Hi. I don’t take this but after looking it up, I wonder if this is an approved use for PF as I see it is for RA and Cancer? Do you have info from where your doctor discovered this use?

Can someone please explain to me why so many are taking this drug (or the other one) when: it causes so many horrible side effects, costs a fortune, has only a 50% chance of stopping lung decline, are newly diagnosed with no symptoms, in fact really healthy other than a diagnosis? Why aren’t these f-ing drug companies researching ways to CURE…

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Hi Larry, your pulmonologist is just giving his opinion on your CT scan, the radiologist gives another opinion. Granted they are educated but they are still two separate interpretations. My pulmonologist told me this, because he sees me in person and does not believe what the radiologist is seeing. Scary, I know, but given that information,…

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Hi Larry, I’m going to give you a totally different opinion based on my experience and research. An IPF diagnosis does not automatically mean a death sentence, although it certainly can for many. I was diagnosed 14 years ago (also by accident after a ct scan for something unrelated). Since then, I regularly get pf tests and ct scans, which show…

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Not really that expensive if you just get one panel, plus you own it so you’re not paying for each visit. From what I understand, consistency is most important so you’d want to keep doing it. I use mine 5 to 7 days a week for 20 minutes each time. That’s all you need for your lungs/face area. Sorry I don’t know about the other type (laser?).

Hi Everyone, I use red light therapy for several reasons and love it. Platinum LED Therapy Lights has a wealth of information on their site you may want to read. (Not sure why some of you are calling it a laser. It’s not.) So make sure you educate yourself before buying anything. I believe because it works on a cellular level and reduces… Read more

Hi Chris, try not to stress about it as there is so much info that can be discouraging. I just wanted to share that I was devastated when I got the IPF diagnosis, but that was a beautiful 13 years ago. I only have mild shortness of breath and have not been on any meds. I definitely wear an N95 when I go anywhere, plus I have all the Covid… Read more

Hi Joe. I too freaked out after an anesthesiologist said to me while putting me out for an unrelated procedure “By the way, you know you have pulmonary fibrosis.” I did all the research, got all the tests and continue to follow up with a pulmonologist. The good news is, I have zero symptoms, do not require any special treatment, and have not… Read more