Mark Koziol

Hello David, thank you for your kind words. Moderating this forum is easy because our members well informed. What a wonderful experience it is to hear everyone’s story. We are all almost the  same but yet we are experience this awful disease differently. Take care and stay safe! Mark

Hello Joe, 80% of the persons who get covid-19 will only have mild symptoms. In the limited research on patients there has not been fibrosis but rather the disease simulates ARDS where fluid collects in the lungs. Some of these persons may never return to full lung function but some may take a year to return to their full lung function.…[Read more]

Hello Paul, I think our population will be OK during this crisis. Remember we have the experience to get through something like this. Many of us have practiced self-isolation in the past and know how to direct others in the significance of proper hygiene and to stay away if they are sick. I am actually happy my wife doesn’t have to go into work…[Read more]

Hello Miltont, thank you for the suggestion. I have heard candied ginger also alleviates nausea.

Hello Sue Ann, the symptoms you are describing are common for some patients with IPF. I didn’t have burning, but I had a cold sensation in my lungs and throat. I know some of our members will get chest cramps or aches in their lungs. There will really is not a one size fits all guide book for pulmonary fibrosis patients. You ask about…[Read more]

Hello Jean, unfortunately many patients have problems tolerating the Ofev. In my opinion you should ask your doctor if you can try esbriet. You may have better outcomes taking this medicine. Many patients try both because of the inability to tolerate one of the other. These two medicines are basically the same but they do have different side…[Read more]

Hello Reshma, you should ask your mom’s physician if there is a pulmonary rehabilitation program available in your area. If she participates in one of these she will be doing so under the care of medical professionals. This helped me immensely. Take care, Mark