@jim-dawson
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Jim Dawson posted an update 1 week, 4 days ago
I just want everyone to know I have been on Micophenolate Mofetil after having tried and faile on the recmmended medicines. Now for two years there are no side effects and my coughing has diminished by85%. I also use a bypap machine. Lungs are getting worse, but everything is tolerable. I am on oxygen 24/7 with up to 7 liters with exertion. Always…[Read more]
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Jim Dawson posted an update 2 months ago
How have people with PF responded to the COVID vaccination?
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Jim Dawson posted an update 6 months, 4 weeks ago
I was switched out on 10/16/20 for a 10-liter constant flow machine. Oxygen levels dropped down to 73% without oxygen and when using 5 liters I stay at 88%. So an increasing amount of oxygen and slightly larger tubing will help for now. I like to be outside and with this new unit, I should be able to keep oxygen in the 90% range. I still have…[Read more]
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Jim Dawson posted an update in the group
Research and Development 1 year, 2 months agoI just want anyone who is on Esberit or Ovey to know I have been on Mycophenolate Mofetil (6) per day. I tried both Ovey and Esberit, but my system couldn’t tolerate them. This pill I am now taking is for people who have had lung transplants primarily. I have not had a transplant, but my doctor decided to try it. My coughing has been reduced by…[Read more]
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Hello Jim, thanks for the update. The mychophenolate is also prescribed for persons who have been diagnosed with PF. This medicine helps with persons who have inflammation in the lungs. Thank you for the suggestion of using collodial silver to combat bacteria. Take care, mark.
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Jim Dawson joined the group
Research and Development 1 year, 2 months ago -
Jim Dawson and
Jim Hooper are now friends 1 year, 3 months ago -
Jim Dawson and
Joseph Collins are now friends 1 year, 3 months ago
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Jim Dawson and
JillT are now friends 1 year, 3 months ago -
Jim Dawson posted a new activity comment 1 year, 7 months ago
I purchased IQAir Medical-Grade Air – Allergies, Pets, Asthma, Odors, Smoke, Pollen, Dust; Swiss Made.
That was about 2 years ago. use it in the bedroom only. I also have 3 dogs. They contribute to breathing issues, but not so as I want to do away with them. I can say I have not seen a significant increase in air quality. Keeping the air furnace f…[Read more] -
Jim Dawson replied to the topic A Recent Difficulty: Waking Up In The Mornings. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
Charlene,
I switched to a ResMed Bi-Pap with an oxygen connector as part of the tubing. Oxygen is set at 2 litres for sleeping. It is able to transmit back to the doctor my sleep results daily. What seems different to me is the amount of water it uses. Very little indeed and it may be my imagination, but a finer misting of water breathing through…[Read more]
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Jim Dawson and
Malcolm Mann are now friends 1 year, 9 months ago
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Jim Dawson replied to the topic A Recent Difficulty: Waking Up In The Mornings. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
I have had PF for several years prior to being diagnosed. I started using a CPAP machine 15 years ago and about 3 years ago switched to a BiPAP. Still had problems breathing throughout the night as I would gag or cough with the mask on. I upgraded to a new Bi-Pap machine in May of 2019. It has made a big difference in the Quality of night sleep.…[Read more]
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Jim Dawson posted a new activity comment 1 year, 9 months ago
Charlene,
Well, I’m still on Mycophenolate Mofetil, but now taking 500 mg-6 tablets per day along with 10 mg of Predisone. That has helped reduce the coughing and to some extent the phlegm buildup in my chest from overnight sleeping. Without using oxygen my levels drop to 79% when walking. So, reluctantly I will wear oxygen. My main gripe about t…[Read more] -
Jim Dawson and
john styles are now friends 1 year, 9 months ago -
Jim Dawson and
Mark Koziol are now friends 1 year, 9 months ago -
Jim Dawson and
Andrew Hall DC are now friends 1 year, 9 months ago
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Jim Dawson and
Glenda Rouland are now friends 1 year, 9 months ago -
Jim Dawson and
Jim McCool are now friends 1 year, 9 months ago
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Jim Dawson and
Linda Williams are now friends 1 year, 9 months ago -
Jim Dawson and
Charlene Marshall are now friends 1 year, 9 months ago-
Charlene,
Well, I’m still on Mycophenolate Mofetil, but now taking 500 mg-6 tablets per day along with 10 mg of Predisone. That has helped reduce the coughing and to some extent the phlegm buildup in my chest from overnight sleeping. Without using oxygen my levels drop to 79% when walking. So, reluctantly I will wear oxygen. My main gripe about t…[Read more]
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