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Mark Koziol

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@mark-koziol

Hello forum members, Tuesday is the day for my forum topic to be published. I’m going to go off script today and just ask one simple question: What does a good day look like for you? So many of us have experienced bad days and sometimes not enough emphasis is placed on what our good days are like. Everyone please share. I hope for all to have a […] View
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    Mark Koziol replied to the topic COVID-19 Precautions Have Reduced the Number of Respiratory Infections in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 11 months ago

    Thank you Ted.

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    Mark Koziol replied to the topic POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hi Jenny, I received a single lung transplant. They don’t give anti fibrotic after transplant. People do switch from one medicine to another. It is the patients choice. Take care, mark

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hello Janet, we are delighted to have you as a member of your pulmonary fibrosis forum. Welcome!

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      Janet replied 1 year, 11 months ago

      Thank you!

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hello Bob, this is an insightful update by you. I see the path how you are associating the cytokine storm to both diseases; COVID-19 and PF/IPF. I would hope this drug would at least be studied for its affects on fibrotic diseases. Thank you Bob for bringing this to our attention. Take care, Mark.

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    Mark Koziol replied to the topic Sudden deterioration in breathing in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hi Julie, I’m glad you were persistent in obtaining the home concentrator. I’m glad to hear your husband is doing better. We all desire proper medical care and thankfully caregivers like yourself step in and have to demand these services. Have great night, Mark.

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    Mark Koziol replied to the topic POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hello Bill, first of all thank you for sharing. I think it’s great how physically active you are. Your positivity will enhance your prognosis. Your contributions will always be welcome. Have a great rest of the night, Mark

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    Mark Koziol replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hi Steven, much of the literature still contains the estimated 3-5 years expected life span. I don’t know why they wouldn’t move to using a medium rather than an average for measurement. I do think many hospitals and institutions are trepid in their estimations until a large respected institution changes their numbers. I think a valid and rel…[Read more]

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    Mark Koziol replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hello John, you have a wonderful positive outlook. Taking your medicine on time helps with the efficacy of the medication. You are right about the gastric effects. Some people do everything right, eat healthy and eat the small meals and have disheartening gastric effects. Others can eat pizza and wings and the medicine doesn’t have a negative e…[Read more]

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    Mark Koziol replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hello Carlo, in order to get the information you desire I suggest you participate in phase 2 pulmonary rehabilitation. They will be able to gauge your performance and they will provide you with the METS required and desired. Here is a link explaining this…[Read more]

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    Mark Koziol replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hello Rheal, thank you for sharing your story. Please take care, mark.

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    I totally agree with you but the sad fact is, our disease is very complex in it’s pathology. I do wish the process for approval was shortened. It seems most trials must overcome piles of paperwork and as we know this takes time. Take care, Mark.

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hello J.D., thank you for joining your pulmonary fibrosis forum. Welcome!

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    Mark Koziol started the topic COVID-19 Precautions Have Reduced the Number of Respiratory Infections in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 11 months ago

    One useful takeaway from our wearing masks and executing COVID-19 prevention measures is reducing the flu and other respiratory infections. Respiratory infections have been almost non-existent since the fall of 2020. The flu and respiratory syncytial virus (RSV) cases have dropped dramatically. RSV is highly contagious and dangerous for…[Read more]

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    Mark Koziol replied to the topic What should I expect as IPF progresses? in the forum Caregivers and Spouses 1 year, 11 months ago

    Thank you JT.

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hi Craig, thank you for joining your pulmonary fibrosis forum. Welcome!

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hello Marilyn, we are delighted to have you as a member of the pf forum. Welcome!

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    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hi Malcolm, thank you for joining your pulmonary fibrosis forum. Welcome!

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  • Profile picture of Mark Koziol

    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hi Kathleen, we are pleased to have you as a member of the pf forum. Welcome!

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  • Profile picture of Mark Koziol

    Mark Koziol posted a new activity comment 1 year, 11 months ago

    Hello Brett, thank you for joining your pulmonary fibrosis forum. Welcome!

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    Mark Koziol replied to the topic POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hello Carlo, you make me laugh. Thank you for kind comment. The key master tab signifies I am one of your co-moderators for the forum. Charlene Marshall is your other moderator. I’m hoping another member can answer your question on Esbriet. I have no experience with this medicine and don’t think I can comment satisfactory. I was on Ofev. I wou…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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