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Barbara Schwenzer's profile was updated 3 years, 7 months ago
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Barbara Schwenzer replied to the topic After Care Requirements for a Lung Transplant in the forum Pre/Post Lung Transplant 3 years, 10 months ago
Thank you for sharing, Mark & other posters!
Questions..
1) How long post surgery before you’re able to go out (with or without mask)?
2) What determines if you get a single or double transplant?
3) How well does one lung do? My father had 1/2 of one lobe removed due to lung cancer. He lived for many years, however, his breathing was d…[Read more]
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Barbara Schwenzer's profile was updated 3 years, 11 months ago
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Barbara Schwenzer replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 3 years, 11 months ago
Hello,
I was diagnosed with IPF in 9/18; after living with COPD/emphysema for some time; so a double whammy for me. I’m 65 years young, live in Indianapolis, receiving care from my wonderful pulmonologist, a cardiologist, pain doc (for previous chronic pain issues), and my primary care, all local in Indy. I’m into my third week of pulmonary r…[Read more]
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Barbara Schwenzer replied to the topic Addressing Anxiety Following a PF Diagnosis. in the forum Upcoming Medical Appointments: Q&As 3 years, 11 months ago
As part of my initial intro to Pulmonary Rehab last month, I had to fill out a questionnaire about stress, anxiety & depression. I answered NO to wanting to hurt myself, but all other questions came up showing “you bet.. I am absolutely depressed” ..go figure!!! LOL At age 64, last September, 2018 I was driving & active (as active as I was g…[Read more]
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Barbara Schwenzer replied to the topic Six-Minute Walk Tests in the forum Upcoming Medical Appointments: Q&As 4 years, 1 month ago
Interesting topic.. thank you all!
Had my first & so far my only 6 MW on 12/24/2018, as I desperately wanted to leave the hospital to enjoy Christmas with family. I was first diagnosed with IPF on 9/25/18, feeling fine until a COPD exacerbation in mid December landed me in-patient for a week. My 6MW told them I could go home, but only with o2 a…[Read more]
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Barbara Schwenzer replied to the topic New Study Correlates to Forum Discussion re: Vitamin D Deficiency in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 3 months ago
Thanks, Charlene. I will absolutely report back with what my pulmonologist says.
Dr. Oz had a segment on hair loss, which has been a real problem for me for years now. I figured it was from the various meds I take. PCP said my thyroid. Interesting to now hear it’s also a side of insufficient Vitamin D. Be nice to learn it cures IPF. We co…[Read more]
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Barbara Schwenzer replied to the topic New Study Correlates to Forum Discussion re: Vitamin D Deficiency in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 3 months ago
Very interesting, Charlene. My primary care informed me that my Vitamin D is extremely low, along with B12, and thyroid. She attributed my increased fatigue to this (all prior to IPF diagnosis). I too will discuss this with my pulmonologist next month.
Thank you!
Barbara
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Barbara Schwenzer replied to the topic PF Online Support Group: Update in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 4 months ago
I’m new here, so don’t really understand how this works, but I am thrilled to have a forum like this to share how we cope with IPF. Thank you to Charlene & other moderators/admins (?) for doing all that you do to keep us organized!!! 👍
I will definitely complete the survey.
Have a great day, everyone!! 😊
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Barbara Schwenzer posted a new activity comment 4 years, 4 months ago
Thank you, Charlene! So happy to have found this place. 😊
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I am so glad you’re here as well @barbara! There are lots of wonderful people on this forum, please feel free to reach out anytime. It’s quite a special “community”. Take care and if you’re anywhere in the North (like I am in Canada), stay warm!!
Charlene 🙂
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Barbara Schwenzer became a registered member 4 years, 4 months ago
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Thanks for joining the PF forums Barbara. Welcome!
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Thank you, Charlene! So happy to have found this place. 😊
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I am so glad you’re here as well @barbara! There are lots of wonderful people on this forum, please feel free to reach out anytime. It’s quite a special “community”. Take care and if you’re anywhere in the North (like I am in Canada), stay warm!!
Charlene 🙂
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