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    • #33292
      Millie
      Participant

        Has anyone tried this red light therapy and, if so, has it been successful. I understand that these treatments break down collagen and reduce fibrous tissue. The treatments are done by physical therapists so you need a prescription from your pulmonologist. So everyone, let me hear your thoughts.

      • #33308
        Nina Merendino
        Participant

          I just bought one on Amazon. Going to start using it. No need for prescription!

          • #33316
            Harletta Carathel
            Participant

              Nina, how is it used?

            • #34217
              DJ
              Participant

                The ones online are not Class IV lasers which is what the chiropractors have. They may not be as strong, and not penetrate as deep. But please let us know if you feel a benefit from using the one you bought. You never know…

            • #33319
              Steve Dragoo
              Participant

                @zebra4018
                Hi Millie, et al.,

                 

                It has to be a class 4 laser and there are some here who have used it for a long time. Search for laser topics on the forums.  Also Dr. Andy Hall is an expert and he has IPF. He has the correct protocol.  I used it for a few months in Virginia and did not need a prescription.  It did help but I left the USA and there is no class-4 over here.

                Stay well…
                Steve

                • #33333
                  Millie
                  Participant

                    Amazon has the red light lasers and they look more like heating pads and are reasonably priced. Hooga, which is highly rated, has panels that are free-standing and though more expensive are still within a price that is affordable. I’ve read that this red light laser therapy increases collagen. (It is also supposed to break up the scar tissue.) That is not something I want to do as the problem with PF is too much collagen being produced by the body and forming the scar tissue in the lungs. Cam someone out there with expertise in this area straighten me out on this important fact.

                    • #33498
                      DJ
                      Participant

                        I’m not sure, but I don’t think it’s that the body has too much collagen, it’s that the body takes the collagen for scar tissue.

                      • #34261
                        Marian Kremer
                        Participant

                          The lungs are made of collagen. Rheumatoid arthritis attacks collagen and causes scarring. I don’t think having more collagen would be a good idea.

                      • #34218
                        DJ
                        Participant

                          Steve how soon before you felt relief? My dad has been having it done three x week. He had 23 sessions. Before that he was getting the hand-held class 4 laser for about a month, also 3 x week. He is a little less fatigued, but not sure if it’s from the laser.

                      • #33353
                        conni
                        Participant

                          I am also very interested in laser therapy. Don’t want to increase collagen for sure. When we have used it in the dogs it was for healing wounds etc,so why is this different?

                          conni borwick

                        • #33358
                          Coby Knox
                          Participant

                            I have been using one for five months. Mainly for Rheumatoid Arthritis and Myopathy. I think it also helps my Pulmonary Fibrosis, which has had no change during the period.

                            Currently use a Mitoredlight 1500 panel daily for 20 minutes front and back.

                             

                          • #33361
                            Priya
                            Participant

                              Hi all! We have been getting Deep Tissue (Red light) therapy for my dad for months now and it has been significantly helping. We are currently getting it done via a Physio Clinic. I have a 6pg study, I can share on this, so please DM me and I can email to you!

                              • #34265
                                Ilan Gruenwald
                                Participant

                                  dear Priya,

                                  Your experience with deep tissue laser therapy sounds very interesting and as I am with IPF for 3/5 years now and progressing, I would really like to try it out. could you send me the article you mentioned, and do you know the name of the device  used at your physio clinic?

                                  Thank you

                                  best wishes.

                                  Prof Ilan gruenwald

                                • #34281

                                  Hi Priya,

                                  Could you please email me the 6pg study?

                                  Thank you so much in advance.

                                  Also I was wondering if you knew the device that they are using on your Dad at the Physio Clinic please?

                                  Thank you again.

                                  Warmest wishes,

                                  Kaye Hollingsworth

                                • #34278
                                  Barb Eisele
                                  Participant

                                    Hi Priya,

                                    I’d appreciate it if you would send me the article.  My husband has PF, probably IPF, dx last year and we are looking at options.

                                    Thanks, [email protected]

                                    Barb Eisele

                                  • #34317

                                    Hi Priya,

                                    Still hoping you can email me your study please?

