My doctor put me on Questran packets which really help limit diarrhea. I take a packet every day, sometimes two a day if diarrhea is bad. You have to be careful that you don’t take more than that because then you have to deal with constipation.

But that is the only thing that works for me.

I am now 77 and was diagnosed in 2022. I have ILD caused in part by Scleroderma and have been on Ofev for the last 2 years, and have raging diarrhea partially controlled with Cholestyramine. packets. My last Pulmonary Function test and x rays showed my disease is now moderate scarring. I have been told I am probably too old for a transplant.…

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I am now 77 and told that I may be “nearing the need” for a lung transplant but in the same breath told that UPMC hospital’s age requirement stops at 65. I am in reasonably good health and am still active.

I was diagnosed in 2022 with Interstitial Lung Disease that I am told I had for awhile before finally getting a definitive diagnosis. Prior…

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I was diagnosed 2 years ago with Interstitial Lung disease, and autoimmune disease that causes scarring in my lungs. I’ve been on Ofev for almost two years and my doctor says I may need a lung transplant.

Are there other treatments I could try to avoid transplantation? I am 77 and think I would be rejected because of my age. I know that…

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