John14392
@John14392
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Joined Dec 2023 •
Active 6 months ago
Biography
| Name | John |
| Nickname | John14392 |
| Last Name | Gould |
| Year of Birth | 11/21/55 |
| Gender | Male |
| Location | Portland Oregon |
| Relationship | Patient |
| Short Bio | 68 yr old male, just diagnosed 11/23, Dad died of PF couple of decades ago he was 69, not on oxygen yet |
| Type of Diagnosis | IPF |
| Lung transplantation status | considering later |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | Research online as much as you can. There is a lot of good info out there, including this blog. Keep periodically researching to keep up on the newest treatments. Ask questions of your Pulmonologist based in your research. Make sure they are keeping up on the latest treatments also. |
| Are you currently taking an anti-fibrotic medication? | no |
| How did you find us? | Other |
| How long have you or the person that you are caring for had PF? | Out of breath about 1.5 yrs ago, diagnosed 1 month ago |
| Privacy Policy and Terms of Use | I agree |