Malcolm Mann

Last Name


Short Bio

Fellow coughers

I am 68h & 3/4, male and have been very fit most of my life, I was running until Jan this year until arthritis in my feet stopped me running, but I’m still ocean swimming several times a week, albeit with a wet suit and an effective but lazy stroke ( I’m still competitive in my agegroup)

 My impairment is low, my lung function still within normal, but I’m still coughing, after 20 years, and about 10 doctors and 4 specialists. Since diagnosis of PF in 2015 my condition and lung function has declined slowly.

I have recently been referred to the lung clinic in Prince Alfred Hospital in Sydney , where either an open lung biopsy, or going straight onto anti fibrosis meds have been proposed.

Interestingly with the lung biopsy they are requesting I volunteer for an additional procedure, a new bronchioscope method to ascertain if the less invading bronchioscope procedure can duplicate the open lung biopsy result.

Still not sure which way to go.



Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Pulmonary specialist, South Coast NEW Australia, Interstitiall lung disease clinic Prince Alfred Hospital Sydney

Current medication regimen

About to start

Lung transplantation status


Supplemental Oxygen


Best advice for PF symptom management

My symptoms are only at the annoying stage, I have been coughing for 20 years despite several attempts to discover why, it was only in 2015 that PF became noticable.

Are you currently taking an anti-fibrotic medication?


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