By the way, I was referred to the mayo clinic because my first pulmonologist, who diagnosed me did not agree with other doctors trying to determine the cause of my pf and what next steps should be taken.

Yes, I am currently being seen at the mayo clinic in Phoenix and I have been under their care for the last five years. I had my lung biopsy done there which confirmed my diagnosis and I’ve had no progression and I’m very happy with the care I get there.

Hi Nina, I too, was diagnosed in 2018 and have had very little to no progression over the last four years. I found out I had IPF after a CT scan of my heart showed a secondary finding on my lung and then did a lung biopsy to confirm the diagnosis but other than that the only symptoms I had was shortness of breath, if I was taking the stairs… Read more