Pulmonary Fibrosis News Forums | Brian Thomson | Activity https://pulmonaryfibrosisnews.com/forums/members/brian-thomson/activity/ Activity feed for Brian Thomson. Sat, 18 Apr 2026 20:53:50 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1bcad0650611d8fefa9c7c2462384059 Brian Thomson posted an update: Hi all well pretty good news on my visit to my […] https://pulmonaryfibrosisnews.com/forums/activity/p/15910/ Mon, 28 Oct 2019 14:50:25 -0500 Hi all well pretty good news on my visit to my resperologest blood work is good breathing test was good as no big or worrisome changes.I take my daughter with me and that helps with what I am told.Still having the breathing the fatigue issues somedays I just chill as we all know stairs and walking are not what I would like them to be.zbut I… Read more

]]> 1 30ed26230879bd55929ae318e0cc5e8d Brian Thomson posted an update: Breathing test yesterday at hospital will have […] https://pulmonaryfibrosisnews.com/forums/activity/p/15697/ Wed, 16 Oct 2019 18:39:48 -0500 Breathing test yesterday at hospital will have results soon.losing energy and strength very scary, getting hard to get in my truck now I must use the handles to make sure I do not fall.Just don’t know what is coming down the line.On a more positive note spent one week camping in Port Elgin Ontario.All the family came they did it all I am unable… Read more

]]> 1 a8cc4ffd0e3a494b0f012188bf8a7460 Brian Thomson posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/15378/#acomment-15386 Wed, 25 Sep 2019 22:45:06 -0500 Could you recommend a product that would help with dryness in the nose do to constant oxygen use.

In reply to - Brian Thomson posted an update I have not been pro active with any treatment so I could really use some help in knowing what is safe for me to use I am on 02/24/7 even in the shower any help would accepted […] ]]> 7a8b87134aedd24960c4c822865ecaa7 Brian Thomson posted an update: I have not been pro active with any treatment so I […] https://pulmonaryfibrosisnews.com/forums/activity/p/15378/ Tue, 24 Sep 2019 22:59:55 -0500 I have not been pro active with any treatment so I could really use some help in knowing what is safe for me to use I am on 02/24/7 even in the shower any help would accepted stay strong Y’all.And thanks for being here.

]]> 3 4008ddea86a7f81ae4eecc553ab38013 Brian Thomson posted an update: Greetings from Ontario little update theO.F.E.V is […] https://pulmonaryfibrosisnews.com/forums/activity/p/15254/ Tue, 17 Sep 2019 20:04:08 -0500 Greetings from Ontario little update theO.F.E.V is working well thankfully no problems after dropping to 100 from 150.Big issues now are lack of energy, just have to force myself to be more active.Not sure where I am on this journey but trying to do the best that I can.Lots of guilt lots of acceptance problems and maybe depression.I no longer… Read more

]]> 1 76f4a1c2dc5a78177f904e0d02f10286 Brian Thomson posted an update: Having problems with waking up every day with […] https://pulmonaryfibrosisnews.com/forums/activity/p/12644/ Thu, 30 May 2019 23:04:33 -0500 Having problems with waking up every day with no energy,not really sure what is going on inside my body but I do not like it.I was inToronto yesterday with family and I took 2 mobile oxygen tanks plus my large tank inside my truck.I find that I tire very quickly and seems that I always run short of oxygen.I talked to my home care nurse today… Read more

]]> 1 a349e9c665dbdb2c7d853dc93ee53ab0 Brian Thomson posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/10984/#acomment-11812 Tue, 30 Apr 2019 00:46:56 -0500 Well the lower dose ofev have been vey easy on me,I have lost a fair amount of weight which is concerning but will keep an eye on it.I have turned into what I call a maller bought a walker named him Wilson and try and walk the malls at least a couple times a week.As the weather gets better will walk outside.Wish me luck I have already booked… Read more

In reply to - Brian Thomson posted an update Just started my ofev 100mg twice a day plus put me on Dexamethasone here is hoping.. ]]> 9ff043b956be75fb154dbee12159d034 Brian Thomson posted an update: Just started my ofev 100mg twice a day plus put me […] https://pulmonaryfibrosisnews.com/forums/activity/p/10984/ Fri, 05 Apr 2019 22:52:27 -0500 Just started my ofev 100mg twice a day plus put me on Dexamethasone here is hoping..

