Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Nina Merendino

Home Members Nina Merendino
show less show more
Profile picture of Nina Merendino

@insanity578

Nothing ! Seeing pulmonologist for testing next week. View
  • Activity
  • Profile
  • Friends 1
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Complications of Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 1 day ago

    I had my cataracts removed with no problems. I have now issues with my retina with appointment tomorrow. I have ankylosis spondylitis which can cause problem with retina. I am now noticing a weird change in eye site. Get a second opinion!

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Weight Management is Hard with IPF in the forum Living with Pulmonary Fibrosis: 50+ 2 weeks, 1 day ago

    I am on no meds for PF but on plenty for my ankylosis spondylitis! I am not on oxygen and am not short of breath but I will tell you I have gained 40 lbs since being diagnosed with this. I sm in constant pain in my back and now neck as my bones fuse. I finally have talked my Psych nurse pracctioner and she has started me on Metforin. I will keep…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Has anyone seen the film "More Than Ever" about an IPF patient? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 4 weeks ago

    No

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 4 weeks ago

    I may have said this before but I was diagnosed in 2018. It is now 2023 and still no cough or SOB. I researched myself and take zinc and a chinese herb Teavigo on Amazon, red light therapy but don’t have the IV. I refinanced my house to put in a swim spa because I have another disease that currently is worse, called ankylosis spondylitis where my…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino posted an update 2 months, 2 weeks ago

    Nothing ! Seeing pulmonologist for testing next week.

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 2 weeks ago

    I was diagnosed 4 years ago due to Md thinking I had pneumonia . One doctor gave me 5 years. It’s not true cuz I have no symptoms.!!! Changed doctors and still no symptoms. Open up to self healing! Meditate daily. I am having more blowing tests but after changing pulmonologist he said there is no way I can tell how long! Don’t believe the crap and…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino posted an update 2 months, 2 weeks ago

    I just read the girls experience with Hataki? Where can I get it and Joe and daily? I was diagnosed 4 years ago without any symptoms. My books O2 is usually at 98. My blowing skills have improved once I switched MDs. The first one said I had about 4-5 years to live. Well that sent me into a wild ride of getting my things in order. Telling my sons.…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Hiatus Hernia in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 3 weeks ago

    I was diagnosed with interstitial lung disease in 2018 and they did a endoscopy and found out that I had acid reflux as well. I have I have been put on oprazalam and doing fine. I have had acid reflux many times over my 69 years. Don’t think it caused the fibrosis.

  • Profile picture of Nina Merendino

    Nina Merendino posted an update 4 months, 1 week ago

    I am taking Zinc and I don’t care what people say!!!

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Deep Tissue (or red light) Laser Therapy in the forum Using Our Forums 5 months, 1 week ago

    I just bought one on Amazon. Going to start using it. No need for prescription!

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic No symptoms in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 1 week ago

    I wish my father was alive today he lived 97 and was a fabulous and famous thoracic surgeon who did the first open-heart surgery on the West Coast. He traveled all over the world teaching people how to do heart surgery and at one point he and his team could’ve done it liver long and heart transplant all at once but he didn’t want to play God and…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic No symptoms in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 1 week ago

    Me too! I have changed to third pulmonologist cuz the first two said I had max of 5 years and I felt like a s specimen! No lung transplants for me. I am 69 and really am not afraid of dying!

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic No symptoms in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 1 week ago

    Thank you all!

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 9 months ago

    Being a mental health therapist myself in private practice now for 15 years and 42 years as a psych nurse and a licensed mental health counselor I feel that anyone whatever age with a chronic illness or debilitating illness needs to live as they say in the moment. When I was first diagnosed in 2018 with interstitial lung disease or what they said…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Newly diagnosed UIP OFEV advice in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    I would frankly ignore it! I was found to have pulmonary fibrosis Amin 2018 and still have no symptoms but my lungs are fibroid and have all the stuff. I changed doctors 3 times and my new Md is fabulous. My breathing scores have improved and are normal as of Wednesday! He old me to live my life! Am not on any of those meds. Find another opinion!…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Being discharged with ipf – is it normal in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 2 months ago

    I can’t believe that there is not a pulmonologist following your husband. I don’t live in England what is the US but I was diagnosed in 2018 and still don’t have any symptoms like shortness of breath or cough or loss of weight. They initially did an x-ray thinking I had pneumonia but found that there was other things in my lungs and that’s when I…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino posted a new activity comment 1 year, 4 months ago

    Glad to find you!!!

    View Conversation
  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic Biopsy… yes or no? in the forum Upcoming Medical Appointments: Q&As 1 year, 4 months ago

    I have had a lung biopsy through my traechea where they took samples. Doctor still cant decide if I have IPF or UIP. I have no symtoms yet like cough or shortness of breath. I have ankylosis spondilitis, and fibromialgy. I had the test that goes through your nose and diagnoses GERD which I have. He still wants me to have a VAT? lung biopsy but…[Read more]

  • Profile picture of Nina Merendino

    Nina Merendino replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    I will! Good for you!!

  • Profile picture of Nina Merendino

    Nina Merendino and Profile picture of Allan ByronAllan Byron are now friends 1 year, 4 months ago

  • Load More
Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Sheila D
Profile picture of Pam Maguire

Newest Topics

  • Hot Flashes by Daughter
  • Improved spirometry values by Monica Loftin
  • Sunday “Resets” by Charlene Marshall
  • Following quarantine etc. does a positive home test mean I am still contagious? by Walter Gerstmann
  • PF secondary to COVID pneumonia–did anyone receive the drug baricitinib? by Sherry

Recent Replies

  • travel while on ofev
  • Diagnosed with IPF – What can we expect?
  • Questions about Ofev
  • PRM-151 Clinical Trial ?
  • PRM-151 Clinical Trial ?

Members

Newest | Active | Popular
  • Profile picture of Sheila D
    Sheila D
    Active 46 seconds ago
  • Profile picture of Pam Maguire
    Pam Maguire
    Active 1 minute ago
  • Profile picture of Poonam
    Poonam
    Active 6 hours, 34 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 7 hours, 26 minutes ago
  • Profile picture of Maria
    Maria
    Active 8 hours, 4 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen