George A Rydberg

I have been taking the same amount as you. I take an Imodium with each pill. I also take a chewable Pepto if my stomach talks to me. I can’t handle much fiber so I stay with canned fruit and veggies, no salads. One of the earlier posts suggests protein with each pill. I find just eating anything helps. Yes, sometimes I get diarrhea, but not bad u…[Read more]

I have been taking Ofev since early in 2016 right after I was diagnosed with IPF. My lung capacity has not gone down since I started Ofev. It’s painless and the patient has nothing to lose. A program helps with the cost and my insurance covers the rest. Get them to start, it is never too soon. A good lung doctor would be pushing the medicine. T…[Read more]

I have been taking Ofev since January of 2016. It has been working extremely well. The side affects are handled by taking Imodium. I take 2-150 mg pills and 3 Imodium, 2 in the morning and one at night. I also make sure to eat something with the medicine. I am not very active as I just cannot breathe when doing almost anything. Ofev is definitely…[Read more]

I have been taking Ofev for over 3 years. I have not had to pay anything. My insurance pays after my co-pay. Open Doors finds help with the co-pay. I don’t know anyone personally who has not been helped by Open Doors with the co-pay. My doctor set it up when he first diagnosed me with IPF. Don’t delay starting Ofev as it works.

Charlene,

I have been doing rehab for 7 months. I decided to give it a try and it has helped. I increased the length I walked in the 6 minute test by 20% so I am happy. The program I go to isn’t recognized by Medicare so I am a self pay, but I don’t mind that. The nurses are very educated and also very friendly. It is a good social time and hel…[Read more]

I decided I have a good life no matter what. Good wife, good life. I go slow, but try to stay involved with things that mean something to me. Pulmonary rehab twice a week with great nurses and other great patients.

Yes-over 2 years