Pulmonary Fibrosis News Forums | Cliff Cleary | Activity https://pulmonaryfibrosisnews.com/forums/members/cliff-cleary/activity/ Activity feed for Cliff Cleary. Thu, 09 Apr 2026 19:17:20 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 b450904d48fc11f05dffe40578f6e646 Cliff Cleary replied to the discussion How Pulmonary Fibrosis Impacts Patients at Various Life Stages in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/12626/#post-12790 Mon, 28 May 2018 11:07:51 -0500 Reply to How Pulmonary Fibrosis Impacts Patients at Various Life Stages

Hi Charlene,

I was first diagnosed with allergies and was treated for them for about 3-4 years, then emphysema for another 2 years. Then in 2015 I was diagnosed with IPF.

Last November I was rushed to hospital and diagnosed with Anca Vasculitis and nearly died. Funnily enough the Vasculitis has similar symptoms to IPF so at the time I thought… Read more

]]> 452ba00db2774fc39921a2d559a84dea Cliff Cleary replied to the discussion How Pulmonary Fibrosis Impacts Patients at Various Life Stages in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/12626/#post-12771 Sat, 26 May 2018 20:48:43 -0500 Reply to How Pulmonary Fibrosis Impacts Patients at Various Life Stages

Hi Charlene,

Firstly let me say that I marvel how you put so much into these forums and I admire how you are coping with this horrible disease at such a young age.

I’m 63 and was diagnosed in Sept 2015, that was after being misdiagnosed for a number of years. I have been struggling with chronic pain and depression since 2006 due to injuries… Read more

]]> ed34af2e51271da66536fb4144d5500f Cliff Cleary replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-12071 Thu, 26 Apr 2018 21:40:14 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi Pamela,

Interesting to hear of your use of prednisone, my doctors are reluctant to keep me on them and at the moment I’m on a very low dosage. I’m currently taking 12.5mg per day.

I would like to know what dosage your pills are and what others are on. I’m in Australia and it doesn’t seem that prednisone is being used much for IPF here.

Cheers

Cliff

]]> aaaa80bc97b1a93fafa355f3662a08ce Cliff Cleary posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/1915/#acomment-2031 Fri, 20 Apr 2018 04:11:06 -0500 Hi Charlene,
I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!

I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would… Read more

In reply to - Cliff Cleary changed their profile picture ]]> 2d3f96487aee3a77a3837078a742cd65 Cliff Cleary replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-11895 Thu, 19 Apr 2018 07:31:49 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi All,

It’s quite an eye opener to read about other IPF sufferers experiences from another country, over here downunder we can sometimes be a bit behind. I have also found from  reading articles and this forum and from other sufferers that medication and dosages can differ greatly.

If I find out if there’s any problems with Pirfenidone and… Read more

]]> a7a1680b84be24fc49c39d33518dcfc3 Cliff Cleary posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/1915/#acomment-2003 Thu, 19 Apr 2018 06:59:40 -0500 Thanks Charlene, I’m also a part of a group of IPF diagnosed gentleman only because we haven’t had any ladies join yet. We call ourselves the “Bung Lung Mob” I came up with the name as I wanted to try and have fun as well as sincere support.
Myself and another gentleman also do some phone call support for the Lung Foundation Australia… Read more

In reply to - Cliff Cleary changed their profile picture ]]> 9734de567a4545d17dda2f1923cce115 Cliff Cleary replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-11890 Wed, 18 Apr 2018 21:24:42 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi Charlene,

I’m not sure there’s any reaction between Pirfenidone and prednisone, I’m still waiting to hear back from doctors.

While I was on 30mg prednisone it did help my IPF symptoms quite a bit, the only problem is I’m not sure if it was the Anca Vasculitis or IPF that was the major problem as they both have similar symptoms. The… Read more

]]> c349b672953d1ab97c0a51c7a5d88efd Cliff Cleary posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/1915/#acomment-1990 Wed, 18 Apr 2018 21:05:59 -0500 Thanks Charlene, I’ve been reading your articles for a while now so I thought it was about time I joined in!

In reply to - Cliff Cleary changed their profile picture ]]> 62411208704bfccd557b0082373a6ff8 Cliff Cleary replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/topic/pf-patients-experience-prednisone/#post-11867 Tue, 17 Apr 2018 21:32:56 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi Everyone,

I was diagnosed with IPF in September 2015, I was taking Pirfenidone until November 2017 when I was diagnosed with Anca Vasculitis. I was put on Prednisone for the new diagnosis and then taken off the Pirfenidone as doctors were concerned there might be a reaction with the two drugs.

I started on 30mg Prednisone and it was… Read more

]]> 6482c5d2901108b93ca10c6eddf07bdf Cliff Cleary changed their profile picture https://pulmonaryfibrosisnews.com/forums/activity/p/1915/ Tue, 17 Apr 2018 21:14:24 -0500 6 f3c367a620134847594e067de8d4b1df Cliff Cleary updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/1913/ Tue, 17 Apr 2018 21:08:37 -0500 0 a44e5a8ab2d600f0bdd0a083bc4a6b9b Cliff Cleary became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/1911/ Tue, 17 Apr 2018 21:04:39 -0500 0