Pulmonary Fibrosis News Forums | Sharon | Activity https://pulmonaryfibrosisnews.com/forums/members/crystal/activity/ Activity feed for Sharon. Wed, 22 Apr 2026 18:29:45 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 5003ee4df901fde727d49191921214b5 Sharon replied to the discussion Digital Clubbing in Pulmonary Fibrosis Patients in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/12231/#post-29854 Tue, 07 Sep 2021 16:32:00 -0500 Reply to Digital Clubbing in Pulmonary Fibrosis Patients

  1. I was only diagnosed with ipf October last year. My fingers started clubbing at least twenty-five years ago because I remember my mum noticing them and remarking on them. My mum  pasted away over twenty years ago.
  2. When ever I get a cough instead of it lasting a couple of weeks like the rest of the family I have it for two or three months…

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]]> 10fb996281c35bb99afddcd22c94546e Sharon replied to the discussion Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/low-dose-of-esbriet-is-it-worthwhile/#post-29742 Mon, 30 Aug 2021 22:38:45 -0500 Reply to Low dose of Esbriet, is it worthwhile?

Hi Charl,

Sorry I didn’t see your post until now.

I am now on 100 mg twice a day of the nintendanib and have been for a few months now. Still having stomach cramps and a little bit of diarrhea but nothing I can’t handle. I had my assessment with the transplant team three weeks ago and was so pleased when they said I did not need to go on… Read more

]]> 01ecfa36470c3f5a6af12fcb40498977 Sharon replied to the discussion Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/low-dose-of-esbriet-is-it-worthwhile/#post-27585 Fri, 05 Mar 2021 15:16:31 -0600 Reply to Low dose of Esbriet, is it worthwhile?

Hi, I stared on Nintedanib last November 150mg twice daily. I had a call from my respiratory nurse middle January saying to reduce meds to 100mg twice daily. I thought this was because of the side effects I was having. Had another call from respiratory nurse yesterday asking me to go to the hospital today for a blood test as my liver enzymes… Read more

]]> 7abe0136e271d83c45110d835c6f1de6 Sharon posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/25250/#acomment-25359 Mon, 08 Feb 2021 16:43:41 -0600 Hi lda,
Reading your post was as if I had almost wrote it.
I was diagnosed October 2020 and I will be 61 this April. Been experiencing breathlessness for a few years but always put it down to my bad back.
I was on Ofev 150 twice a day but now on 11 twice a day because I was experiencing stomach cramps and diarrhea through out the day. It has… Read more

In reply to - Ida Anker became a registered member ]]> 0f5bc0017fda27548664d396cf638e04 Sharon posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/24820/#acomment-24827 Sat, 09 Jan 2021 19:17:03 -0600 Hi Mark,
Thank you for accepting me on your forum.

In reply to - Sharon became a registered member ]]> ec0ffc0e96eded73c32d01bba89ebbd6 Sharon became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/24820/ Sat, 09 Jan 2021 13:38:48 -0600 3