Stem Cell Treatments to battle IPF

[MG Community Member]

Hi,

I had stem cell therapy from a company based in both Tampa and LA. I had it before my transplant and I believe it kept me alive until I could receive my new lungs. Let me know if you would like more info.

[MG Community Member]

Hi: I am new to posting here, however,I have been following them for about a year. I had stem cell therapy about one year ago by a very well respected medical doctor. To date, there has been no recognizable signs of anything. My doctor has been following up with blood tests and prescriptions, etc. and is perplexed at the inactivity. I have been on oxygen 24/7 now for several months and just started on pirfinadone relunctantly. I also started on acupuncture recently and I believe it does offer some hope. My acupuncturist, a doctor also certified in chinese medicine, is very well versed in it and does tests and scans beyond the acupuncture. So, I am still maintaining hope in both the stem cell and the acupuncture procedures. I also have a Rife machine which I use from time to time,. I also take various supplements and enzymes for which I maintain hope in helping in the overall picture.

I look forward to hearing from others to discuss these issues and how they are dealing with it.,

My email: [email protected]

Have a good day!

[MG Community Member]

my email is [email protected]. In case you have any questions.

[MG Community Member]

How old are you and what was the process to get a lung transplant ? I’m a 77 yr old man and live in Southern California with my wife and with our grown sons and grandkids in town. I was diagnosed with IPF in April 2020 . Pulmonologist wants me to take OFEV. My IPF is service connected so no expense . Please share your journey to a lung transplant and how you feel today . Thank you

Tony

[MG Community Member]

Hi

My name is Ric Hansen. I spent 20 years in the Air Force with a tour in Vietnam and spent many years on the flightline inhaling jet fuel fumes. I applied for disability with VA for the IPF and was denied. I gave them my doctor’s evaluation to backup my claim but denied anyways. What did you submit to get it. Can you send me what you submitted. My email is [email protected]. Any help would be most appreciated.

Rick

[MG Community Member]

Ric, the VA sent me to several 3rd party Drs. to assess my IPF I don’t know exactly how they determined my disability but being a Crew Chief certainly was enough . The PACT Act which passed as part of the Inflation Reduction Act allowed Veterans exposed to toxic chemicals to apply. See ur Veterans Service Officer, mine helped me

[MG Community Member]

@Curt Strickland – would like more info too about the stem cell treatments. Thanks – Steve

[MG Community Member]

To: @Curt Strickland

I also want to know how you stem cell therapy helped since you still had to have the lung transplant. My pulmonologist don’t recommend stem cell therapy.

[MG Community Member]

I like know more about stem treatment far pulmonary firbosis too

[MG Community Member]

I am interested too in this information- I had looked into getting it done in China before lockdown and they wanted $300,000 for the therapy –

[MG Community Member]

Hi,

I missed your email. I had stem cell from a company in Tampa and LA. It was about $35,000. Matt Feshbach is the CEO of Ambrose Cell Therapy: 727 743 1510 (c)

http://www.ambrosecelltherapy.com

It is an outpatient procedure, about four hours. In the fall of 2019, I had stem cell, and after about three weeks I started to notice a change, and after sixteen weeks, I was noticing bigger changes. I really didn’t want a transplant. In January of 2020, I probably got Covid and I went downhill fast. I attribute the stem cell for helping me stay alive until I got my double lung transplant. And I attribute the stem cell for my fast recovery after I received my transplant.

Let me know if you have any questions. And you can talk to Matt at Ambrose Cell Therapy. He can answer any questions also.

My email is: [email protected]

Best,

Curt

ambrosecelltherapy.com

Page not found - AMBROSE Cell Therapy

Page not found - AMBROSE Cell Therapy

[MG Community Member]

74 yrs, Diagnosed w IPF 5 yrs ago , on pirfenidone ever since, is pretty stable but would love infos abt stem therepy plse

[MG Community Member]

I can understand how much an effective stem cell therapy would be to the PF community. At the same time there are some people who market promises of spectacular results with very little or no scientific support.

The Pulmonary Fibrosis Foundation is issued a position statement on stem cell therapies. You can review it at:

https://www.pulmonaryfibrosis.org/docs/default-source/medical/position-statements/stem-cell-position-statement.pdf?sfvrsn=9c1aad00_2

Ask you care team about stem cell therapies and you might also ask, if you are considering a lung transplant, if receiving stem cell therapies would negatively impact your consideration for a lung transplant.

Sam …

[MG Community Member]

Please read the statement. These places are “for-profit”and extremely expensive and have no proof of any cure. Save your money!!!

[MG Community Member]

Stem cell treatments for IPF = snake oil. Save your money.

[MG Community Member]

I had a consultation with a Stem cell center in Cabo, Mexico. They were very honest with me and said they haven’t had very good results treating IPF with stem cells. I did harvest my own many years ago, so I treat myself with my own twice a year. I cough violently for 1-2 days afterwards.

[MG Community Member]

Are there any control group studies going now for Stem Cell therapy for IPF folks.

[MG Community Member]

Bob – There is currently an open Phase 1 study. There is info here at the Pulmonary Fibrosis Foundation: https://trials.pulmonaryfibrosis.org/trial/listing/249834