Pulmonary Fibrosis News Forums | Dana Kelley | Activity https://pulmonaryfibrosisnews.com/forums/members/danakelley/activity/ Activity feed for Dana Kelley. Sat, 25 Apr 2026 08:09:06 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9f2ae5518dfdd628fed26a2b88cf25a9 Dana Kelley replied to the discussion How Planning a Vacation Helps Me Cope with PF in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/how-planning-a-vacation-helps-me-cope-with-pf/#post-26975 Sun, 24 Jan 2021 03:50:05 -0600 Reply to How Planning a Vacation Helps Me Cope with PF

We are planning a trip in our Airstream in April for however long we want to be gone, not sure yet.  We do love to go to the mountains.  The last time we were there i had a hard time breathing and now I know why.  Just thought it was something everyone had trouble with and just went on.  I’m not on oxygen now but wonder what I could buy to… Read more

]]> fc0027833c85d405a2a700337a80dbfa Dana Kelley replied to the discussion Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-users-can-safely-take-ofev-on-a-long-term-basis/#post-26936 Wed, 20 Jan 2021 14:52:27 -0600 Reply to Ofev Users can Safely take Ofev on a Long Term Basis

Day 7 taking OFEV. After a week of taking and reading all I can about IPF, I am beginning to relax a little. Knowing it’s a very unfortunate disease to have, I do believe you need to be as educated as you can, but I’m not an educated person so to speak. I struggle trying to understand the medical terminology I find and look up meanings. So… Read more

]]> a574c59f18f7887e42079dc3e12d01f7 Dana Kelley replied to the discussion Ofev in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-4/#post-26887 Sat, 16 Jan 2021 23:19:28 -0600 Reply to Ofev

Hi all, well, this is my 3rd day on OFEV 150mg. After reading so much about the diet you must watch, I’m hopeful I can do it. (I love to eat). Just hate reading on the internet that we only have 3-5 yrs to live. My doctor straightened me out on that. I refuse to let this stuff ruin my life, after reading a lot of threads on here I see it is… Read more

]]> 4ea0912ebb81940476c7f913ea8906d8 Dana Kelley replied to the discussion PF support group survey in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-support-group-survey-2/#post-26888 Sat, 16 Jan 2021 23:03:48 -0600 Reply to PF support group survey

One thing I haven’t seen here is sleeping with Cpap. I would get so tired in the afternoon 3-4 times a week, was just exhausted. Thought it was just because I had to work at breathing that wore me out. My pulmonologist suggested I get sleep study. I was having 10 disruptions and hr, so he prescribed the Cpap. I really hated the idea,I’d do… Read more

]]> 60668e709521d45ae2b35662dd08097a Dana Kelley replied to the discussion Phlegm in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/phlegm/#post-26860 Thu, 14 Jan 2021 04:53:12 -0600 Reply to Phlegm

Hello, I’m new on here and am learning to navigate the site. Question: does everyone have trouble tolerating the OFEV? I’ve read it’s a lot about your diet, so as I am starting my first dose tomorrow, I’m going to eat very carefully at first and gradually add foods as I tolerate. I’ve had this for 8 or more yrs and they’ve just put a name to… Read more

]]> f01314d36627a5a006a5cee02230a870 Dana Kelley replied to the discussion PF support group survey in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-support-group-survey-2/#post-26858 Thu, 14 Jan 2021 04:37:27 -0600 Reply to PF support group survey

Hello, don’t really know what to say except I’ve been Diag with IPF 2 months ago.  I feel I’ve had for 8 yrs or more, have been sob all that time.  I think

it’s slow progressing.  Just got my Rx for OFEV today.  Will start tomorrow.  I do admit I’m afraid because of hearing about so many unable to tolerate.  I really am going to work on my… Read more

]]> 1c720a54c0e1ff22a53b4f73f30f8eaa Dana Kelley posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/24891/#acomment-24899 Thu, 14 Jan 2021 00:33:10 -0600 Thanks. I am anxious to see just how everyone tolerates this med.

In reply to - Dana Kelley became a registered member ]]> 4cae4a3e8442a4020c1085ac5cd31a6d Dana Kelley posted an update: My OFEV was just delivered. I have been educating […] https://pulmonaryfibrosisnews.com/forums/activity/p/24898/ Thu, 14 Jan 2021 00:32:13 -0600 My OFEV was just delivered. I have been educating myself and researching as much as I can on side effect etc. Tomorrow when I take my first dose I’m going to watch what I eat all day because diet will play an important roll in how my system will react. I have to make this work for me. Finding this site was a God send and I look forward to… Read more

]]> 1 936ecd21ae0f9dc8c1a53d02f4e9d04c Dana Kelley became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/24891/ Wed, 13 Jan 2021 23:34:32 -0600 3