Pulmonary Fibrosis News Forums | Bill | Activity https://pulmonaryfibrosisnews.com/forums/members/bill-mckee/activity/ Activity feed for Bill. Tue, 07 Apr 2026 13:21:14 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 924f8f5f4b2a3f34f7678ca485d8083d Bill replied to the discussion Is ipf genetic? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/is-ipf-genetic/#post-32702 Fri, 22 Jul 2022 17:26:05 -0500 Reply to Is ipf genetic?

It seems to me that there IS a genetic component to IPF, at least is some cases.

My mother passed from it, along with 2 of my brothers.  Then I was diagnosed with it… at age 64.  My mother and brothers lived till age 55 or so.

My mother’s father passed from what regarded as complications of emphysema.  In those days,I don’t think they had… Read more

]]> c10e024e5e83d083f40e6436b5da5d5d Bill posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17558/#acomment-17733 Sun, 02 Feb 2020 22:09:48 -0600 HEllo Yvonne: I began taking OFEV in Jan. 2018. I quickly learned that you don’t take it without eating!! While it’s not foolproof, I quickly correlated cramping and nausea with carelessly taking the medication without food!

No hair loss.

Progression has been “slow”, but steady now. Three years after diagnosis, it’s clear that I am… Read more

In reply to - Yvonne posted an update @bill-mckee Hello Bill I was just diagnosed with genetic tests confirming the reason behind my Pulmonary Fibrosis. I chose OFEV over Esbriet due to having 2 pills a day to survive […] ]]> d1b3a596eda0c57aaf5a2911b2096d4a Bill replied to the discussion Do you take OFEV? Take our poll! in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/take-ofev-take-poll/#post-13515 Tue, 17 Jul 2018 18:39:51 -0500 Reply to Do you take OFEV? Take our poll!

Yes.. since January 2017.   So far, progression seems to be very minor.  No idea if it has anything to do with OFEV though…

]]> ccd44c39acbfcb87d2991e2ed0341dc8 Bill replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-11118 Tue, 13 Feb 2018 01:19:44 -0600 Reply to Starting Ofev

I was diagnosed with IPF in Nov, 2016.  Early stage.  Wife complained about my coughing and brought it to the attention of my doctor.  He listened to my lungs and heard the “saran wrap” sounds and sent me to pulmanologist who did all the scans, etc and diagnosed me with IPF.   The doctors who attended my brothers and mother all claimed there is… Read more

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