Joseph Collins

For those that may be interested below are the results of all the PFT’s I have had since I was diagnosed. I tried to post it as a spread sheet but can’t seem to get it right so you will need to adapt as I did. Below each date is four stacked numbers. These represent FVC, FEV1, TLC and DLCO. Not the way that I had hoped but the info is there if you…[Read more]

Piet and Leontis, when I was diagnosed the Ofev trial was still ongoing. My pulmonologist asked if I would be interested in joining it. After he told me how rough the side effects were and how expensive it would’ve once approved I opted not to get involved. I refused all medications until 4/17/2018 when it appeared that the disease was on the m…[Read more]

Yesterday, 8/6/19, I had a PFT at my pulmonologist’s office. This was exactly 5 months since my last one, (3/6/19), and the first since I have been receiving laser therapy.

MY MARCH READINGS WERE,       FEC/FEV1/TLC/DLCO = 37/45/61/21

MY AUGUST READINGS WERE,     FEC/FEV1/TLC/DLCO =. 43/51/52/26

“The pulmonologist comment was that I was “REM…[Read more]

@drandyhall Andy, in the first paragraph Of your personal story it states that you were diagnosed in 2004. I believe that to be in error. Please verify date as I was diagnosed in May of 2014 and thought my IPF was paralleling yours.

Regards,

Joe Collins

When first prescribed supplemental oxygen I was hesitant to use it in public. My pulmonologist casually mentioned that he had seen me put on glasses when I need to see something clearly so why should I not go to oxygen when I needed to breath? Nuff said!