Pulmonary Fibrosis News Forums | ChArles Bietsch | Activity https://pulmonaryfibrosisnews.com/forums/members/chas2712/activity/ Activity feed for ChArles Bietsch. Fri, 17 Apr 2026 13:51:55 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d8cd1dea9bb8576e83bca5fce3851ae1 ChArles Bietsch replied to the discussion Sleeping with head elevated in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/#post-32629 Thu, 14 Jul 2022 23:10:24 -0500 Reply to Sleeping with head elevated

The primary purpose of head elevation is to prevent silent acid reflux from entering the lungs. There is a strong correlation between GERD and IPF. And several peer reviewed studies have been done to establish the connection

If you have not had a 24 hour reflux test you may consider it to verify. If proven that you do. There are remedies… Read more

]]> b5254b1d030a61cc4c100eeaf2514101 ChArles Bietsch replied to the discussion CT Scan Reads Compatible with Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/ct-scan-reads-compatible-with-pulmonary-fibrosis/#post-32479 Thu, 30 Jun 2022 21:41:15 -0500 Reply to CT Scan Reads Compatible with Pulmonary Fibrosis

Hi I don’t know where you live , or if you are using a local / standard pulmonologist for evaluation

There are a variety of types / conditions that cause fibrosis in the lungs. Ie infection, autoimmune diseases, etc

To set you mind at ease find a pulmonary fibrosis center of excellence near you. Usually they are a specialized ILD… Read more

]]> 27415fd23e627ec8c4be87b3c5687a97 ChArles Bietsch replied to the discussion The Harsh Realities of Lung Transplantation in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/the-harsh-realities-of-lung-transplantation/#post-32441 Mon, 27 Jun 2022 23:26:02 -0500 Reply to The Harsh Realities of Lung Transplantation

I can say after having a single 4 1/2 years ago my ipf cough all but disappeared.  Still cough occasionally, but no where as debilitating as before.  The new lung will take over the primary  function . And the native lung will slowly fade…. Though mine has been relatively stable. My view, not a big issue to worry about.  I was 72 at time of Tx… Read more

]]> 927537c9769fa8dd29d690057a2b0d52 ChArles Bietsch replied to the discussion Drinking Wine with Pulmonary Fibrosis. in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/drinking-wine-with-pulmonary-fibrosis/#post-32134 Thu, 19 May 2022 20:51:24 -0500 Reply to Drinking Wine with Pulmonary Fibrosis.

Charlene…. It would depend upon what type of medication you are on. Some such as cellcept and prednisone are toxic to the liver and kidneys and preservation of their function is necessary for king yet survival. Alcohol of any kind is not recommended

Same if one is contemplating a transplant. Liver and kidneys need to be fully functional to be… Read more

]]> 693a9b04cd5521a7283be65f7dd09e7b ChArles Bietsch replied to the discussion The Harsh Realities of Lung Transplantation in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/the-harsh-realities-of-lung-transplantation/#post-31596 Mon, 04 Apr 2022 23:29:49 -0500 Reply to The Harsh Realities of Lung Transplantation

If they suggested a stent it will likely not disqualify you.  If they do it before you will likely have to wait for approx six months as you will be on blood thinners.    Sometimes they take care of it during the Tx surgery depending upon age.

 

at my evaluation I had two over 60%, did not have stents , still don’t and that was 4 1/2 years… Read more

]]> 664edfb495a9a40e522b92ff4f3fbab4 ChArles Bietsch replied to the discussion The Harsh Realities of Lung Transplantation in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/the-harsh-realities-of-lung-transplantation/#post-30903 Sat, 29 Jan 2022 01:11:21 -0600 Reply to The Harsh Realities of Lung Transplantation

Hi… Char

I responded to your article from the standpoint of a person who has gone through the process, and to share my experience and views

The title of the article was the “harsh realities”of lung transplant…, which could infer that your points are fact, and apply to all cases.

While some May experience issues you mention, many do… Read more

]]> 4f3a5938fe78a94d49e5c319c2dfcc12 ChArles Bietsch replied to the discussion The Harsh Realities of Lung Transplantation in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/the-harsh-realities-of-lung-transplantation/#post-30870 Thu, 27 Jan 2022 22:45:26 -0600 Reply to The Harsh Realities of Lung Transplantation

Mark….

Some comments  on your post….

Sure your immune system is depressed.  However, you don’t have to move in a bubble.  I have navigated the last two years with no issues and have led no less normal life than others.

It is no more dangerous than navigating the landscape with ipf.  One virus could wipe you out as well. Just be… Read more

]]> a108fff4d8e87bc0cdf5e0b3875d62cd ChArles Bietsch replied to the discussion The Harsh Realities of Lung Transplantation in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/the-harsh-realities-of-lung-transplantation/#post-30867 Thu, 27 Jan 2022 21:50:49 -0600 Reply to The Harsh Realities of Lung Transplantation

Charlene.  Hi, read your article and sense this is coming from a place of uncertainty and/or fear.

I have to disagree with you on several points…. In particular the title of the article “harsh” reality????

what could be more harsh than living with IPF and not being able to do anything about it???

First, the statement trading one disease for… Read more

]]> 054fa31587c9b8d8927a472168d98d8e ChArles Bietsch became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/31289/ Thu, 27 Jan 2022 21:25:01 -0600 1