Great topic and very timely for me personally. I actually went to see my general practitioner (GP) after what seemed like sudden changes in my SOB. They really didn’t come up with anything but did give me an inhaler with steroids and it seemed to help. Interestingly a chest AP and Lateral XRAY was taken and the radiologist mentioned ground glass… Read more

Monica,

Based on discussions I’ve had with my pulmonologist the improvement is likely due to your effort, situation, position, or whatever the last time you had the spirometry. The measurements taken are a more general type measurement as opposed to a specific measurement such as your height. The complete set of measures is more indicative of… Read more

I know for a fact that esbriet is contraindicated if you’re on Ofev. I’d imagine it’s the same if you’re on esbriet I.e Ofev would likely be contraindicated.

Cecil,

Sorry to hear of your diagnosis. As John said above I’m also not a doctor and believe the progression will be faster without one of the antifibrotics than taking one. We’re all different so who knows how the disease will progress in anyone of us but it will progress. If you’re a gambling person perhaps you’d put off the therapy till… Read more

Really good question that should be easy to answer but isn’t. I’ve been on OFEV for about 16 and a half months. Had a baseline PFT in June 2019 then a follow up in Dec 20 (started OFEV in Jan 20). There was a very slight decline in most measures. Had another follow up PFT in April 2021. Slight declines continue but rate of decline seem to be… Read more

Auriela,

I had a complete work up in the spring of 2019 for shortness of breath on exertion. The work up was mainly cardiac in nature as my family history has a number of cardiac issues.  Cardiac was fine but you already know the rest of the story. I’m 68 and in good physical condition. The only pill I take is Ofev. I can still walk a couple… Read more

Hi Aurelia,

Got my diagnosis of IPF about a year ago. Had a chest X-ray in the spring that showed interstitial lung disease. A high res CT scan was inconclusive so I had a lung biopsy. It was done using a DaVinci robot and was a breeze. I was out for it but it took all of 10 minutes and there was little to no discomfort. I felt like I could’ve… Read more