@cedarburg123
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Carol Maumee posted a new activity comment 2 years, 9 months ago
Thank you very much for the info
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Carol Maumee posted a new activity comment 2 years, 10 months ago
Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you
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Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
https://www.ofev.com/support/open-doors
You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark-
Thank you very much for the info
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You are welcome.
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Carol Maumee posted a new activity comment 2 years, 10 months ago
Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day
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Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark
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Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you
-
Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
https://www.ofev.com/support/open-doors
You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark-
Thank you very much for the info
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You are welcome.
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Carol Maumee posted a new activity comment 2 years, 10 months ago
Thank you Mark. Just been diagnosed with pulmonary fibrosis and bronchiectasis
Kind of feeling uncertain about it all
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Hi Carol, this disease will do that to you. I never heard of it until I was going through the testing process. No one likes the unknown. I do feel the members, and Charlene and I will be able to offer support, suggestions, and encouragement. Take care, mark.
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Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day
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Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark
-
Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you
-
Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
https://www.ofev.com/support/open-doors
You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark-
Thank you very much for the info
-
You are welcome.
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Carol Maumee became a registered member 2 years, 10 months ago
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Hello Carol, thank you for joining your pulmonary fibrosis forum. Welcome!
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Thank you Mark. Just been diagnosed with pulmonary fibrosis and bronchiectasis
Kind of feeling uncertain about it all
-
Hi Carol, this disease will do that to you. I never heard of it until I was going through the testing process. No one likes the unknown. I do feel the members, and Charlene and I will be able to offer support, suggestions, and encouragement. Take care, mark.
-
Family and friends want to be supportive but they don’t always get it. And it’s not their fault. Any suggestions would be greatly received. I am pro active with the disease and reading all I can about the disease, treatment options, exercise, and trying to keep positive. It’s hard to put on that happy face every day
-
Hello Carol, I encourage you to peruse the forum last and corresponding topics. You may find what you are looking for or you can ask something specific to the members that has been on your mind. Mark
-
Thank you. I will. I’m wondering if anybody is taking Ofev and how they are handling the high cost of the drug. Are there any grants or programs that anyone might know about. Thank you
-
Carol, there are many members who are taking ofev or Esbriet. Here is a link to open doors. They might be able to help.
https://www.ofev.com/support/open-doors
You should also contact your dr, he may have some knowledge of other opportunities for you to receive help with the cost. Mark-
Thank you very much for the info
-
You are welcome.
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You are welcome.