• Posted by GaryJ on October 17, 2024 at 2:15 pm

    After suffering from ILD caused by autoimmune disease. I have been diagnosed with pulmonary hypertension. Soon I will start Tyvaso. Have any of you used this? What are your results?

    John K. Grubb replied 2 weeks ago 3 Members · 2 Replies
  • 2 Replies
  • Deleted User

    Deleted User
    June 23, 2025 at 5:55 pm

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  • John K. Grubb

    Member
    June 24, 2025 at 2:36 pm

    I was diagnosed with IPF in March of 2022 and immediately started taking OFED. In June of 2024 I participated in a on year double blind study for Tyvaso. The idea is Tyvaso may help regenerate healthy tissue. The study was a non event — you breath thru the machine 4 times a day. Of course since it was a double blind study I do not know if I got the real thing or not. It is my understanding that you should also be on OFED.

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