Carlo De Pellegrin

Charlene and anonymous, I used to be a one or two glass of red Italian wine almost every day. Since the IPF in September 2020 and the Esbriet I have reduced that to one 6 ounce glass 4 0r 5 times a week either red or white depending on the food. It is a little pleasure in life…..:):):)

Lnour, Ben, Pete, Jerry and William,

Thank you very much for this information. I live in Canada, in a suburb of Toronto. Is there anyone in Canada that will undertake this procedure, if any of you happen to live here and does anyone of you know the cost of the procedure(s)?

God bless you all, Carlo

Good morning all,

I have been on 9 Esbriet since November 2020. I have most I’d the side effects mentioned in this discussion chain. I have no idea about the effects of reducing the dosage would be but can suggest three things that seem to have helped with the nausea and fatigue.

1. I take the meds religiously with every meal at least 4.5 h…[Read more]

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve and Charlene, you both seem to very active and experienced in various matters relating to IPF. I am relatively new, being diagnosed September, 2020 and have been on Esbriet since then.

My original local respirologist retired in November last year and met a new one ( virtually) in March this year who thought that part of my lung issue…[Read more]

Interesting article on MLB. Hope to see more comments. I have not tried it.

condolences to family and friends.

I have not, but would love to hear from anyone who has. Does it reduce the fibrosis or only slow down the progress as Esbriet is supposed to?

Hi John, I wish I knew the answer to that. I was diagnosed about 8 months ago and have issues with shortness of breathe and nausea and fatigue. I did have carcinoid cancer in my upper right lung in 2012 so I have had CT scans at least annually since the. My recent diagnosis implied that the disease was there 5 or 6 years ago and has progressed to…[Read more]

Ben, good luck! Keep us all in the loop. I am considering more research on this Wei Labs stuff after CT scan and breathing test this month.

oops!! where did my post go about WEI???

Cheryl, I look forward to the  comments from your  pulmonologist.

Augusta, Glad to hear your optimism! I have a similar history. I was diagnosed in September 2020 at which time it was noted that I was probably with IPF in 2015. There has been some progression in the disease in the 5 years but at a slow pace…good news to me. I have a CT scan and breathing tests coming up in April so we will see what effect…[Read more]

I did not know that throat clearing is a sign of the progression of the disease??? Can someone comment on this for me please? I am clearing my throat much more in the couple of  weeks but attributed it to spring seasonal allergies.

I just registered in York Region for my first shot March 28 and my second shot July 18. There was no definitive definition that would have given me any priority due to my IPF even in the second Phase, which was supposed to start in April. So the progress is going faster then expected, due either to overly pessimistic government projections or some…[Read more]

Thank you Christie! I have a CT scan and a breathing test in April, so we will see what we need or could do to get that up a bit. I need a challenge to stay motivated….

Manzurul, that’s terrific! How do you get the inspiration to walk every single day? I am a 73 year old and was diagnosed in September 2020. I am struggling at 3 times a week. I walk at 115 steps per minute for 40 minutes at 2.8mph. So that would be 13,800 on my treadmill. Your total steps at my rate would be almost an hour and a half  per day.…[Read more]

Lnour, absolutely agree!