@mark-koziol
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Mark Koziol posted a new activity comment 2 hours, 1 minute ago
Hello Jr, welcome to your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 6 hours, 27 minutes ago
Hello Nancy, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol posted a new activity comment 19 hours ago
Hello Claire, welcome to your pulmonary fibrosis forum.
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Mark Koziol replied to the topic Comparing Lung Transplant Centers in the forum Pre/Post Lung Transplant 1 day, 3 hours ago
Hello Peggy, very happy to hear your husband is doing well. I’m glad you two were persistent in your pursuit of a transplant. It is amazing what can happen when a transplant is successful. Thank you for updating our forum members and especially showing what can happen when you don’t take no for answer. Best wishes, Mark.
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Mark Koziol posted a new activity comment 1 day, 4 hours ago
Hello Prabir, on the Pulmonary Fibrosis Foundation website there is a page you can access that details all of the current trials in process. Mark
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Mark Koziol posted a new activity comment 1 day, 5 hours ago
Hello Prabir, the ofev will not improve your lung function it may be able to slow the progression of the disease. I’m sorry you are having to go through the delayed diagnosis. The reason they prescribed the steroid and cellcept was they thought you had inflammation in your lungs. These two medicines are prescribed for this reason. Inflammation o…[Read more]
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Mark Koziol posted a new activity comment 1 day, 5 hours ago
Hello Aiste, thank you for joining your pulmonary fibrosis forum. Welcome!
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Mark Koziol posted a new activity comment 1 day, 18 hours ago
Hello Prabir, welcome and thank you for joining your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 1 day, 19 hours ago
Hello Elise, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol replied to the topic Nobel Prize Winners Hoping to Improve Lung Transplant Outcomes in the forum Clinical Trials 1 day, 20 hours ago
Hello Cynthia, you are welcome and I agree with you wholeheartedly!
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Mark Koziol posted a new activity comment 1 day, 23 hours ago
I’m sorry you are feeling this way Brian. Hopefully your energy level and strength return to an acceptable level. There could possibly be something else going on that is disrupting your body. I hope you receive answers at your appt. mark
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Mark Koziol replied to the topic Comparing Lung Transplant Centers in the forum Pre/Post Lung Transplant 2 days, 4 hours ago
Thank you Les.
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Mark Koziol started the topic Nobel Prize Winners Hoping to Improve Lung Transplant Outcomes in the forum Clinical Trials 2 days, 17 hours ago
I recently received a tweet regarding 3 scientists who won the 2019 Noble Prize in Physiology or Medicine. The goal of their research is to improve lung transplant survival rates by “increasing proteins that play an important part maintaining the health of blood vessels.” According to their research, the “loss of healthy blood vessels is a big…[Read more]
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Mark Koziol posted a new activity comment 2 days, 23 hours ago
Hello Bobbi, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol posted a new activity comment 3 days, 2 hours ago
Hello Kim, welcome to your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 3 days, 2 hours ago
Hello Cheryl, thank you for joining your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 3 days, 5 hours ago
Hello John, you are so welcome. Thank you for reading and please feel free to engage anytime.
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Mark Koziol posted a new activity comment 3 days, 6 hours ago
Hello John, welcome to your pulmonary fibrosis forum.
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Thanks Mark, have previously read the forums as a guest but have found it really useful so thought I would sign up. There are some really helpful discussions and it’s reassuring to there are other people out there to help and advise with this terrible condition
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Hello John, you are so welcome. Thank you for reading and please feel free to engage anytime.
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Mark Koziol posted a new activity comment 4 days ago
Hello Alyssa, welcome and thank you for joining your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 5 days, 17 hours ago
Hello Pat, welcome and thank you for joining your pulmonary fibrosis forum.
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Mark: You are absolutely correct. Thanks for your help. I am hoping Ofev will slow down the fibrosis process. Also looking for new drug trials.
Best,
Prabir
Hello Prabir, on the Pulmonary Fibrosis Foundation website there is a page you can access that details all of the current trials in process. Mark