@mark-koziol
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Mark Koziol replied to the topic IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis Information and General Questions 11 hours, 38 minutes ago
Hello JoAnn, usually the cough the PF patient has is a dry cough, hopefully the antibiotics are working and eliminates your symptoms. PF patients have a compromised immune system, please take precautions to protect yourself. We are nearing the end of the flu season and entering the allergy season. Take care. Mark
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Mark Koziol posted a new activity comment 11 hours, 48 minutes ago
Thank you Margaret.
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Mark Koziol posted a new activity comment 13 hours, 33 minutes ago
Hey John, follow her orders and OFEV has a wonderful customer service department. You have the ability to speak with a pharmacist at all times. Best wishes. mark
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Mark Koziol posted a new activity comment 14 hours, 26 minutes ago
Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]
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Mark Koziol posted a new activity comment 14 hours, 38 minutes ago
Hello Joey, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol replied to the topic Spouse of patient soon to have lung transplant in the forum Caregivers and Spouses 14 hours, 39 minutes ago
Hello Beckie, if you can’t receive the call because of bad reception, make sure you give as many numbers possible for them to reach you. I have heard of instances where they send the police or sheriffs out to contact you if they think there is trouble with the reception. There are plans in place regarding how far you are out. Everything will be…[Read more]
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Mark Koziol posted a new activity comment 15 hours, 19 minutes ago
John, I can at least give you my experience. I was on it for almost a year. I chose the OFEV because I felt there less side effects than Esbriet. Plus there were 9 pills to the 2 for OFEV. I occasionally had some gastric distress about once or twice a month but nothing severe where I had to take anything for it. I ate fairly healthy but I did…[Read more]
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Thank you Mark for your feedback…I told my Pumonologist to try to get me The Ofev…she will do her best. I have some anxiety with all that I am reading about both meds. My only hope is that my body can tolerate it. No other real health issues & 65yrs. old so she thinks I should do ok. I will keep you posted. All the best to you Mark.
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Hey John, follow her orders and OFEV has a wonderful customer service department. You have the ability to speak with a pharmacist at all times. Best wishes. mark
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Mark Koziol posted a new activity comment 15 hours, 41 minutes ago
Hello Beckie, thank you for joining your pulmonary fibrosis forum. Welcome!
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Mark Koziol posted a new activity comment 15 hours, 42 minutes ago
Hello Patty, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol replied to the topic Keeping Yourself Mentally Healthy in the forum Living with Pulmonary Fibrosis: 50+ 23 hours, 8 minutes ago
Hello John, thank you for reading and commenting on the topic. John, everything is a process, you will manage through this. With regards to the Esbriet-OFEV debate, you have to look at the pros and cons of each medication. I chose the OFEV because I love being outside and Esbriet would inhibit my ability to stay out for long periods. You may have…[Read more]
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Mark Koziol posted a new activity comment 23 hours, 18 minutes ago
Hello Susie, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol posted a new activity comment 23 hours, 19 minutes ago
Hello Sarah, thank you for joining your pulmonary fibrosis forum. Welcome!
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Mark Koziol started the topic Keeping Yourself Mentally Healthy in the forum Living with Pulmonary Fibrosis: 50+ 1 day, 12 hours ago
As we suffer through pulmonary fibrosis (PF) we prioritize taking care of our physical symptoms, but how many of us also take care of emotional well-being? I recently came across an article from the National Institutes of Health (NIH), titled “Your Healthiest Self: Emotional Wellness Toolkit.” As patients with pulmonary fibrosis, our emo…[Read more]
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Mark Koziol posted a new activity comment 1 day, 13 hours ago
Welcome Elizabeth, thank you for joining your pulmonary fibrosis forum.
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Mark Koziol posted a new activity comment 1 day, 13 hours ago
Hello Lorena, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol posted a new activity comment 1 day, 13 hours ago
Welcome Margaret, thank you for joining the pulmonary fibrosis forum.
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Thank you, Mark. I have been following this Forum for some time. Thank you Charlene for the service (I call it ministry) you are offering to those of us dealing with IPF. I cannot imagine your struggle being diagnosed with this awful illness at such a young age. My prayers and thoughts are with you.
I was diagnosed with IPF in 2015 at age 74.…[Read more]-
Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]
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Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
I w…[Read more]-
Thank you Margaret.
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Mark Koziol posted a new activity comment 1 day, 13 hours ago
Hello Bonnie, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Mark Koziol replied to the topic Different Types of Fatigue for Patients with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 day, 15 hours ago
Hello Laura, I am happy you reached out and commented on Charlene’s topic. I am sure most of us pulmonary fibrosis patients experience bouts of fatigue. I’m my opinion lack of sleep is the number 1 perpetrator of fatigue. I have had a transplant and sleep is still the predictor of my day. If I have a good night sleep and stay properly hydrated I w…[Read more]
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Mark Koziol posted a new activity comment 1 day, 23 hours ago
Hello Minette, thank you for joining your pulmonary fibrosis forum. Welcome!
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Mark Koziol posted a new activity comment 1 day, 23 hours ago
Hello Dawn, thank you for joining your pulmonary fibrosis forum. Welcome!
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Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
I w…[Read more]
Thank you Margaret.