]]> 2 a554083f9c2ea4bbdbe630e69d676215 Brian Thomson posted an update: Saw my respirologist today blood work is good going […] https://pulmonaryfibrosisnews.com/forums/activity/p/10730/ Fri, 29 Mar 2019 21:29:38 -0500 Saw my respirologist today blood work is good going from OFEV 150 twice a day to 100 twice a day.Also put me on dexamethasone to increase my appetite.I have suffered with diarrhea and have been losing weight since November.Here’s hoping that things will be improving in the near future.

]]> 1 a02e9f2713f9e33debc811346b43f708 Brian Thomson posted an update: Have been on O.F.E.V.since Nov.1st 2018 and am […] https://pulmonaryfibrosisnews.com/forums/activity/p/10444/ Mon, 18 Mar 2019 23:40:19 -0500 Have been on O.F.E.V.since Nov.1st 2018 and am loosing weight and constant diarrhea simply have no appetite at all.I have home care which provide me with a nurse and a dietician.My nurse has asked me to see my resporoligest as soon as possible.So called him today and have a appointment for a week from this Friday.I think he will lower my dosage… Read more

]]> 1 098f9cdbccbfffdbcb28d5e5e5111467 Brian Thomson posted an update: I have had a nurse tell me to go dairy free to help […] https://pulmonaryfibrosisnews.com/forums/activity/p/8801/ Tue, 12 Feb 2019 22:25:50 -0600 I have had a nurse tell me to go dairy free to help with diarrhea and stomach pains.Yesterday my dietician told me she wanted me to stop dairy free since I was losing weight and needed more calories.My Dr.is re thinking my dosage amount which is two pills 12 hours apart he may drop them from 150 to 100.I am a wee bit confused

]]> 2 4d9a5492bbd70d34b035da2630909342 Brian Thomson replied to the discussion The Benefit of 'Healthy Fats' & Protein Bars in the forum Healthy Recipe Sharing https://pulmonaryfibrosisnews.com/forums/forums/topic/benefit-healthy-fats-protein-bars/#post-16188 Tue, 22 Jan 2019 22:37:02 -0600 Reply to The Benefit of 'Healthy Fats' & Protein Bars

Looks like this is what I am looking for.I have lost weight and find I have little appetite so I take protein shakes add a half banana some peanut butter. This fills me up and allows me to take my Ofev pill.I am told to add more calories to my diet so am always looking for tips from these pages.Thanks

]]> dad4af446d11e6ea23e716ad2764f8f6 Brian Thomson posted an update: I have been taking O,F,E.V.for one week and so far so good […] https://pulmonaryfibrosisnews.com/forums/activity/p/6607/ Fri, 09 Nov 2018 14:25:05 -0600 I have been taking O,F,E.V.for one week and so far so good a little discomfort on the first night but since then all is good.I was wondering if I would have any of the side effects that some have,I take the meds 12 hours apart and have the alarm set on my phone for my evening pill.I try not to get too far ahead of myself just taking life one… Read more

]]> 1 bd0663d4ad1af7ed1760acdced1b8eec Brian Thomson replied to the discussion Do you take OFEV? Take our poll! in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/take-ofev-take-poll/#post-15094 Tue, 30 Oct 2018 15:53:07 -0500 Reply to Do you take OFEV? Take our poll!

Will begin this Thursday hoping for the best.

]]> 013494db6dff31cd645f275ef11256d6 Brian Thomson posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/3072/#acomment-6376 Tue, 30 Oct 2018 15:51:00 -0500 Thank you for sharing George I was diagnosed with IPF in March of this year although I have had breathing issues for the past 6 years.My family Dr.was treating me for COPD.I am on oxygen 24/7 my life as I knew it is gone so I must adapt to this new life.I will be going on OFEV on Thursday and hope I have good results.

In reply to - George A Rydberg became a registered member ]]> 261d6f04e7f6bf773c3b81f38e905d7e Brian Thomson replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-14973 Thu, 25 Oct 2018 00:56:27 -0500 Reply to Starting Ofev

I was diagnosed with I.P.F.in March of this year,next Thursday I wii be receiving my first supply of O.F.E.V.I have read about the side effects of this medication but I am willing to try what my Dr.advises me too.I am from Canada and the govt.will cover the cost of my meds.I have such great family and friends support so here goes.Thank you all… Read more

]]> 529ebb146d833b6e09ba1d3de032c5e0 Brian Thomson updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/4691/ Mon, 13 Aug 2018 12:08:59 -0500 0 9916fceb1f9233c3d88190a1103bcdf2 Brian Thomson became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/4689/ Mon, 13 Aug 2018 12:07:24 -0500 1