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I am 68h & 3/4, male and have been very fit most of my life, I was running until Jan this year until arthritis in my feet stopped me running, but I’m still ocean swimming several times a week, albeit with a wet suit and an effective but lazy stroke ( I’m still competitive in my agegroup)
My impairment is low, my lung function still within normal, but I’m still coughing, after 20 years, and about 10 doctors and 4 specialists. Since diagnosis of PF in 2015 my condition and lung function has declined slowly.
I have recently been referred to the lung clinic in Prince Alfred Hospital in Sydney , where either an open lung biopsy, or going straight onto anti fibrosis meds have been proposed.
Interestingly with the lung biopsy they are requesting I volunteer for an additional procedure, a new bronchioscope method to ascertain if the less invading bronchioscope procedure can duplicate the open lung biopsy result.
Still not sure which way to go.
|Type of Diagnosis||
PF of known aetiology
|Treatment / Medical Facility||
Pulmonary specialist, South Coast NEW Australia, Interstitiall lung disease clinic Prince Alfred Hospital Sydney
|Current medication regimen||
About to start
|Lung transplantation status||
|Best advice for PF symptom management||
My symptoms are only at the annoying stage, I have been coughing for 20 years despite several attempts to discover why, it was only in 2015 that PF became noticable.
|Are you currently taking an anti-fibrotic medication?||
|How did you find us?||
PF News Website