Bill Mattila

It helped me to carry the portable isn’t hard. If you want to breathe what’s the deal is. I had to talk myself into it. It’s
Crazy your life in a machine. Think about it you need air right.

I am replying to my oxygen needs going up. You need to keep your needs even not letting your oxygen levels decline. I have read there is three levels in your body that need a certain level to maintain your body. Organs skin and whole body need proper oxidation. I hated to wear the cannala. But how can you live with low levels of oxygen ,cause you…[Read more]

This is all true, but everyone is defensive about their Disability to move like they used too. You have to accept the reality of it👀. I have to think about all the rest of my problems Catheter and all no breathe. I have had problems for 15+ years and still alive and almost 80. So I like to Whine about the Doctor that did a shxxxxd job on my…[Read more]

OFEV does cause bleeding ,so I stopped a number of times for procedures and too many side effects. Don’t fear a short stoppage.

Also see Doctor and and ask him or her.

Bernard I’m sorry that they do that. I guess money is more important, we get Charged 11 thousand US dollars a month. My insurance is good so I only pay a low copay. I too suffer from side effects that most people do even the gas and bloating. I have had exrabations a few times it isn’t nice. I’ve had the IPF for at least 15yrs or so and I still…[Read more]

I have fits with my mucus. I do Mucinex  everyday at least the maximum (2400mg a day) so it’s a bear to regulate. I also have a vibrating vest that works. But you have to do it at least 1hr a day or more. I have had IPF for a long time, but didn’t do anything about it. I didn’t know I had it. So I went to lung man and got the news but now I’m on…[Read more]

I had to kinda of remind my Doctor that I was short of O2 on working. He wrote a 2liter constant flow so now I haul a 22lb machine around with me. They said that the small machines won’t work on constant flow and where only on demand which was a lie.

They will do that and up to 5liter. Now I’m stuck with boat anchor.
Now should I spend 2000$ on…[Read more]

Dear suffering OFEV users. I have been on OFEV for 2.5 years. First year no side effects.

Now I have them all right down to the rash. Elevated alt and my thyroid test is messed up a little. I take 15omg twice a day I have diarrhea and sickness too. I skip a dose to reset my tract. Will be calling Doctor about my rash and other meds cause sun…[Read more]