Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Luke R Matthews

Home Members Luke R Matthews
show less show more
Profile picture of Luke R Matthews

@luker

  • Activity
  • Profile
  • Friends 2
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 11 months, 4 weeks ago

    Robert, my DME company gave me  a bottle which is filled with distilled water that straps on top of the concentrator and the O2 goes into that and then the tube to the mask comes out of the side of the bottle.  I am glad you found the Oxymask beneficial to you.

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 1 year, 6 months ago

    If anyone dislikes their cannula as much as me, then I want to share my discovery for a replacement. A Canadian company makes an open air mask called Oxymask. It works with a delivery 1-15 liters. You can go to YouTube and search oxymask to see a short video. Or search Southmedic.com. My DME company gave this to me when I told them how must I…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Skin Irritations Caused by Oxygen Cannulas. in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 7 months ago

    If anyone dislikes their cannula as much as me, then I want to share my discovery for a replacement. A Canadian company makes an open air mask called Oxymask. It works with a delivery 1-15 liters. You can go to YouTube and search oxymask to see a short video. Or search Southmedic.com. My DME company gave this to me when I told them how must I…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Auto Immune in the forum Using Our Forums 1 year, 7 months ago

    https://www.frontiersin.org/articles/10.3389/fmed.2019.00209/full

    i found this article to be of interest.

    Luke

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Auto Immune in the forum Using Our Forums 1 year, 7 months ago

    Hello John and All,

    Autoimmune disease can cause scarring of the lungs (pulmonary fibrosis).  NSIP with autoimmune features is one such diagnosis. I was diagnosed with IPF in September 2018 and put on Ofev and then esbriet. My sister has IPF as well. She went to an academic health facility for a stem cell research study. We had both been going…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews's profile was updated 1 year, 10 months ago

  • Profile picture of Luke R Matthews

    Luke R Matthews and Profile picture of Carlo De PellegrinCarlo De Pellegrin are now friends 1 year, 10 months ago

  • Profile picture of Luke R Matthews

    Luke R Matthews posted a new activity comment 1 year, 11 months ago

    On 10 Feb 2021, at 20:56, Luke Matthews wrote:

    Dear Dr Adira

    I am a lung patient of Dr Lobo at UNC Health pulmonary clinic Chapel Hill, NC USA. I have been diagnosed with NSIP with autoimmune features causing fibrosing of the lungs. I saw an article on your work with EXO-CD24 and wondered if it might be helpful to ILD patients.

    I know t…[Read more]

    View Conversation
  • Profile picture of Luke R Matthews

    Luke R Matthews posted a new activity comment 1 year, 11 months ago

    Dear Luke
    I think that if might help only if you still have inflammation in the lungs
    If you fibrosis it is too late
    We are developing the drug and d we I’ll take you into
    Consideration in thy e future
    Thanks
    Nadir

    View Conversation
  • Profile picture of Luke R Matthews

    Luke R Matthews posted a new activity comment 1 year, 11 months ago

    Hello Bob,

    I emailed him when I saw an article about which you write. To my surprise he did respond saying he would keep me informed. However I suspect he is covered in Covid research.

    View Conversation
  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic POSSIBLE MISDIAGNOSIS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Yes Jenny, I could no longer tolerate Ofev and switched to Esbriet. I at least can tolerate this one somewhat better.

    To Bill, go and get a second opinion. It is easy to diagnose pulmonary fibrosis but difficult to diagnose IPF. Have you had bloodwork done for autoimmune disease? You need to get involved in your case doing research and study. I…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Olfactory changes with IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 6 months ago

    Hi, I have been wanting to start a topic thread on this but I don’t really know how to do that. I did go to google and asked about this topic and one of the links was this thread. I know it is over two years old but I thought I would try posting.

    I have a very similar experience with smells as Lesley. I do sometimes smell smoke, mostly like c…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Trying to Improve Your Memory in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 6 months ago

    Hi Mark,

    Thank you for posting the Cleveland Clinic article on memory. It is very informative.

    best wishes,

    Luke

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 6 months ago

    I found your link to the article Dave. Thank you.

    Luke

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 6 months ago

    @Dave @Charlene
    thank you for your post on bioavailability of EGCG. Could you tell me whether you Talked to Healthy Origins or Teavigo concerning taking EGCG without food? I also take Healthy Origins with 150 mg of Teavigo. The directions state to take with a meal. I have already switched to taking it without meals but would be interested in the…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Use of medications bought from other countries in the forum Ofev (Nintedanib) 2 years, 9 months ago

    Hi Charlene

    Both Ofev and Esbriet have programs to help their patients. I believe they will offer financial aid as well. It might be worth it to check with them. Ofev’s program is called Open Doors. The number is 866-673-6366. Esbriet is called Esbriet Inspirstion 844-693-7274

    Walgreens Alliance Specialty Drugs has helped me  by providing in…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 11 months ago

    I had posted earlier about my experience with a reduction in DLCO Numbers that bounced back. Since that post I have experienced a reduction in my DLCO and my FVC Number. Now, Two months since those numbers were recorded they have essentially bounced back to previous levels. In December my DLCO number decreased from 69% to 49%. Last week it…[Read more]

  • Profile picture of Luke R Matthews

    Luke R Matthews replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 2 years, 11 months ago

    Hi, does anyone know what strength the statins were when given in the study to see a reduction in the fibroblasts.

    Luke R Matthews

  • Profile picture of janis gorsline

    janis gorsline and Profile picture of Luke R MatthewsLuke R Matthews are now friends 2 years, 12 months ago

  • Profile picture of Andrew (Randy) Hicks

    Andrew (Randy) Hicks and Profile picture of Luke R MatthewsLuke R Matthews are now friends 2 years, 12 months ago

  • Load More
Profile Photo Dan Hughes Profile Photo Don Burns

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Randy

Newest Topics

  • Who Has Inspired You? by Charlene Marshall
  • Has anyone seen the film “More Than Ever” about an IPF patient? by Frank Bigley
  • Love Letters by Christie Patient
  • Larry Runyon by Samuel Kirton
  • Home Fill oxygen systems by Natalie Mondor

Recent Replies

  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy
  • Why do IPF patients lose weight and how to help
  • Who Has Inspired You?

Members

Newest | Active | Popular
  • Profile picture of Randy
    Randy
    Active 3 minutes ago
  • Profile picture of Victor Bhatt
    Victor Bhatt
    Active 24 minutes ago
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 31 minutes ago
  • Profile picture of William R.
    William R.
    Active 38 minutes ago
  • Profile picture of George Richard
    George Richard
    Active 50 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen