@betty-edwards
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Betty Edwards replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 2 years, 6 months ago
I recently started taking the statin Crestor. How do I find out if it is the good or bad kind for ipf?
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Betty Edwards replied to the topic Homeopathy Treatment of IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
Michael,
Not everyone has side effects from Esbriet. I’ve been on it for a couple of years with virtually no side effects. Give it a try before you decide.
Betty
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Betty Edwards replied to the topic Pulmonary Rehab May Improve Exercise Capacity and Quality of Life in IPF Patients in the forum Flash Briefings & Podcasts 3 years, 1 month ago
I’m in the middle of my pulmonary rehab. Twice a week for 13 weeks. I find it helpful. I’m not on oxygen at home but my levels drop to the low 80s quite rapidly if I walk faster than 2 mph or go up hill. They put me on 2L of ox while I’m on the treadmill and I can walk 3mph without dropping below 89.
Basically PR is improving my physi…[Read more]
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Betty Edwards posted a new activity comment 3 years, 4 months ago
Thanks Marsha, i’ll Start in May.
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Betty Edwards replied to the topic Laser Therapy Part III in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 4 months ago
Many of the Laser Therapy posts on this forum talk about a cold laser. I talked to a Tucson Chiropractor named Dr Parks who has a K 4 laser. He says it is a hot laser that creates heat. He also says there is no Class 4 laser by K that is cold. Dr Hall, can you please clarify. I don’t want to start treatment with the wrong kind of laser.
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Betty Edwards and
Andrew Hall DC are now friends 3 years, 4 months ago
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Betty Edwards posted a new activity comment 3 years, 4 months ago
John, I’ve been taking Esbriet for over a year. No bad side effects. It’s working. Try it you can always quit if you don’t like it or switch to Ofev. My doc had me so worried about the side effects that I almost did not try it. Glad I did. Good luck.
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Thanks Betty. You are the second person today giving me some positive feedback with their experience with Esbriet. Maybe God’s trying to tell me something? All the best to you & thank you….
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Betty Edwards's profile was updated 4 years, 5 months ago
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Betty Edwards became a registered member 4 years, 5 months ago
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Hi Betty, thanks for joining the PF forums and welcome!
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Hi Marsha,
You know, it’s posts like yours that make all my effort SO worthwhile! I can’t even begin to tell you how happy I am to know that things have changed for the better for you! I will be anxious to hear how your recent PFT compared to the last one…….
Blessings,
Andy
I couldn’t agree with you more @drandyhall! I am so happy for you @marshaharris and so glad you’re able to do more around the house, even with your 02 and most importantly of all, that you feel your life is more fulfilling than ever before. Thank you so much for sharing this with all of us; it warmed my heart and I am so grateful that you’re…[Read more]
@drandyhall
@charleen-marshall
Happy Friday, Charlene and Andy! Thank you for your kind words re: my post to Betty last week…you guys rock!!
All the possible positive effects of Class IV Laser therapy showed up in the numbers of my PFT! BAM!! FVC up to 82 from 76 a year ago and FEV up to 86 from 78! Improved oxygenation? Yes!
I am…[Read more]
Happy Friday to you!
I am totally thrilled that you have seen good changes in your PFT. AND it’s very substantial change at that!!! The good thing is that you are feeling improved and able to do more, have improved quality of life, but it is substantiated in your test results. So GLAD you started laser therapy!
God Bless!
Andy
Thank you, Andy…nothing like positive substantiation!! Blessings to you!