Barbara Schwenzer

Thank you for sharing, Mark & other posters!

Questions..

1) How long post surgery before you’re able to go out (with or without mask)?

2) What determines if you get a single or double transplant?

3) How well does one lung do?  My father had 1/2 of one lobe removed due to lung cancer.  He lived for many years, however, his breathing was d…[Read more]

Hello,

I was diagnosed with IPF in 9/18; after living with COPD/emphysema for some time; so a double whammy for me.  I’m 65 years young, live in Indianapolis, receiving care from my wonderful pulmonologist, a cardiologist, pain doc (for previous chronic pain issues), and my primary care, all local in Indy.  I’m into my third week of pulmonary r…[Read more]

As part of my initial intro to Pulmonary Rehab last month, I had to fill out a questionnaire about stress, anxiety & depression.  I answered NO to wanting to hurt myself, but all other questions came up showing “you bet.. I am absolutely depressed” ..go figure!!! LOL  At age 64, last September, 2018 I was driving & active (as active as I was g…[Read more]

Interesting topic.. thank you all!

Had my first & so far my only 6 MW on 12/24/2018, as I desperately wanted to leave the hospital to enjoy Christmas with family.  I was first diagnosed with IPF on 9/25/18, feeling fine until a COPD exacerbation in mid December landed me in-patient for a week.  My 6MW told them I could go home, but only with o2 a…[Read more]

Thanks, Charlene.  I will absolutely report back with what my pulmonologist says.

Dr. Oz had a segment on hair loss, which has been a real problem for me for years now.  I figured it was from the various meds I take.  PCP said my thyroid.  Interesting to now hear it’s also a side of insufficient Vitamin D.  Be nice to learn it cures IPF.  We co…[Read more]

Very interesting, Charlene.  My primary care informed me that my Vitamin D is extremely low, along with B12, and thyroid.  She attributed my increased fatigue to this (all prior to IPF diagnosis).  I too will discuss this with my pulmonologist next month.

Thank you!

Barbara

I’m new here, so don’t really understand how this works, but I am thrilled to have a forum like this to share how we cope with IPF.  Thank you to Charlene & other moderators/admins (?) for doing all that you do to keep us organized!!! 👍

I will definitely complete the survey.

Have a great day, everyone!! 😊