My wife and I are looking for options to plug my home concentrator into overnight in the event of a power outage. We don’t need/want a fuel driven generator. I have POC but batteries don’t last long enough for continuous flow while sleeping. Outages don’t usually last long here – just some insurance for the overnight hours

Not sure how much…

Read more

Thanks for your post Linda. I’m taking a med for GERD. I don’t think it’s that. My doc doesn’t think it’s that other than the annoying cough that comes with IPF. I appreciate your response. Thanks!

I have 2 good friends I play music with who are really into Americana and blue grass. They understand, even my frustration with it while playing. Like you, they continue to encourage me. Thanks!

Edit: I’m here to ask….

Hi everyone,

I’ve been dealing with IPF for about 2 years now but it’s been about a year or more since the coughing has seriously affected my “talking” voice and more so, my singing voice.  I have been playing guitar and singing for 50 years now.  Even given the acknowledgement of my age, I have lost my ability to sing the songs I have sung… Read more

Thanks everyone for your insights into my question.  We had a chance to acquire a tempurpedic bed and took it.  Elevates head and legs.  I will try it out to see if it helps with my sleeping.  This forum is a great place to ask questions and find answers.  Thanks so much to the administrators!

Hi everyone.  I’m almost 2 years into my IPF diagnosis.  Feeling okay. Only recently has my pulmonologist prescribed 2l of oxygen for sleeping.  During the day I feel okay, sometimes getting winded, but recover quickly.  Basically, doing well.  Traveling now.  My question centers around what to expect.  Have others found that sleeping with your… Read more

Thanks to everyone for responding to my questions about traveling overseas.  I’m still navigating the whole process here and I’m looking forward to traveling as much as we can.

Thanks, Christie.  I’m a patient of a local doc here in Reno.  After being seen by IPF doc at UC Davis in Sacramento, the local doc has ties to him and was recommended.  Much more convenient.  Still navigating my current condition and how trips overseas should be handled.

I signed up for this group about 1.5 years ago when first diagnosed with IPF.  My O2 level was always OK up until about a month ago with my last PFT.  Now, I use oxygen for sleeping (set at 1.5L) and I only use it during the day when my O2 level is down, usually winded from working outside or some other form of activity.  Most of the day I… Read more