Following closely:

 

I’m disgusted with myself, the overwhelming weakness, shakes, aches, sweats, fatigue.
Starting today, I’m going to stop this laying around, feeling sorry for myself.
Youtube has many excellent gentle yin yoga sessions, by Kassandra, as long or as short as I wish.  Also morning and evening ones.
YIN yoga is simply lying on… Read more

Yes, I have one, I got it on Amazon.  It’s a neat little thing, red.  I push it or pull it.  When shopping, I can lift the whole thing and put it in my shopping cart.

I’m female, and old.  I find the weight of the POC too much for on the shoulder, ok in a back pack but hard to get at to turn off and on.  But the trolley makes it all so much… Read more

I’m 78, diagnosed with ILD PF, and have just got over Covid.  What a nasty ugly little virus that is!  So five days mostly spent in bed, and five days getting over the fatigue that lingers.  I’m on 2l for exertion but I haven’t needed oxygen much for a while now. And I didn’t use much while I was sick.  I’m back out in the garden, enjoying… Read more

I can’t add anything to this thread, except:

I’ve just returned from the UK, I live in Ontario, canada.

I took the OxyGoFit POC, with a back up battery.
Neither there nor back did I need it, though I used it a bit for boarding, and disembarking.

No change in my O2 levels at any time.

But in on 2l for exertion, not needed at… Read more

I’d stall on the meds.  That’s what I’m doing.  I should have started on steroids but I’ve a trip booked to UK tomorrow, for two weeks, and I definitely don’t want any potential side effects to spoil my time there.
I will start when I get back.

I might not take that chance if my disease ( ILD PF) was more advanced.  But I’m on oxygen 2l… Read more

I’m lucky ….. I have a cleaner, who is also a friend.  (I’m old so I can afford her.)
But I try to do some myself ….. changing sheets!  What a pain that is, leaving me breathless and exhausted.  Then shaking hands for a while after I recover.

WHEN do you turn to your oxygen?  Ok, if I use it, I feel much better.

BUT … if I sit for a… Read more

I’m so with you, Kim.  I want to make plans.  I’m a person who needs to make plans.  Otherwise I worry worry worry.  But I can’t get a straight answer.

I know I’ve only recently been diagnosed, but that doesn’t mean that’s when the PF started!  Not at all, I remember symptoms (SOB, which I dismissed, 2-3 years ago).  This year it’s got worse… Read more