.

I was diagnosed in December 2021 but was told that it showed up on an x-ray I had in march 2019 but I was never told about it at that time. My doctor told me I could have had it for even longer. It has progressed to the point that my oxygen goes into the 80’s when I walk so I have to use oxygen 24/7. I am in excellent health otherwise but am 82…[Read more]

I was taking serrapeptased but stopped it to begin ofev. It seems that they are both blood thinners and I was afraid to be taking both at the same time. I liked serrapeptase very much for it’s scar dissolving ability. My doctor never heard of serrapeptase. I was also doing deep tissue massage on my back plus cupping. My dose was 80,000 u 3…[Read more]