Got use to cpap machine yeah ! Also read I too take simvestation . Have taken statins for many years now. Who knows
What helps anymore? Take my meds and feel good for what is wrong and not worry about everything…..
Hi @bill-mattila, so sorry to hear this! Are you keeping track of your 02 sats when you’re feeling this way? It might help a bit to bring to the doctor’s next month, if you have a bit of a log. Just a piece of advice that was really helpful when shared with me. Keep us posted, and hang in there.
My taking Ofev is getting interesting. I now have more side effects. Take Ofev with your meal. That’s my plan lots of food take at same time everyday. Gives me sore butt too. Sorry about that.the terminology.
Hello Bill, during my experience with OFEV I found it beneficial if I ate a banana before taking my medicine. I also ate a protein when taking my meds. I had to lose weight so I ate 5-6 times a day. I considered these meals my mini-meals. I had a gastric episode probably once a month. I did take my meds at the same time every day as you have…[Read more]
I have found a new role since my diagnosis @bill-mattila, I agree. I never thought that my diagnosis of IPF nearly three years ago would open this door of opportunity for me, but I am so thankful it has as I’ve met so many wonderful people. I wish it wasn’t IPF that brings us all together, but I am so thankful for the members on this site, who…[Read more]
@charlene-marshall Not much to maintain. change filter in compressor. And keep vest clean. You have to adjust the straps on occastion. Doctor recommends vibrating twice a day . One hour total. It comes with pre programmed. Push button and shake it.
Wow, really interesting Bill, thank you so much for sharing. I am curious if anyone else on the forums uses this method to help reduce the cough? Glad it is helping you and it isn’t too difficult to maintain. That is excellent! Your pulmonologist recommended it, or was it your GP, Bill? Thanks for answering my million questions 🙂
@raymond-c-king yes Ray you probably can’t use the vest. Cause it does vibrate stomach too. It was prescribed by the doctor. Try the mucinex. Don’t take too much. I used to live on it before I was diagnosed with the IPF. I take the cheap stuff. Just Kirkland from Amazon 400mg quick release. One Ihave had the IPF for almost twenty yrs. two tak…[Read more]
Hi, I cough up a lot of phlegm every day, and go through lots of Kleenex! Mucinex 12 hr release is what my doctor recommended and it seems to help a little. I have chronic sinusitis and bronchitis, so I’m also on Flonase, Singulair and saline rinses. My two cats like to sleep with me, so sometimes I take Benadryl before going to bed. I just…[Read more]
Thank you for your reply. I appreciated your Vest and Mucinex comments.
WOW! You say you have had IPF for almost twenty years! I guess from what they say about IPF on the internet, you have really exceeded the life expectancy of three to five years by quite a bit. They do say that everyone if is different though! I was…[Read more]
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