Nina Merendino

Being a mental health therapist myself in private practice now for 15 years and 42 years as a psych nurse and a licensed mental health counselor I feel that anyone whatever age with a chronic illness or debilitating illness needs to live as they say in the moment. When I was first diagnosed in 2018 with interstitial lung disease or what they said…[Read more]

I would frankly ignore it! I was found to have pulmonary fibrosis Amin 2018 and still have no symptoms but my lungs are fibroid and have all the stuff. I changed doctors 3 times and my new Md is fabulous. My breathing scores have improved and are normal as of Wednesday! He old me to live my life! Am not on any of those meds. Find another opinion!…[Read more]

I can’t believe that there is not a pulmonologist following your husband. I don’t live in England what is the US but I was diagnosed in 2018 and still don’t have any symptoms like shortness of breath or cough or loss of weight. They initially did an x-ray thinking I had pneumonia but found that there was other things in my lungs and that’s when I…[Read more]

I have had a lung biopsy through my traechea where they took samples. Doctor still cant decide if I have IPF or UIP. I have no symtoms yet like cough or shortness of breath. I have ankylosis spondilitis, and fibromialgy. I had the test that goes through your nose and diagnoses GERD which I have. He still wants me to have a VAT? lung biopsy but…[Read more]

I will! Good for you!!

I just finished reading a lot I love PF patients Like myself and I’ve had similar experiences with different pulmonologists!I was diagnosed with all the fibrosis in 2018 after having a chest x-ray to see if I had pneumonia after I had two bouts. with bronchitis. The first one wanted me to have a long biopsy on the operating table which I did not w…[Read more]

I had bronchitis  in 2018 and doctor ordered X-ray looking for pneumonia. Instead my chest was abnormal and had cat scan which showed both Owen lungs fibroid and ground glass and opacities. Then I had pulmonary blowing tests and were a little less than normal. No one told me it was a fatal illness. Then they said come back in a year. Did tests…[Read more]