Camila Lopez replied to the topic Side effects of exposure to the sun in the forum Esbriet (Pirfenidone) 2 weeks, 3 days ago
I really don’t know if I can post this here, if not please remove it. I have had a big problem with the sun’s reaction. I get a red itchy rash on my hands, neck sides/back, and face. I had a problem with the sun reacting with the sunblock which caused a rash too. I found a brand (other than Columbia) specializing in all kinds of SPF 50+ ite…[Read more]
Camila Lopez replied to the topic Itchy Skin with Esbriet in the forum Esbriet (Pirfenidone) 1 month ago
I started Esbriet last August with minimal side effects, only fatigue. In February I developed skin itch on my neck, chest, and back of my hands. Pulmo suspended treatment for one month. As soon as I used Esbriet again in April the itch started again! I’m now using 2 x 3 a day. Pulmo wants me to start 3 x 3 but I couldn’t tolerate it last…[Read more]
Camila Lopez replied to the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 1 month, 1 week ago
Hello there. I started taking Esbriet in August 2022. I couldn’t tolerate the 3 x 3 daily doses but was doing good on 2 x 3. I always felt a bit without energy but other side effects were tolerable. Although my CT scan says I have extreme lung damage, I don’t have symptoms. I’m neither short of breath, nor coughing, and my oxygen level is a…[Read more]
Camila Lopez became a registered member 2 months, 1 week ago
I too had the same itchy problem and did not tolerate the sun. First 3 months were fine and then it all started. It was miserable. I am now taking Ofev and soooo much better. Only side effect is the diarrea which you can control with Imodium.