Sharon replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
- I was only diagnosed with ipf October last year. My fingers started clubbing at least twenty-five years ago because I remember my mum noticing them and remarking on them. My mum pasted away over twenty years ago.
- When ever I get a cough instead of it lasting a couple of weeks like the rest of the family I have it for two or three months and…
Sharon replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis Information and General Questions 1 year, 9 months ago
Sorry I didn’t see your post until now.
I am now on 100 mg twice a day of the nintendanib and have been for a few months now. Still having stomach cramps and a little bit of diarrhea but nothing I can’t handle. I had my assessment with the transplant team three weeks ago and was so pleased when they said I did not need to go on the…[Read more]
Sharon replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis Information and General Questions 2 years, 3 months ago
Hi, I stared on Nintedanib last November 150mg twice daily. I had a call from my respiratory nurse middle January saying to reduce meds to 100mg twice daily. I thought this was because of the side effects I was having. Had another call from respiratory nurse yesterday asking me to go to the hospital today for a blood test as my liver enzymes are…[Read more]
Sharon posted a new activity comment 2 years, 3 months ago
Reading your post was as if I had almost wrote it.
I was diagnosed October 2020 and I will be 61 this April. Been experiencing breathlessness for a few years but always put it down to my bad back.
I was on Ofev 150 twice a day but now on 11 twice a day because I was experiencing stomach cramps and diarrhea through out the day. It has eased…[Read more]
Sharon posted a new activity comment 2 years, 4 months ago
Thank you for accepting me on your forum.
Sharon became a registered member 2 years, 4 months ago
Dear Sharon, so sorry to hear that you have this awfull diagnose aswell. I’m on week 5 With Ofev, and happily still no side effects. Lung transplant is currently no issue for me, as the Doctor says I’m to healthy at the moment. DO you have less lunge capacity? I’m currently at 70 % and doing well except climbing hills. Lets stay in touch. Take…[Read more]