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Luis Pernia

Home Members Luis Pernia
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@mayid46

@charlene-marshall Hello Charlene, my greetings and my best wishes for you and for this group. I have been in this group for some time, although in reality, it is not me who suffers from this disease, but my wife. We live in Orlando, Florida and we are of Venezuelan origin. My wife does not speak English and I am barely managing the […] View
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    Luis Pernia replied to the topic Deep Tissue (or red light) Laser Therapy in the forum Using Our Forums 1 month, 3 weeks ago

    Hello, I understand from my wife, with the treatment with esbriel. they cannot carry sunlight and less infrared on the skin. I don’t know what you guys can think.

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    Luis Pernia replied to the topic Has anyone seen the film "More Than Ever" about an IPF patient? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 4 weeks ago

    Hello Franco, not really, but if you saw it and have something to contribute, please do.
    It’s more interesting when you comment on something in particular.
    I hope to read you.

  • Profile picture of Luis Pernia

    Luis Pernia posted an update 6 months, 1 week ago

    @charlene-marshall

    Hello Charlene, my greetings and my best wishes for you and for this group.

    I have been in this group for some time, although in reality, it is not me who suffers from this disease, but my wife.

    We live in Orlando, Florida and we are of Venezuelan origin.
    My wife does not speak English and I am barely managing the…[Read more]

  • Profile picture of Jorge Ríos

    Jorge Ríos and Profile picture of Luis PerniaLuis Pernia are now friends 6 months, 1 week ago

  • Profile picture of Luis Pernia

    Luis Pernia replied to the topic Pirfenidone from India in the forum Esbriet (Pirfenidone) 6 months, 2 weeks ago

    Hello, I spent some time buying the medicine in India, but I don’t know if the quality is good.
    He sent it home with no problem.

  • Profile picture of Luis Pernia

    Luis Pernia replied to the topic I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis? in the forum Flash Briefings & Podcasts 3 years, 1 month ago

    Hi everyone.  In particular, I am very hopeful that a cure for that disease will soon be found.  You have to hope, move on and look for new encouraging news.

  • Profile picture of Luis Pernia

    Luis Pernia replied to the topic Lung Transplant Considerations. in the forum Pre/Post Lung Transplant 3 years, 1 month ago

    Thank you for the answers to my question, I am grateful for the attention you take to answer.  They are all very kind.

  • Profile picture of Luis Pernia

    Luis Pernia posted an update in the group Group logo of Research and DevelopmentResearch and Development 3 years, 1 month ago

    Greetings to all. I got this information that can be helpful. They can translate it into English.
    https://elmedicointeractivo.com/una-terapia-con-hormona-tiroidea-cura-la-fibrosis-pulmonar/

  • Profile picture of Luis Pernia

    Luis Pernia joined the group Group logo of Research and DevelopmentResearch and Development 3 years, 1 month ago

  • Profile picture of Luis Pernia

    Luis Pernia replied to the topic Lung Transplant Considerations. in the forum Pre/Post Lung Transplant 3 years, 1 month ago

    Hi everyone.  I would like to know how much is the financial cost for a lung transplant?

  • Profile picture of Luis Pernia

    Luis Pernia posted a new activity comment 3 years, 1 month ago

    Thanks Mark.

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    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 1 month ago

      You are welcome Luis .

  • Profile picture of Luis Pernia

    Luis Pernia became a registered member 3 years, 1 month ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 1 month ago

      Hello Luis, welcome to your pulmonary fibrosis forum. Thank you for joining!

      • Profile picture of Luis Pernia
        Luis Pernia replied 3 years, 1 month ago

        Thanks Mark.

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 1 month ago

          You are welcome Luis .

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