Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

conni

Home Members conni
show less show more
Profile picture of conni

@connib

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of conni

    conni replied to the topic Deep Tissue (or red light) Laser Therapy in the forum Using Our Forums 5 months ago

    I am also very interested in laser therapy. Don’t want to increase collagen for sure. When we have used it in the dogs it was for healing wounds etc,so why is this different?

    conni borwick

  • Profile picture of conni

    conni replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 6 months, 3 weeks ago

    I think the one reality here is that Ofev does not cure or fix anything,like breathing,it simply slows the progression of the disease. Doctors for sure will never do something the drug company doesn’t reccommend or fda approves. But as a thinking human being I can make choices on dosage.

    Since I do not have ipf but rather hypersensitivity…[Read more]

  • Profile picture of conni

    conni replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago

    I have been struggling with leg muscle pain for over a year. I exercise as much as I can with breathing issue. I kept wondering what else could be causing this weakness and discomfort. I rode horses for 40 years,was a runner, and ran agility with my dogs ,so my leg muscles were strong. Wish we could get a response from ofev.

  • Profile picture of conni

    conni replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year, 1 month ago

    I was 75 yrs old when the pulmonologist at Shane’s hospital suggested I consider a transplant. I am on o2 at night and when I exercise. I read the entire protocol on their website and it was very complete. A day to day synopsis from evaluation to surgery.

    I also have osteoporosis and I factored that in my decision to not go for an evaluation. A…[Read more]

  • Profile picture of conni

    conni replied to the topic Systemic Enzymes, with or without prescription anti-fibrotics in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    I use Chinese herbs from my doctor and have had minimal side effects from the Ofev when I take them first thing in the am.

  • Profile picture of conni

    conni replied to the topic Breathing Exercises for PF Rehab vs Stress Management in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago

    Same exercise Che ghung or qu gong ,many different spellings 😬 I also Find I am more relaxed and energetic. It also seems to help if I am having a bad coughing spell. Acupuncture also really helps me relax and depending on where she sticks me…can super energize me, very weird. I know you are supposed to do the pulmonary rehab exercises daily,I…[Read more]

  • Profile picture of conni

    conni replied to the topic Breathing Exercises for PF Rehab vs Stress Management in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago

    My acupuncturist suggested Che hung similar to tai chi great tool. You can find videos on line I have 2 I like one is a full hour the other 20 minutes these are calming not just breathing. I also like a pranayama breathing class it should not make you anxious you should be comfortable  with the inhale exhale at your own pace. There is no right or…[Read more]

  • Profile picture of conni

    conni replied to the topic Auto Immune in the forum Using Our Forums 2 years ago

    I cannot get the article you referenced and am very interested in it. When I click on it it just says page not found. Also where are you getting your laser treatment

    thank you so much for a really interesting thread

  • Profile picture of conni

    conni replied to the topic Hypersensitivity pneumonitis /Cellcept question in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    hi,

    I have been diagnosed with HP also and could not take cellcept or imuran.  I have been on Ofev with minimal side effectsand the green tea extract., and am hopeful that the studies are correct and it slows the progression.  I live in Florida, today the heat index was 110 degrees and we have really high humidity. I could only be outside for a…[Read more]

  • Profile picture of conni

    conni replied to the topic Tailored Exercise Programs Beneficial for Patients with IPF/PF in the forum Pre/Post Lung Transplant 2 years, 7 months ago

    Pulmonary rehab was so boring for me 🥴 I have always been active,gone to the gym,etc. all my life. Always my exercise was outside based. Training horses,then dogs,running agility,tracking etc. working my border collie on sheep…so my emotional painful struggle is trying to get excited about exercise inside😩I have a couple of good programs from…[Read more]

  • Profile picture of conni

    conni became a registered member 2 years, 8 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Conni, thank you for joining your pulmonary fibrosis forum. Welcome!

Profile Photo Terry Neu Profile Photo Jude

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Hot Flashes by Daughter
  • Improved spirometry values by Monica Loftin
  • Sunday “Resets” by Charlene Marshall
  • Following quarantine etc. does a positive home test mean I am still contagious? by Walter Gerstmann
  • PF secondary to COVID pneumonia–did anyone receive the drug baricitinib? by Sherry

Recent Replies

  • Split Ofev doseages
  • Improved spirometry values
  • Hiatus Hernia
  • Hiatus Hernia
  • travel while on ofev

Members

Newest | Active | Popular
  • Profile picture of Carmen Quintas
    Carmen Quintas
    Active 33 minutes ago
  • Profile picture of Richard Pedemonte
    Richard Pedemonte
    Active 39 minutes ago
  • Profile picture of Donald Salzberg MD
    Donald Salzberg MD
    Active 1 hour, 16 minutes ago
  • Profile picture of harold cheatham
    harold cheatham
    Active 1 hour, 19 minutes ago
  • Profile picture of Bruce F.
    Bruce F.
    Active 1 hour, 57 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen