Thank you for sharing, Mark & other posters!

Questions..

1) How long post surgery before you’re able to go out (with or without mask)?

2) What determines if you get a single or double transplant?

3) How well does one lung do?  My father had 1/2 of one lobe removed due to lung cancer.  He lived for many years, however, his breathing was… Read more

Hello,

I was diagnosed with IPF in 9/18; after living with COPD/emphysema for some time; so a double whammy for me.  I’m 65 years young, live in Indianapolis, receiving care from my wonderful pulmonologist, a cardiologist, pain doc (for previous chronic pain issues), and my primary care, all local in Indy.  I’m into my third week of pulmonary… Read more

As part of my initial intro to Pulmonary Rehab last month, I had to fill out a questionnaire about stress, anxiety & depression.  I answered NO to wanting to hurt myself, but all other questions came up showing “you bet.. I am absolutely depressed” ..go figure!!! LOL  At age 64, last September, 2018 I was driving & active (as active as I was… Read more

Interesting topic.. thank you all!

Had my first & so far my only 6 MW on 12/24/2018, as I desperately wanted to leave the hospital to enjoy Christmas with family.  I was first diagnosed with IPF on 9/25/18, feeling fine until a COPD exacerbation in mid December landed me in-patient for a week.  My 6MW told them I could go home, but only with o2… Read more

Thanks, Charlene.  I will absolutely report back with what my pulmonologist says.

Dr. Oz had a segment on hair loss, which has been a real problem for me for years now.  I figured it was from the various meds I take.  PCP said my thyroid.  Interesting to now hear it’s also a side of insufficient Vitamin D.  Be nice to learn it cures IPF.  We… Read more

Very interesting, Charlene.  My primary care informed me that my Vitamin D is extremely low, along with B12, and thyroid.  She attributed my increased fatigue to this (all prior to IPF diagnosis).  I too will discuss this with my pulmonologist next month.

Thank you!

Barbara

I’m new here, so don’t really understand how this works, but I am thrilled to have a forum like this to share how we cope with IPF.  Thank you to Charlene & other moderators/admins (?) for doing all that you do to keep us organized!!! 👍

I will definitely complete the survey.

Have a great day, everyone!! 😊