john sliwinski

Listen up everyone who is taking Esbriet 9 pills a day.That is the old way. They have  Esbriet which is now 801mg and you only take 1 pill 3 times a day rather than the 9 pills. Check with your pulmonologist.

My local pulmonologist stated my life span would be 2-5 years. However after getting a second opinion at a Center of Excellence (Univ. of Pa.) and after they doctor there reviewed my lung biopsy I was told I had over 10 years plus. So far it has been 5 years and still on Esbriet and stable.  One thing to keep in mind sitting or lying around does…[Read more]

Steve listen to everyone and do consult your pulmonologist prior to stopping your medication. Playing doctor on your own is not the answer. Don’t do more harm than good.

I have been on Esbriet for almost 4 years and luckily for me did not have any side effects. I am stable so far and hope to remain that way.

Keep us posted.

I was selected for the Galapegos trial in Philadelphia and on my first visit they did a cat scan of my lungs and put me through lung function tests. After they got the cat scan results I was disqualified since my lungs were in not that bad of shape for my age (72 years old). I was totally disappointed that I could no longer participate but one has…[Read more]

Who knows like others have said. I worked in a steel mill for a few summers while in college, I smoked and stopped. My cause was GERD. Acid reflux in the night and all I thought it was just heart burn and took an antacid. My local pulmonologist said I had  2-5 years left but on second opinion at Penn in Philly I was told 10+ years. I am 72 years…[Read more]

Does anyone know of a wrist device that also keeps track of your pulse ox?

I am on 1800mg of gabapentin daily (i.e. 600mg every 8 hours). My cough has subsided but not entirely. Prior to be prescribed the med I used to cough all day long. I explained that to my pulmonologist at Penn Med and she started me on a low dose and titrated me up to 2400 mg which was too much. I feel comfortable with 1800mg but that dose could be…[Read more]