John K. Grubb replied to the topic Congestion in the forum Ofev (Nintedanib) 2 months, 3 weeks ago
I have suffered from excess mucus in the lungs for about 50 years, with difficulty in clearing my lungs. About 20 years ago I discovered that if I take Mucinex 1200 extended tablets in the morning and evening the mucus would thin out enough so I could keep my lungs clear.
Las March I was diagnosed with IPF and put on Ofev, 150 mg, morning and…[Read more]
John K. Grubb replied to the topic travel while on ofev in the forum Ofev (Nintedanib) 2 months, 3 weeks ago
I took two trips to Europe this last summer while on Ofev. Here is what I did.
Every time I took Ofev I took a half of an imodium.
Then I carried in my pocket at all times 2 imodium tables, 6 125mg of Gasx, and 3 baby wipes. Once or twice I had to use the Gas and an imodium tablet. I would also head to the restroom at the very first sign of…[Read more]
John K. Grubb replied to the topic Can’t do PFT in the forum Diagnosis Information and General Questions 3 months, 1 week ago
Immediately sign your father up for a pulmonary physical therapy program. Medicare and most insurance companies will pay for it. The one I just completed was 45 session; I usually did 2 sessions a week – Tuesday and Thursday.
I was in pretty good shape when I started and much better shape after I competed. However, I was amazed at the im…[Read more]
John K. Grubb replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago
I would love to join in a Zoom conference. My email is [email protected]. My phone number is 713-702-1808.
I live in Houston and even though we have the largest medical center in the world here and both University of Texas Medical School and Baylor College of Medicine are rated as Centers of Excellence, I would rate the care for IPF much t…[Read more]
John K. Grubb replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 6 months, 4 weeks ago
Saw my pulmonologist today for 6 month visit after being diagnosed.
I mentioned to her that I had joined some groups with IPF and there was some exciting research out of Cedars Siani regarding zinc. Her response was I must of read it on Google. I responded no I had read the research report done by Drs. Paul Noble and Carol Liang and in la…[Read more]
John K. Grubb replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 1 week ago
Very interesting. This article offers some hope if one takes zinc. So I will go and get some zinc this afternoon.
Another one to follow is the antibiotic Ambatrol (this is the trade name, not the generic). Some researchers have found in mice taking the generic of Ambatrol results in a reversal of IPF. This is an antibiotic that is used to t…[Read more]
John K. Grubb replied to the topic Nifuroxazide Antibiotic Found to Stop, Reverse Induced PF in Mice in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago
From what I can tell this is prescribed in the US under the trade name of Ambatrol. The standard prescription if 4 times a day for 7 days.
Is anyone going to ask their Dr. for a prescription for this?
I think I will do so — targeting to finish taking it 4 to 12 weeks before my next scheduled cat scan.
Many medical solutions are accidentally…[Read more]
John K. Grubb replied to the topic Respiratory Therapy Programs in the forum Pulmonary Fibrosis Awareness & Advocacy 10 months, 1 week ago
Google Breathing Center Rhode Island and you will find the programs.
I have been attending a rehab program two ties a week for a month and all my numbers have improved.
John K. Grubb became a registered member 10 months, 3 weeks ago
Welcome to the PF forums John, we’re glad you found us.