Pulmonary Fibrosis News Forums | birdwatcher666 | Activity https://pulmonaryfibrosisnews.com/forums/members/birdwatcher666/activity/ Activity feed for birdwatcher666. Tue, 21 Apr 2026 13:38:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 6d6a265bca20253fcf8eacaf644585bd birdwatcher666 replied to the discussion Serious Side effects of OFEV in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/serious-side-effects-of-ofev/#post-37652 Mon, 18 Nov 2024 11:01:03 -0600 Reply to Serious Side effects of OFEV

I have had a diverticulitis attack for the last several weeks and am just now able to eat a soft diet instead of liquid diet. Went off Ofev immediately after CT scan showed the condition. Have had one previous attack in September 2020 and was hospitalized then. This time I didn’t go to the hospital because my husband is blind and I managed it…

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]]> 015a18622fd3d19c1a413f1964bad06a birdwatcher666 replied to the discussion 1st 30 days of ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/1st-30-days-of-ofev/#post-37454 Fri, 27 Sep 2024 12:35:31 -0500 Reply to 1st 30 days of ofev

About the bathroom issues: are you doing the high protein food/drinks before and after each Ofev pill? That has helped me so far (3 months). I have gathered the following ideas from searching various Facebook groups regarding IPF. They are peanut butter, egg, cinnamon bread and for me, nitrite free chicken. I end up with 370 calories each time…

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]]> bfd673b00b7ba7862e036b56d8567147 birdwatcher666 replied to the discussion Drug Induced IPF (unknown cause) Meds? in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/drug-induced-ipf-unknown-cause-meds/#post-37269 Wed, 10 Jul 2024 11:42:41 -0500 Reply to Drug Induced IPF (unknown cause) Meds?

Bingo. I was on Nitrofurantoin for 3 years for frequent UTI problems. I had a clear Lung CT in 2017. Next CT in 2019 showed ground glass opacities.

I researched and read online that Spironolactone could cause this and quit the med immediately!

I had been seen for sleep apnea and had breathing capacity tests every 6 months. In 2024, my…

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]]> e608a5829c03459f31456b35e211ca2a birdwatcher666 replied to the discussion Ofev use in the elderly in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-use-in-the-elderly/#post-37268 Wed, 10 Jul 2024 11:19:29 -0500 Reply to Ofev use in the elderly

Thank you for that information. I am 9 days into taking Ofev and so far no problems. I am taking a protein snack with each dose (half before the pill and half after). Crossing my fingers!

]]> dd1409b5bc4d1876c6884d10ad405a69 birdwatcher666 replied to the discussion Ofev use in the elderly in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-use-in-the-elderly/#post-37255 Fri, 05 Jul 2024 12:26:11 -0500 Reply to Ofev use in the elderly

I am 80 just started OFEV this week. I was wondering about your diarrhea issues. I have gone to great efforts to take a small protein meal and 1 Boost protein drink with each dosing (1/2 before the pill and 1/2 after). So far, so good.

My concern is if you tried these measures and still had the constant diarrhea effect? I am dreading the…

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]]> e9e929c516ab9a4662a8892ba1a4fab3 birdwatcher666 became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/42507/ Fri, 07 Jun 2024 11:59:43 -0500 0