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janis gorsline posted an update 2 years, 8 months ago

I have 2 hepa filter machines in my apartment to clean the air. I decided to turn off both of them and see if they do make a difference. In a matter of minutes I knew they DID make a difference. I started to cough which I have not done in a long time. I turned them back on and believe it or not I was not coughing. Hope this helps anyone who…[Read more]

Mark Koziol replied 2 years, 8 months ago

Hello Janis, I conquer with you on the importance of an air filter. When mine is off I can tell the difference too. Thank you for sharing. Mark

janis gorsline posted a new activity comment 2 years, 8 months ago

Thanks so much for your kind words. I am glad to be back. Oh, by the way, I am a good person…..lol

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Mark Koziol replied 2 years, 8 months ago

Yes you are Janis, and you are most welcome.

janis gorsline posted an update 2 years, 8 months ago

I want to apologize to everyone that in my last post I said I wouldn’t be back. I realized I need the forum for advice and anything pertaining to IPF.
I hope everyone of my friends forgive me. I really am a good person. Thanks.

Mark Koziol replied 2 years, 8 months ago

Hello Janis, we are glad to have you back. I always thought you were a great contributor to the forum. There is also no need to apologize. I don’t believe you wrote anything hurtful and I know you are a good person. Thanks for engaging in our forum and welcome back Janis!
- janis gorsline replied 2 years, 8 months ago
  
  Thanks so much for your kind words. I am glad to be back. Oh, by the way, I am a good person…..lol
  - Mark Koziol replied 2 years, 8 months ago
    
    Yes you are Janis, and you are most welcome.

janis gorsline posted an update 3 years, 1 month ago

I am doing really good but this is my last message. In my apartment I have two hepa-filters and two salt lamps that keep my apartment dust-free, cleaning the air 24/7.
Also with IPF you should sleep through the night. This helps your immune system. I am not sleeping great at night so I am going to my drugist today to ask his opinion on what…[Read more]

Mark Koziol replied 3 years, 1 month ago

Thank you Janis!

janis gorsline posted an update 3 years, 2 months ago

I was on OFEV 150 mg X2 every day and lately I am finding it is making me feel like I have the flu. I let my Doctor know and I am waiting to see if I can go on a lower dose. 100 mgX2.

Mark Koziol replied 3 years, 2 months ago

Hello Janis, the symptom of nausea is prob what you are feeling. I know I would get that periodically and also chills but no fever. Hope you and your doctor can rectify this situation. Take care, Mark

janis gorsline posted an update 3 years, 3 months ago

I want everyone to know that WEI institutes are a huge SCAM. IF anyone does not believe this is a SCAM please check with the credit bureau and you will know for sure.
Thanks.

Charlene Marshall replied 3 years, 3 months ago

Hi @janis-henry-gorsline, thanks for sharing this…. I couldn’t help but wonder about this myself. Did something happen where you found this information out an unfortunate way? I hope not, but I’d be curious to hear.
Charlene.

janis gorsline posted an update 3 years, 4 months ago

@mark-koziol

Mark Koziol replied 3 years, 4 months ago

Hello Janis, can I help you with something?

janis gorsline posted an update 3 years, 4 months ago

I always go out without a mask on since I was aware that being in crowds or with other family members are fine UNLESS they have a FEVER.
Hope this helps.

Charlene Marshall replied 3 years, 4 months ago

Hi Janis,

Thanks for sharing your experience. I think ultimately it is what each patient is most comfortable with and yes, fever certainly is most concerning to avoid people who have one. What scares me is that people are carriers of so many viruses before they come symptomatic. I didn’t come across anyone that was sick at the PFF Summit (to my…[Read more]

janis gorsline posted a new activity comment 3 years, 4 months ago

Thank you for this information. I appreciate it very much.

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janis gorsline posted an update 3 years, 4 months ago

I have been on OFEV medication for a few months in hopes of extending my life.

Charlene Marshall replied 3 years, 4 months ago

I hope the OFEV is going okay for you so far Janis, and that the side effects are minimal! Fingers crossed it is effective for you. Please let us know 🙂

@janis-henry-gorsline

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