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Carol Maumee

Home Members Carol Maumee
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Profile picture of Carol Maumee

@cedarburg123

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  • Profile picture of Carol Maumee

    Carol Maumee posted a new activity comment 3 years, 4 months ago

    Thank you very much for the info

    View Conversation
    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      You are welcome.

  • Profile picture of Carol Maumee

    Carol Maumee posted a new activity comment 3 years, 4 months ago

    Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you

    View Conversation
    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
      https://www.ofev.com/support/open-doors
      You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark

      • Profile picture of Carol Maumee
        Carol Maumee replied 3 years, 4 months ago

        Thank you very much for the info

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 4 months ago

          You are welcome.

  • Profile picture of Carol Maumee

    Carol Maumee posted a new activity comment 3 years, 4 months ago

    Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day

    View Conversation
    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark

      • Profile picture of Carol Maumee
        Carol Maumee replied 3 years, 4 months ago

        Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 4 months ago

          Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
          https://www.ofev.com/support/open-doors
          You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark

          • Profile picture of Carol Maumee
            Carol Maumee replied 3 years, 4 months ago

            Thank you very much for the info

            • Profile picture of Mark Koziol
              Mark Koziol replied 3 years, 4 months ago

              You are welcome.

  • Profile picture of Carol Maumee

    Carol Maumee posted a new activity comment 3 years, 4 months ago

    Thank you Mark. Just been diagnosed with pulmonary fibrosis and bronchiectasis

    Kind of feeling uncertain about it all

    View Conversation
    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      Hi Carol, this disease will do that to you. I never heard of it until I was going through the testing process. No one likes the unknown. I do feel the members, and Charlene and I will be able to offer support, suggestions, and encouragement. Take care, mark.

      • Profile picture of Carol Maumee
        Carol Maumee replied 3 years, 4 months ago

        Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 4 months ago

          Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark

          • Profile picture of Carol Maumee
            Carol Maumee replied 3 years, 4 months ago

            Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you

            • Profile picture of Mark Koziol
              Mark Koziol replied 3 years, 4 months ago

              Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
              https://www.ofev.com/support/open-doors
              You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark

              • Profile picture of Carol Maumee
                Carol Maumee replied 3 years, 4 months ago

                Thank you very much for the info

                • Profile picture of Mark Koziol
                  Mark Koziol replied 3 years, 4 months ago

                  You are welcome.

  • Profile picture of Carol Maumee

    Carol Maumee became a registered member 3 years, 4 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      Hello Carol, thank you for joining your pulmonary fibrosis forum. Welcome!

      • Profile picture of Carol Maumee
        Carol Maumee replied 3 years, 4 months ago

        Thank you Mark. Just been diagnosed with pulmonary fibrosis and bronchiectasis

        Kind of feeling uncertain about it all

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 4 months ago

          Hi Carol, this disease will do that to you. I never heard of it until I was going through the testing process. No one likes the unknown. I do feel the members, and Charlene and I will be able to offer support, suggestions, and encouragement. Take care, mark.

          • Profile picture of Carol Maumee
            Carol Maumee replied 3 years, 4 months ago

            Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day

            • Profile picture of Mark Koziol
              Mark Koziol replied 3 years, 4 months ago

              Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark

              • Profile picture of Carol Maumee
                Carol Maumee replied 3 years, 4 months ago

                Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you

                • Profile picture of Mark Koziol
                  Mark Koziol replied 3 years, 4 months ago

                  Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
                  https://www.ofev.com/support/open-doors
                  You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark

                  • Profile picture of Carol Maumee
                    Carol Maumee replied 3 years, 4 months ago

                    Thank you very much for the info

                    • Profile picture of Mark Koziol
                      Mark Koziol replied 3 years, 4 months ago

                      You are welcome.

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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