Kate Smithson

Hello Yolanda:

As I’m not always hungry at the time I’m due to take my ESBRIET tablet,  I have found that eating 1/2 a banana or a piece of cheese works. So far no nausea while doing this.  I’ve been able to maintain the full dose for two years now and in the 3 years since my diagnosis, my PF test results have remained stable.  Best wishes a…[Read more]

Carol:

Are you walking/exercising WITH oxygen?

My pulmonologist prescribed using oxygen during exercise, to try to keep the saturation levels above 88.  Mine had dropped to 78 while I was doing the 6 minutes test and while I walked outdoors for exercise. I said I stopped when I felt out of breath and resumed walking when the oxygen levels…[Read more]

Thank you all who responded to my question re POC’s.  I am so appreciative of the information shared.  Your comments have given me much to read before getting set up.
In checking with an equipment supplier, I learned that the OxyGo 5 is manufactured by Inogen and is the name used for the Canadian brand. Apparently they are the same.

I re-read Cha…[Read more]

Sorry for all of us ‘coughers’, (and those who have to listen to us!), but glad to read the comments!
I was diagnosed with IPF two years ago.  The cough was what led to my diagnosis but it was quite mild until the past 6 months, when it became more frequent and lasted longer.  At times now I wake, coughing.
Life is still pretty normal for me, a…[Read more]

Dear Steve, Charlene and Mark:

It is Kate Smithson here, and I am a registered member of PF News. I sent that message to Steve as I am searching for travel insurance information.   I had a question  for him and didn’t feel comfortable communicating on the public forum, so sent the “friend” request.
I trust that you can reassure him that I’m a l…[Read more]