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Allan Byron

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@abyron888

Does anybody in the group had any experience or feed back on Wei institute mode of treatment? please share any experiences, etc you have, because i gave them a call for info, and the Soup ,A, B, etc will cost around $3,000.00. I am willing to try anything, but will appreciate any feedbacks. View
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  • Profile picture of Allan Byron

    Allan Byron replied to the topic Dealing with Phlegm. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 1 week ago

    Went to stem cell therapy in Arizona for treatment. It didn’t help a bit, just wasted money and time.

     

    Allan Byron

     

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 7 months, 2 weeks ago

    i will try to use the supplement, if it help it’s great. At this juncture bee are open to new therapies. What do we have to loss?

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Deep-breathing exercises in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months ago

    Hello
    Will try it myself, thanks

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 2 weeks ago

    Hello,
    Thanks for a very inspiring story, I will be 74 soon and try to get a transplant. UCSF declined me, but
    I called UCLA for a second opinion. I had an echocardiogram, and PFT, which they requested before making an evaluation.
    I hope I will be reconsidered.

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 2 weeks ago

    Very inspiring, thanks for sharing

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 2 weeks ago

    Best of luck on your journey. We will have u oun our prayers

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Extreme Fatigue in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 3 weeks ago

    I just take green tea and it Worldcraft2 me

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Pulmonary Rehabilitation in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 2 months ago

    Thanks so much for the info

    allan

  • Profile picture of Nina Merendino

    Nina Merendino and Profile picture of Allan ByronAllan Byron are now friends 1 year, 2 months ago

  • Profile picture of Allan Byron

    Allan Byron replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago

    Hello,

    The 3 to 5 yes prognosis that they say is old info, long time ago. I was listening to a seminar by a pulmonologist and said that patient s  now can even live more than 10 years today. I think we all need PMA. Positive mental attitude

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 3 months ago

    I also have regular post nasal drip in the morning and I use Flonase, and

    mose clips which help.

    I may also try Claritin it it gets worse.

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago

    Hello,

    Thanks for those information

    Allan

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 4 months ago

    Hello,

    Have the same issue, which is refractory coughing most of the day. I have taken different cough meds, but they are only palliatives. I still go to the gym at least 3x a week and do threadmill and weights for one hour.  I observed I easily get tired not like before.

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    Hello folks,

    hD same experience, Kaiser pulmonologist diagnosed me as having rheumatoid arthritis with auto immune disorder and started me on cellceph after doing a lung biopsy. I ask for a second opinion and went to UCSF. The pulmonologist diagnose me with IPF and started me with Perfinidone 801 3x a day.

    My Kaiser pulmonologist is doing a…[Read more]

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 4 months ago

    Hello,

    I also cough  and have sinus drips inthhe morning. K am currently on Perfinidone 801 mg 3x a day. I also have recurrent cough during the day, so I always have halls candy

    which helps me.

    Allan Byrin

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    Hellos folks,

    I just stopped the Wei regimen after 3 months because I didn’t see any effect. This is my second time of using it. The first time I used it also for 3 months, with no effect , and waited for another 6  months, and used it again, thinking it may work. To me I just wasted my money. I hope others may have better luck.

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 5 months ago

    Hello Dennis,

    Im 73 years old, and live in SF Bay area, who was the person you contacted for your transplant?  Any info you can provide will be appreciated. Thanks a lot

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 5 months ago

    Hello folks,

    I am currently 73 year s old and live in the SF nay area, I hope some pet can give me idea if I can still quality and where can I go for evaluation?

    Allan Byron

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 5 months ago

    Hello Jeff,

    I wrote down what you eat, and may follow it. Thanks a lot, and best of health.

    Allan

  • Profile picture of Allan Byron

    Allan Byron replied to the topic Coughing in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago

    My coup is continuos  from the time I wake up. I also have nasal drip. I take benzonatate prescription meds 3 pearl tablets  3x a day. Mucinex syrup also helps me but instead of the 12 hour effect I observed it’s effect is around 8 hours. I also have halls candy and that helps me control my coughing.

    Allan Byron

     

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