@anthonydegidio
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ajd posted an update 2 years, 11 months ago
@charlene-marshall
Hello Charlene,
You had reported an herbal known as Pulmonary rehabilitation mixture (PRM), also known as Fei-Fu-Kang (FFK). As you may recall it has been proven to ameliorate pulmonary fibrosis. https://www.ncbi.nlm.nih.gov/pubmed/28615638
and nature.com.
I had obtained the herbal ingredients to make it but it was too…[Read more] -
ajd replied to the topic Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts 3 years, 1 month ago
I heard the drug was marginally effective. i better do my research again.
Tony
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ajd replied to the topic Sodium Pyruvate in the forum Clinical Trials 3 years, 7 months ago
The report at https://www.emphycorp.com/pulmonary-fibrosis-treatment
does not seem to indicate that it slows progression of pulmonary fibrosis but that it improves symptoms, correct me if I am wrong.
looks like you can buy it on Amazon for $10.00.
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ajd and
Andrew Hall DC are now friends 3 years, 7 months ago
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ajd replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 8 months ago
Good luck Lorraine! Sounds like fun. I have picked up my guitar again after many years and it is difficult. Even more difficult than playing is trying to sing along with it. I have very little air in my lungs and can only get out a few words. Then I have to get a couple of breaths in before I can do a few more words and by then the song is far…[Read more]
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ajd and
Denny are now friends 3 years, 9 months ago
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ajd and
Mark Koziol are now friends 3 years, 12 months ago
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ajd replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago
Charlene,
I purchased the herbs requred to make the PRM mxture but it is far too complicated for me to make the mxture itself. I did not pay attention to it at first but upon closer inspection saw that it was not a simple matter of sticking some weeds in the blender then boiling them in water.
As the instructions in the study stated it…[Read more]
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ajd replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago
I was asked about a source to buy tcm herbals. I have purchased some of them from East Earth Trade Winds, http://www.eastearthtrade.com/
It turns out that mixing up this stuf into a liquid or suitable form to make tea from is not simple and you will probably need a lab or whats known as a compounding pharmacy to make what you need. Na…[Read more]
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Steve Dragoo and
ajd are now friends 4 years, 1 month ago
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ajd replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago
There are many Chinese herbal formulas which have produced positive results for IPF in mice studies including but not limited to:
PRM, also known as Fei-Fu-Kang
Jinshui Huanxian formula (JHF)
Xuebijing (XBJ)
YKF Yangqing Kangxian Formula
Buzhong Yiqi formula
Yu Ping Feng formula
PROLUNG
PMO14 . PM014 is a novel herb extract derived from the…[Read more] -
ajd replied to the topic laser therapy in the forum Pulmonary Fibrosis Awareness & Advocacy 4 years, 1 month ago
Thanks so much John! Please keep us informed with progress as I hope others using cold laser therapy will also do. This is a very interesting thread and could be the most important one to date.
For those looking for the Egyptian study Low-level laser therapy in chronic obstructive lung disease study referred to it can be found…[Read more]
@anthonydegidio
Hi Tony — thanks for circling back and writing to us about this. I know it will peak others’ curiosity … do you mind letting us know how you make out with the order, and whether or not you feel it helps? The more information the better. Thanks for sharing and wishing you best of luck with it.
Charlene.