I’m 74 yrs old and peak weight was 240lbs. Over 2 yrs of taking Ofev and Cellcept my weight went to 185 lbs just before transplant. After transplant in May 2022 now my weight is 167 lb but I believe it’s stablizing as my body starts to recover from the surgery. Throughout those 2 years I exercise everyday and led a normal life albeit… Read more

Hi Pamela,

I was short of breath whenever I climb stairs or steep inclines starting in 2003. It would took me 6 hours to climb a mountain while my buddies too 2 or 3.  My oxygen was 97.  However, I continued life as normal and continued to play golf actively. It was not until 16 years later, in 2019 that I need to use supplemental oxygen, and… Read more

Hi Barry,

If you are being diagnosed just now, you may have many many years ahead of you because the fibrosis can develop slowly. For me it progressed over 15 years and a friend over 19 years. Therefore it is important to live a normal life and not worry too much about what will happen years from now. Current medications are proving to… Read more

At 74 and using 10 LPM of oxygen, I find it comforting to read Patricia Meadows’ post above, that 99% of patients pass away gently and without panic and gasping.

To echo the findings at Alberta, one of my doctors told me that air consists of 71% nitrogen and 21% oxygen.  If a person inhales pure nitrogen, he is likely to lapse into… Read more

Over the years I used several oxygen concentrators. At first I used the Inogen At Home, then the Philips Everflo. Both can go up to 5LPM. Both are relatively quiet. The Inogen gives out a “pop” sound every 5 seconds, but it’s not too loud and I can get used to it. The Everflo gives a continuous level of noise which basically fades into white… Read more