                                    Many thanks,

                                    Kaye-Maree 🙂

                                • #33510
                                  Curt Strickland
                                  Participant

                                    HI,

                                    I KNOW A GUY WHO HAS IPF AND HE’S BEEN JUSING IT FOR AROUND SIX MONTHS, AND HIS BREATHING TESTS HAVE IMPROVED. HE STILL HAS A PROBLEM WITH COUGHING.

                                    • #33535
                                      Richard D.Gueard
                                      Participant

                                        is there a way  i can contact your friend?

                                         

                                    • #34231
                                      Ramon Lopez
                                      Participant

                                        I was taking daily supplements of collagen before being diagnosed with IPF.  Wonder if he collagen supplements had anything to do with my IPF.

                                        • #34242
                                          DJ
                                          Participant

                                            I don’t think that would matter. I think the body would take whatever collagen is there, and there is always collagen. In other words, I don’t think it matters how much collagen is in your body. I asked my dad’s pulmonologist if it would be okay for him to take collagen supplements for extra protein, and he said it would be fine.

                                        • #34238
                                          Liz
                                          Participant

                                            Hello, I have a class IV laser. It emits near infrared light which decreases pro inflammatory cytokines and increases anti inflammatory cytokines. In terms of efficacy, I had significant ground glass opacities, now I don’t… I feel amazing.

                                            • #34243
                                              DJ
                                              Participant

                                                Hi Liz, can I’m just wondering what your symptoms were before the laser? My dad just had two months of it, but hasn’t felt much improvement, if at all. Doesn’t mean it hasn’t done something good. He has fibrosis after doctors took the “do nothing” approach with his COVID pneumonia. What was your diagnosis?.

                                              • #34282

                                                Hi Liz,

                                                Could you please give me the brand of your class IV laser?  I have the same significant glass opacities that you have described and would love to try it out please.

                                                Thanks so much.

                                                Take care,

                                                Kaye Hollingsworth

                                            • #34239
                                              Cu
                                              Participant

                                                Hi Everyone, I use red light therapy for several reasons and love it. Platinum LED Therapy Lights has a wealth of information on their site you may want to read. (Not sure why some of you are calling it a laser. It’s not.) So make sure you educate yourself before buying anything. I believe because it works on a cellular level and reduces inflammation, it has to help. Platinum BioMax  is the one I own.

                                                 

                                                • #34245
                                                  DJ
                                                  Participant

                                                    Hi, do you know what the Biomax does different than the other light therapy panels. It’s so expensive.

                                                    • #34262
                                                      Cu
                                                      Participant

                                                        Not really that expensive if you just get one panel, plus you own it so you’re not paying for each visit. From what I understand, consistency is most important so you’d want to keep doing it. I use mine 5 to 7 days a week for 20 minutes each time. That’s all you need for your lungs/face area. Sorry I don’t know about the other type (laser?).

                                                    • #34244
                                                      DJ
                                                      Participant

                                                        There is a red light laser therapy, and red light therapy. Apparently they work in different ways, so it’s worth trying both of them.

                                                    • #34246
                                                      Charles
                                                      Participant

                                                        Hi ya’ll, My nephew has found a Quinear at the Sinoriko store that has a Red Light therapy device and it reads 13 pcs X 650n power +4 timer that’s handheld. Does that sound like what you all are talking about?
                                                        Chuck

                                                      • #34254
                                                        Rhonda Kramer
                                                        Participant

                                                          Interesting. I’ve been using red light therapy for years, but of course, not the medical grade laser. However, my neurologist was facing carpal tunnel surgery until his friend, a chiropractor, lent him his laser, which did break up the tightness and my neurologist was able to avoid the surgery. I asked him about using it for my lungs, so he consulted with the other Dr. and they said no. It would not penetrate deep enough. This has been about 7-8 years ago, so it sounds like there has been more development in the penetration of medical red light lasers.

                                                          • #34257
                                                            DJ
                                                            Participant

                                                              It could be that the lasers are better, or, that they know more about them. I’m glad many chiropractors are now using laser and red light therapy for lungs.

                                                          • #34259
                                                            Charles
                                                            Participant

                                                              Thanks Rhonda for your input. I see my Pulmonologist tomorrow (Friday) and will ask her about the laser stuff. Chuck

                                                            • #34290
                                                              Luis Pernia
                                                              Participant

                                                                Hello, I understand from my wife, with the treatment with esbriel. they cannot carry sunlight and less infrared on the skin. I don’t know what you guys can think.

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