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Jim Dawson

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@jim-dawson

I just want everyone to know I have been on Micophenolate Mofetil after having tried and faile on the recmmended medicines. Now for two years there are no side effects and my coughing has diminished by85%. I also use a bypap machine. Lungs are getting worse, but everything is tolerable. I am on oxygen 24/7 with up to 7 liters with exertion. […] View
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    Jim Dawson replied to the topic Spotlight on the Immunosuppressed.. Finally. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year ago

    I have not had a Covid shot because of the compromised immune system. I also haven’t caught Covid. I am being treated for PF and usually need Oxygen at 7 while sitting and 12 when walking. I only take about 15 steps at a time. I would say isolation is best suited for me.

  • Profile picture of Jim Dawson

    Jim Dawson replied to the topic Spotlight on the Immunosuppressed.. Finally. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year ago

    a I have found the best way to not getting Covid is isolation. Although I recently was hospitalized for PF, not able to get my breath, I was released 3 days later. No changes made on medications. It was described as a flare up of PF.
    12% doesn’t sound like good odds to me as compared to staying away from people. Granted, not all people have th…[Read more]

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    Jim Dawson replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 4 months ago

    James, I cough every morning for 30 minutes and when laying down at night for 20 minutes. My doctor said it is normal, just take Musinex. I take liquid at night and 1 each 1200 milligrams morning and night. I will cough sporadically during the day. I have contributed it to the two positions of getting up and going to bed, irritating the lung…[Read more]

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    Jim Dawson replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 5 months ago

    My pulmonologist put me on mofetil. That seems to get rid of 80% of my cough. As far as the runny nose goes nothing has helped except marginally,  Mucinex. I use a lot of three ply tissues. Ha! I take Mucinex both in pill form and liquid form. I usually only drink 2 teaspoons per day but I take 1200 mg twice per day.

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    Jim Dawson replied to the topic Spotlight on the Immunosuppressed.. Finally. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago

    Has anyone with a suppressed immune system been tested for antibodies after there second shot and what are the results. My brother-in-law said he was tested and his blood work doesn’t show any antibodies growing in his system. If they are not growing, I have to believe a third shot isn’t going to help either. Any comments?

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    Jeff and Profile picture of Jim DawsonJim Dawson are now friends 1 year, 5 months ago

  • Profile picture of Jim Dawson

    Jim Dawson posted a new activity comment 1 year, 5 months ago

    Jeff, I don’t have specific answers, but I have been living with this condition for 7 years and probably longer. I can tell you of my experiences, but enjoy what you can, while you can. Everyone’s situation is slight-fully different, but the end result is always needing more oxygen.

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      Jeff replied 1 year, 5 months ago

      Thanks Jim. It seems there are few answers and many questions. I had a heart attack 11 years ago that should have killed me within hours. Now my lungs want to kill me. It may be wishful thinking but i have a “refuse to lose” attitude with this too. My positive attitude may not make for more years in my life but it will make for more life in my…[Read more]

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    Jim Dawson replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 5 months ago

    Mark, I have been on 10 Mgs for 3 years. It is supposed to help with inflammation. But it did nothing for my cough. I tried both esbriet and ofev. They gave me some relief, but I couldn’t tolerate the side effects. I was put on Mofitil and that has given me the most relief. Your Pulmonary Dr. should evaluate what will work for you.

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    Jim Dawson replied to the topic Choosing a Portable O2 concentrator for air travel in the forum Using Our Forums 1 year, 5 months ago

    John, if you have a portable oxygen unit with a pulse rating of 6, there is no higher unit unless it is a bigger unit, floor model. So I am not sure what you are looking for. If your oxygen rate is dropping to the 80’s with minimal exertion, anything other than continuous flow is your only option.

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    Jim Dawson replied to the topic Choosing a Portable O2 concentrator for air travel in the forum Using Our Forums 1 year, 5 months ago

    John,

    I have used an Inogen 3. It has 5 settings 1-5. No continuous flow. As my needs continue to grow, I have found the floor model giving continuous flow is the only thing I can use. I do use the smaller tank for portabilty, but only for a limited amount of time. As long as you don’t need continuous flow and depending on how much you travel, I…[Read more]

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    Steve Dragoo and Profile picture of Jim DawsonJim Dawson are now friends 1 year, 7 months ago

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    Jim Dawson replied to the topic Do Certain Foods Worsen Breathing for IPF Patients? in the forum Healthy Recipe Sharing 1 year, 7 months ago

    Charlene,

    I can definitely say, most of the fast foods have a negative affect on how I feel afterwards. Especially anything fried. I do well with baked fish, sardines, apples and eggs.I will eat other foods but with little side affects, but anything fried is going to make me feel worse.

    Take care.

    Jim D.

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    Jim Dawson and Profile picture of Bill CarnerBill Carner are now friends 1 year, 7 months ago

  • Profile picture of Jim Dawson

    Jim Dawson replied to the topic Hear rate, BP and Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Hi Steve,

    The VA switched me from Esbriet and Ofev to Micophenolate Mofetil. That worked for me with a significantt improvement in coughing. My son tells me to try super beets powder. All that being said, there is still no way to stop it. I’ll see if I can find your friends request. Take care and it sounds as f the VA is giving you the run a…[Read more]

  • Profile picture of Kathy Phillips

    Kathy Phillips and Profile picture of Jim DawsonJim Dawson are now friends 1 year, 7 months ago

  • Profile picture of janis gorsline

    janis gorsline and Profile picture of Jim DawsonJim Dawson are now friends 1 year, 7 months ago

  • Profile picture of Douglas k Freeman

    Douglas k Freeman and Profile picture of Jim DawsonJim Dawson are now friends 1 year, 7 months ago

  • Profile picture of Jim Dawson

    Jim Dawson replied to the topic Hear rate, BP and Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Hang in there Colleen. Looks like you too have run the gambit of life. Just knowing you are not alone is not always comforting, but it looks to me you are keeping a positive approach. This war against IPF is just that, a war. I hope you are surrounded by people who understand what you are going through.

    Jim Dawson

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    Jim Dawson replied to the topic Hear rate, BP and Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Sorry Joe, but we do play the cards we are dealt with. I know life is nothing not without it trials. I some ways it is bitter sweet. There are many, many places I would have liked to have visited in this world, but not possible. On the other hand I am one of those who believe there is a brighter side after death. That doesn’t diminish the trials o…[Read more]

  • Profile picture of Jim Dawson

    Jim Dawson replied to the topic Hear rate, BP and Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Well BP was normal, but BPM was high as well as oxygen dropping into the 60’s. However, if oxygen stays too low for too long BP will go up. So the first thing to monitor is oxygen. The VA doctor had no other solutions for me and decided to see if there was an alternative to current medications. I have not seen a cardiologist as of yet. This i…[Read more]

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