Pulmonary Fibrosis News Forums | ajd | Activity https://pulmonaryfibrosisnews.com/forums/members/anthonydegidio/activity/ Activity feed for ajd. Sat, 11 Apr 2026 15:01:47 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 46e83f92cfad0d7064c6a99bc25b1669 ajd posted an update: @charlene-marshall Hello Charlene, You had reported […] https://pulmonaryfibrosisnews.com/forums/activity/p/19414/ Sat, 11 Apr 2020 10:03:55 -0500 @charlene-marshall
Hello Charlene,
You had reported an herbal known as Pulmonary rehabilitation mixture (PRM), also known as Fei-Fu-Kang (FFK). As you may recall it has been proven to ameliorate pulmonary fibrosis. https://www.ncbi.nlm.nih.gov/pubmed/28615638
and nature.com.
I had obtained the herbal ingredients to make it but it was… Read more

]]> 1 7419b10af842fd1325e56b9c0f55fad6 ajd replied to the discussion Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/nearly-40-of-ipf-patinets-in-the-us-not-prescribed-esbriet-or-ofev-despite-effectiveness-study-reports/#post-23154 Thu, 27 Feb 2020 06:28:01 -0600 Reply to Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports

I heard the drug was marginally effective.  i better do my research again.

Tony

]]> ece93eed679af32d0f8450a34906e8ee ajd replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-20992 Sat, 24 Aug 2019 14:33:13 -0500 Reply to Sodium Pyruvate

The report at https://www.emphycorp.com/pulmonary-fibrosis-treatment 

does not seem to indicate that it slows progression of pulmonary fibrosis but that it improves symptoms, correct me if I am wrong.

looks like you can buy it on Amazon for $10.00.

 

 

]]> 42d0d15ff0e74c91bead70d304ecbe6f ajd and Andrew Hall DC are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/14363/ Sat, 10 Aug 2019 15:51:49 -0500 0 78007cb0f4373baa3891107da0732752 ajd replied to the discussion Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/harmonica-class-pulmonary-rehab/#post-20521 Sat, 27 Jul 2019 13:12:13 -0500 Reply to Harmonica Class / Pulmonary Rehab

Good luck Lorraine!  Sounds like fun.  I have picked up my guitar again after many years and it is difficult.  Even more difficult than playing is trying to sing along with it.  I have very little air in my lungs and can only get out a few words. Then I have to get a couple of breaths in before I can do a few more words and by then the song is… Read more

]]> c6b9a8951855b5f4430877c33a9d5ecd ajd and Denny are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/13064/ Fri, 14 Jun 2019 21:08:26 -0500 0 3123e74245952503732d29bf72bb839c ajd and Mark Koziol are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/10833/ Tue, 02 Apr 2019 01:20:03 -0500 0 cf3e7a233b3fd07cf2b5bc56fcc84fa6 ajd replied to the discussion Herbal Remedies & IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/herbal-remedies-ipf/#post-16902 Wed, 20 Feb 2019 09:06:07 -0600 Reply to Herbal Remedies & IPF

Charlene,

I purchased the herbs requred to make the PRM mxture but it is far too complicated for me to make the mxture itself.  I did not pay attention to it at first but upon closer inspection saw that it was not a simple matter of sticking some weeds in the blender then boiling them in water.

As the instructions in the study stated… Read more

]]> 8cd8b984fb470d21e5ff290b873795d8 ajd replied to the discussion Herbal Remedies & IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/herbal-remedies-ipf/#post-16858 Wed, 20 Feb 2019 02:18:13 -0600 Reply to Herbal Remedies & IPF

I was asked about a source to buy tcm herbals.  I have purchased some of them from East Earth Trade Winds,  http://www.eastearthtrade.com/

It turns out that mixing up this stuf into a liquid or suitable form to make tea from is not simple and you will probably need a lab or whats known as a compounding pharmacy to make what you need. … Read more

]]> 63917a26ad41c733a303ea058bab5335 ajd replied to the discussion Herbal Remedies & IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/herbal-remedies-ipf/#post-16848 Mon, 18 Feb 2019 06:21:54 -0600 Reply to Herbal Remedies & IPF

There are many Chinese herbal formulas which have produced positive results for IPF in mice studies including but not limited to:

PRM, also known as Fei-Fu-Kang
Jinshui Huanxian formula (JHF)
Xuebijing (XBJ)
YKF Yangqing Kangxian Formula
Buzhong Yiqi formula
Yu Ping Feng formula
PROLUNG
PMO14 . PM014 is a novel herb extract derived from… Read more

]]> 6d1ba16236e1484beeb7815d416192ac ajd replied to the discussion laser therapy in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy/#post-16829 Sun, 17 Feb 2019 20:25:25 -0600 Reply to laser therapy

Thanks so much John! Please keep us informed with progress as I hope others using cold laser therapy will also do. This is a very interesting thread and could be the most important one to date.

For those looking for the Egyptian study Low-level laser therapy in chronic obstructive lung disease study referred to it can be… Read more

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