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Barbara Schwenzer

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@barbara

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    Barbara Schwenzer's profile was updated 3 years, 4 months ago

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer replied to the topic After Care Requirements for a Lung Transplant in the forum Pre/Post Lung Transplant 3 years, 8 months ago

    Thank you for sharing, Mark & other posters!

    Questions..

    1) How long post surgery before you’re able to go out (with or without mask)?

    2) What determines if you get a single or double transplant?

    3) How well does one lung do?  My father had 1/2 of one lobe removed due to lung cancer.  He lived for many years, however, his breathing was d…[Read more]

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer's profile was updated 3 years, 8 months ago

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 3 years, 8 months ago

    Hello,

    I was diagnosed with IPF in 9/18; after living with COPD/emphysema for some time; so a double whammy for me.  I’m 65 years young, live in Indianapolis, receiving care from my wonderful pulmonologist, a cardiologist, pain doc (for previous chronic pain issues), and my primary care, all local in Indy.  I’m into my third week of pulmonary r…[Read more]

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    Barbara Schwenzer replied to the topic Addressing Anxiety Following a PF Diagnosis. in the forum Upcoming Medical Appointments: Q&As 3 years, 8 months ago

    As part of my initial intro to Pulmonary Rehab last month, I had to fill out a questionnaire about stress, anxiety & depression.  I answered NO to wanting to hurt myself, but all other questions came up showing “you bet.. I am absolutely depressed” ..go figure!!! LOL  At age 64, last September, 2018 I was driving & active (as active as I was g…[Read more]

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    Barbara Schwenzer replied to the topic Six-Minute Walk Tests in the forum Upcoming Medical Appointments: Q&As 3 years, 11 months ago

    Interesting topic.. thank you all!

    Had my first & so far my only 6 MW on 12/24/2018, as I desperately wanted to leave the hospital to enjoy Christmas with family.  I was first diagnosed with IPF on 9/25/18, feeling fine until a COPD exacerbation in mid December landed me in-patient for a week.  My 6MW told them I could go home, but only with o2 a…[Read more]

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    Barbara Schwenzer replied to the topic New Study Correlates to Forum Discussion re: Vitamin D Deficiency in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago

    Thanks, Charlene.  I will absolutely report back with what my pulmonologist says.

    Dr. Oz had a segment on hair loss, which has been a real problem for me for years now.  I figured it was from the various meds I take.  PCP said my thyroid.  Interesting to now hear it’s also a side of insufficient Vitamin D.  Be nice to learn it cures IPF.  We co…[Read more]

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer replied to the topic New Study Correlates to Forum Discussion re: Vitamin D Deficiency in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago

    Very interesting, Charlene.  My primary care informed me that my Vitamin D is extremely low, along with B12, and thyroid.  She attributed my increased fatigue to this (all prior to IPF diagnosis).  I too will discuss this with my pulmonologist next month.

    Thank you!

    Barbara

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer replied to the topic PF Online Support Group: Update in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 2 months ago

    I’m new here, so don’t really understand how this works, but I am thrilled to have a forum like this to share how we cope with IPF.  Thank you to Charlene & other moderators/admins (?) for doing all that you do to keep us organized!!! 👍

    I will definitely complete the survey.

    Have a great day, everyone!! 😊

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer posted a new activity comment 4 years, 2 months ago

    Thank you, Charlene! So happy to have found this place. 😊

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    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 2 months ago

      I am so glad you’re here as well @barbara! There are lots of wonderful people on this forum, please feel free to reach out anytime. It’s quite a special “community”. Take care and if you’re anywhere in the North (like I am in Canada), stay warm!!

      Charlene 🙂

  • Profile picture of Barbara Schwenzer

    Barbara Schwenzer became a registered member 4 years, 2 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 2 months ago

      Thanks for joining the PF forums Barbara. Welcome!

      • Profile picture of Barbara Schwenzer
        Barbara Schwenzer replied 4 years, 2 months ago

        Thank you, Charlene! So happy to have found this place. 😊

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 4 years, 2 months ago

          I am so glad you’re here as well @barbara! There are lots of wonderful people on this forum, please feel free to reach out anytime. It’s quite a special “community”. Take care and if you’re anywhere in the North (like I am in Canada), stay warm!!

          Charlene 🙂

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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