@carlo
-
Carlo De Pellegrin posted a new activity comment 2 months, 2 weeks ago
I have been on Esbriet since September 2020 ( switched to generic in 2022, not sure of exact date ) when I was definitively diagnosed with IPF. There was evidence in prior CT scans, being done as a result of lung cancer diagnosis and VATS lobectomy surgery in 2012, as early as 2015.
My FEV has been very stable since 2015 with an apparent…[Read more] -
Carlo De Pellegrin replied to the topic AND… I found one more… early, but interesting they call it potential CURE in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
How do we find out more ?
-
Carlo De Pellegrin replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 9 months, 3 weeks ago
John, thank you very much for sharing. A ll best to you.
-
Carlo De Pellegrin replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 10 months ago
John, might you share your experience with all on this site? i certainly would be interested as I’m sure many more would.
thank you so much….
-
Carlo De Pellegrin replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hey Ben, I’m hesitant to try Wei because of the cost. What are the 19 veggie capsuls and the CL for two months?
-
Carlo De Pellegrin replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 8 months ago
Good morning all,
I just wanted to let all know that I am scheduled for he covid booster shot tomorrow October 1. After trying my respirologist and MD i called York Region Health Care Unit and booked the appointment on the phone! You need to be persistant with the choices on their email system!!
-
Carlo De Pellegrin replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
Allan, so sorry to hear this. I was hoping to try it!! I think I’ll wait until after my breathing tests in December and then re consider.
-
Carlo De Pellegrin replied to the topic Drinking Wine with Pulmonary Fibrosis. in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 1 year, 11 months ago
Charlene and anonymous, I used to be a one or two glass of red Italian wine almost every day. Since the IPF in September 2020 and the Esbriet I have reduced that to one 6 ounce glass 4 0r 5 times a week either red or white depending on the food. It is a little pleasure in life…..:):):)
-
Carlo De Pellegrin replied to the topic Has anyone tried Stem Cell therapy? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
Lnour, Ben, Pete, Jerry and William,
Thank you very much for this information. I live in Canada, in a suburb of Toronto. Is there anyone in Canada that will undertake this procedure, if any of you happen to live here and does anyone of you know the cost of the procedure(s)?
God bless you all, Carlo
-
Carlo De Pellegrin replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis Information and General Questions 1 year, 12 months ago
Good morning all,
I have been on 9 Esbriet since November 2020. I have most I’d the side effects mentioned in this discussion chain. I have no idea about the effects of reducing the dosage would be but can suggest three things that seem to have helped with the nausea and fatigue.
1. I take the meds religiously with every meal at least 4.5 h…[Read more]
-
Carlo De Pellegrin replied to the topic Inhaled Therapies for IPF in the forum Diagnosis Information and General Questions 2 years ago
Hey Steve,
Thank you for the reply. What are you taking it for? What does it do for you?
Thanks again, Carlo
-
Carlo De Pellegrin replied to the topic Inhaled Therapies for IPF in the forum Diagnosis Information and General Questions 2 years ago
Hey Steve,
Thank you for the reply. What are you taking it for? What does it do for you?
Thanks again, Carlo
-
Carlo De Pellegrin replied to the topic Inhaled Therapies for IPF in the forum Diagnosis Information and General Questions 2 years ago
Hey Steve and Charlene, you both seem to very active and experienced in various matters relating to IPF. I am relatively new, being diagnosed September, 2020 and have been on Esbriet since then.
My original local respirologist retired in November last year and met a new one ( virtually) in March this year who thought that part of my lung issue…[Read more]
-
Carlo De Pellegrin replied to the topic Magnesium lithospermate B as effective as Esbriet!? in the forum Diagnosis Information and General Questions 2 years ago
Interesting article on MLB. Hope to see more comments. I have not tried it.
-
Carlo De Pellegrin's profile was updated 2 years ago
-
Carlo De Pellegrin replied to the topic Franklin Price ♥️ in the forum In Loving Memory 2 years ago
condolences to family and friends.
-
Carlo De Pellegrin replied to the topic Magnesium lithospermate B as effective as Esbriet!? in the forum Diagnosis Information and General Questions 2 years ago
I have not, but would love to hear from anyone who has. Does it reduce the fibrosis or only slow down the progress as Esbriet is supposed to?
-
Carlo De Pellegrin replied to the topic Living with IPF vs When Diagnosed in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 1 month ago
Hi John, I wish I knew the answer to that. I was diagnosed about 8 months ago and have issues with shortness of breathe and nausea and fatigue. I did have carcinoid cancer in my upper right lung in 2012 so I have had CT scans at least annually since the. My recent diagnosis implied that the disease was there 5 or 6 years ago and has progressed to…[Read more]
-
Carlo De Pellegrin replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
Ben, good luck! Keep us all in the loop. I am considering more research on this Wei Labs stuff after CT scan and breathing test this month.
-
Carlo De Pellegrin replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
oops!! where did my post go about WEI???
- Load More