Bill replied to the topic Is ipf genetic? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago
It seems to me that there IS a genetic component to IPF, at least is some cases.
My mother passed from it, along with 2 of my brothers. Then I was diagnosed with it… at age 64. My mother and brothers lived till age 55 or so.
My mother’s father passed from what regarded as complications of emphysema. In those days,I don’t think they had th…[Read more]
Bill posted a new activity comment 3 years, 3 months ago
HEllo Yvonne: I began taking OFEV in Jan. 2018. I quickly learned that you don’t take it without eating!! While it’s not foolproof, I quickly correlated cramping and nausea with carelessly taking the medication without food!
No hair loss.
Progression has been “slow”, but steady now. Three years after diagnosis, it’s clear that I am less…[Read more]
Bill replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 4 years, 10 months ago
Yes.. since January 2017. So far, progression seems to be very minor. No idea if it has anything to do with OFEV though…
Bill replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 5 years, 3 months ago
I was diagnosed with IPF in Nov, 2016. Early stage. Wife complained about my coughing and brought it to the attention of my doctor. He listened to my lungs and heard the “saran wrap” sounds and sent me to pulmanologist who did all the scans, etc and diagnosed me with IPF. The doctors who attended my brothers and mother all claimed there is n…[Read more]
Thank you very much Bill. I’ve not been on this site for quite awhile and just now saw your message, and it reminded me that I can do everything I can to fight this disease BUT, ultimately God is control of everything, he’s not forsaken me, and He is aware of everything I’m facing!
After just 3 weeks on OFEV, it caused Hypothyroidism for me an…[Read more]